Person Centred Care and Shared Decision Making: Implications for Ethics, Public Health and Research
- 3.7k Downloads
This paper presents a systematic account of ethical issues actualised in different areas, as well as at different levels and stages of health care, by introducing organisational and other procedures that embody a shift towards person centred care and shared decision-making (PCC/SDM). The analysis builds on general ethical theory and earlier work on aspects of PCC/SDM relevant from an ethics perspective. This account leads up to a number of theoretical as well as empirical and practice oriented issues that, in view of broad advancements towards PCC/SDM, need to be considered by health care ethics researchers. Given a PCC/SDM-based reorientation of health care practice, such ethics research is essential from a quality assurance perspective.
KeywordsAdherence Autonomy Health care prioritisation Paternalism Person centred care Responsibility Shared decision making
This work was supported by University of Gothenburg Centre for Person-Centred Care (GPCC), Sweden. GPCC is funded by the Swedish Government’s grant for Strategic Research Areas, Care Sciences [Application to Swedish Research Council nr 2009-1088] and co-funded by University of Gothenburg, Sweden.
- 2.British Medical Journal (1999). 319(7212).Google Scholar
- 3.British Medical Journal (2000). 320(7227).Google Scholar
- 5.Brooker, D. (2007). Person centered dementia care: Making services better. London & Philadelphia: Jessica Kingsley Publishers.Google Scholar
- 7.Clarke, A. (Ed.). (1994). Genetic counselling: Practice and principles. London & New York: Routledge.Google Scholar
- 12.Dubois, C. A., Singh, D., & Jiwani, I. (2008). The human resource challenge in chronic care. In E. Nolte & M. Mckee (Eds.), Caring for people with chronic conditions. A health system perspective (pp. 143–171). Berkshire: Open University Press.Google Scholar
- 17.Goodrich, J. (2009). Exploring the wide range of terminology used to describe care that is patient-centred. Nursing Times, 105(20), 14–17.Google Scholar
- 19.Haynes, B. R., Taylor, W. R., & Sackett, D. L. (1979). Compliance in Health Care. Baltimore, MD: Johns Hopkins Univ. Press.Google Scholar
- 22.Juth, N. (2005). Genetic information. Values and rights. Göteborg: Acta Universitatis Gothoburgensis.Google Scholar
- 23.Kitwood, T., & Collins, M. B. (1997). Reconsidering dementia: The person comes first. London: Open University Press.Google Scholar
- 26.Lewin, S. A., Skea, Z. C., Entwistle, V., Zwarenstein, M., & Dick, J. (2001). Interventions for providers to promote a patient-centred approach in clinical consultations (Review). Cochrane Database of Systematic Reviews, 4, CD003267.Google Scholar
- 28.Luxford, K., Piper, D., Dunbar, N., & Poole, N. (2010). Patient-centred care: Improving quality and safety by focusing care on patients and consumers. Sydney: Australian Commission of Quality and Safety in Health Care. Available online: http://www.safetyandquality.gov.au/internet/safety/publishing.nsf/Content/com-pubs_PCCC-ImpQandS-discusspaper [Last accessed 2011-05-05].
- 30.McCarthy, P., LeRoy, B. S., & Bartels, D. M. (Eds.). (2003). Facilitating the genetic counselling process. London & New York: Springer.Google Scholar
- 31.McLean, A. (2006). The person in dementia: A study of nursing home care in the US. Toronto: University of Toronto Press.Google Scholar
- 32.McLeod, C. (2002). Self-trust and reproductive autonomy. London: MIT Press.Google Scholar
- 35.Nolte, E., & Mckee, C. M. (Eds.). (2008). Caring for people with chronic conditions. A health system perspective. Berkshire: Open University Press.Google Scholar
- 37.Rapp, R. (2000). Testing women, testing the fetus. The social impact of amniocentesis in America. London: Routledge.Google Scholar
- 43.Sandman, L., Granger, B. B., Ekman, I., & Munthe, C. (2011). Adherence, shared decision-making and patient autonomy. Medicine, Health Care and Philosophy. doi 10.1007/s11019-011-9336-x.
- 45.Segall, S. (2010). Health, luck and justice. Princeton: Princeton University Press.Google Scholar
- 47.Stiggelbout, A. M., Molewijk, A. C., Otten, W., Timmermans, D. R. M., van Bockel, J. H., & Kievit, J. (2004). Ideals of patient autonomy in clinical decision making: A study of the development of a scale to assess patients’ and physicians’ views. Journal of Medical Ethics, 30, 268–274.PubMedCrossRefGoogle Scholar
- 48.Thaler, R. H., & Sunstein, C. R. (2008). Nudge: Improving decisions about health wealth and happiness. New Haven & London: Yale University Press.Google Scholar
- 51.Van Royen, P., Beyer, M., Chevallier, P., Eilat-Tsanani, S., Lionis, C., Peremans, L., et al. (2010). The research agenda for general practice/family medicine and primary health care in Europe. Part 3. Results: Person centred care, comprehensive and holistic approach. European Journal of General Practice, 16, 113–119.PubMedCrossRefGoogle Scholar
- 53.WHO. (2003). Adherence to long-term therapies. Evidence for action. Geneva: World Health Organisation.Google Scholar