Unjustified Discrimination: Is the Moratorium on the use of Genetic Test Results by Insurers a Contradiction in Terms?
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This paper considers the legal position of genetic test results in insurance law in England and Wales. The strict position is that this information is material to the decision of the insurer to offer insurance cover and should be disclosed by insurance applicants. However, the British Government and the Association of British Insurers have agreed to a moratorium on the use of genetic test results in insurance, which will run until 2014. The moratorium prohibits unfavourable treatment of insurance clients on their basis of their genetics, unless it can be justified. In this paper, I consider the notion of genetic discrimination and ask whether it is possible to justify the concept in such a way that its existence should be accepted. The paper suggests that the insurance industry and the general public have different viewpoints on the concept of discrimination, and that this causes much of the disagreement over the issue of using genetic test results in insurance.
KeywordsEthics Genetic discrimination Genetic testing Insurance Law Moratoria
Association of British Insurers
BReast CAncer susceptibility
Human Genetics Commission
Hereditary nonpolyposis colorectal cancer
This work has been funded by the Arts and Humanities Research Council. The author would like to thank John Birds, John Coggon, colleagues at the Centre for Social Ethics and Policy at the University of Manchester, and the anonymous reviewers.
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