Familial Cancer

, Volume 6, Issue 2, pp 231–239 | Cite as

Patient perspectives on the Poole PCT cancer genetics service

  • Helen AllenEmail author
  • Lynn Maxwell
  • Nikki Dibley
  • Angela Bradley
  • Roger Baker
  • Peter Thomas
  • Donna McBride


Focussing on the primary care aspects of the Kenilworth model, the Poole Primary Care Trust (PCT) cancer genetics service has aimed to develop a high quality primary care-led service for the assessment and counselling of people concerned about their genetic risk of cancer. The service has been available through General Practitioner (GP) surgeries within the PCT since early 2006, and is delivered by Community Cancer Nurses as part of their role to provide proactive care and support to cancer patients, their families and the local population. Acting as a point of reference for cancer genetics at each practice, the nurses have supplied basic education to both health professionals and lay staff about the aims of the service and the genetic risk of cancer.

Feedback from service users is one of the key elements of the Poole evaluation. This article is based on the views of some of the first patients referred. The patients consulted one of the cancer nurses between June and December 2006, and were interviewed by a researcher about their experience. The interviews focussed on the psychosocial aspects of the patients’ experiences, which are less accessible through quantitative methods. The patients were encouraged to talk specifically and generally about their experiences, and described some of the feelings and emotions from the time of their referral onwards.


Cancer genetics service Psychosocial aspects of users Qualitative evaluation 



We are grateful to Macmillan Cancer Support and the UK Department of Health for supporting and funding this project.


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Copyright information

© Springer Science + Business Media B.V. 2007

Authors and Affiliations

  • Helen Allen
    • 1
    Email author
  • Lynn Maxwell
    • 2
  • Nikki Dibley
    • 2
  • Angela Bradley
    • 2
  • Roger Baker
    • 1
  • Peter Thomas
    • 1
  • Donna McBride
    • 3
  1. 1.Dorset RDSU, Cornelia HousePoole Hospital NHS TrustPooleUK
  2. 2.Community Cancer Nursing Service, Poole PCTCanford Health ClinicPooleUK
  3. 3.Wessex Clinical Genetics ServicePrincess Anne HospitalSouthamptonUK

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