Familial Cancer

, Volume 5, Issue 4, pp 405–409 | Cite as

Awareness of gynecologic surveillance in women from hereditary non-polyposis colorectal cancer families

  • Kathleen Yang
  • Brian Allen
  • Peggy Conrad
  • C. Bethan Powell
  • Jonathan Terdiman
  • Lee-may Chen
Original Paper

Abstract

Objective

To determine knowledge of gynecologic cancer risk and screening in women with HNPCC.

Study design

Forty-three women with HNPCC were counseled through a gastrointestinal cancer risk program, and later sent a questionnaire regarding their screening practices for gynecologic neoplasms.

Results

Twenty-seven (63%) of 43 responded. Fifteen (55%) of 27 had previously been diagnosed with cancer. Among 16 women with a uterus, 11 (69%) reported surveillance by ultrasound or endometrial sampling. Among 21 respondents with ovaries, 13 (62%) reported screening by ultrasound or CA125. Twenty-two (81%) of 27 had seen a gynecologist after receiving their HNPCC diagnosis, but only 12% recalled hearing about risks from their gynecologist, and␣8% from their gynecologic oncologist. Genetic counselors were cited as the most common source (48%) of gynecologic cancer risk information.

Conclusions

While the effectiveness of surveillance remains in question, gynecologists can be a source of information regarding gynecologic cancer risk for women from HNPCC families.

Keywords

Endometrial cancer Hereditary non-polyposis colorectal cancer Ovarian cancer Surveillance 

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Notes

Acknowledgement

The authors thank Juliet Chung and Amie Bianco for their assistance in the development and execution of this study.

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Copyright information

© Springer Science+Business Media B.V. 2006

Authors and Affiliations

  • Kathleen Yang
    • 1
  • Brian Allen
    • 2
  • Peggy Conrad
    • 2
  • C. Bethan Powell
    • 1
  • Jonathan Terdiman
    • 2
  • Lee-may Chen
    • 1
  1. 1.Division of Gynecologic Oncology, Department of Obstetrics, Gynecology, and Reproductive SciencesUCSF Comprehensive Cancer CenterSan FranciscoUSA
  2. 2.Colorectal Cancer Prevention Program, Cancer Risk Program, UCSF Comprehensive Cancer CenterSan FranciscoUSA

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