European Journal of Epidemiology

, Volume 31, Issue 2, pp 125–136 | Cite as

Registers of the Swedish total population and their use in medical research

  • Jonas F. Ludvigsson
  • Catarina Almqvist
  • Anna-Karin Edstedt Bonamy
  • Rickard Ljung
  • Karl Michaëlsson
  • Martin Neovius
  • Olof Stephansson
  • Weimin Ye
METHODS

Abstract

The primary aim of the Swedish national population registration system is to obtain data that (1) reflect the composition, relationship and identities of the Swedish population and (2) can be used as the basis for correct decisions and measures by government and other regulatory authorities. For this purpose, Sweden has established two population registers: (1) The Population Register, maintained by the Swedish National Tax Agency (“Folkbokföringsregistret”); and (2) The Total Population Register (TPR) maintained by the government agency Statistics Sweden (“Registret över totalbefolkningen”). The registers contain data on life events including birth, death, name change, marital status, family relationships and migration within Sweden as well as to and from other countries. Updates are transmitted daily from the Tax Agency to the TPR. In this paper we describe the two population registers and analyse their strengths and weaknesses. Virtually 100 % of births and deaths, 95 % of immigrations and 91 % of emigrations are reported to the Population Registers within 30 days and with a higher proportion over time. The over-coverage of the TPR, which is primarily due to underreported emigration data, has been estimated at up to 0.5 % of the Swedish population. Through the personal identity number, assigned to all residents staying at least 1 year in Sweden, data from the TPR can be used for medical research purposes, including family design studies since each individual can be linked to his or her parents, siblings and offspring. The TPR also allows for identification of general population controls, participants in cohort studies, as well as calculation of follow-up time.

Keywords

Population Register Registry Public health 

Abbreviations

PIN

Personal identity number

PR

Population Register

PR-Tax

Population Register (maintained by the Swedish Tax Agency)

TPR

Swedish Total Population Register (maintained by Statistics Sweden)

Notes

Acknowledgments

Jonas F. Ludvigsson would like to dedicate this paper to Ingvar Johannesson, former civil servant at Statistics Sweden, neighbour and friend. Johannesson authored the report Total Population Register 2002 BEO1O2. Ludvigsson would also like to acknowledge the help of secretary Angelica Netterhall, Karin Wegfors (Statistics Sweden), Jesper Brodin (Statistics Sweden) and Gunnilla Autio (Swedish Tax Agency). We acknowledge financial support from the Swedish Research Council through the Swedish Initiative for Research on Microdata in the Social And Medical Sciences (SIMSAM) framework Grant No. 340-2013-5867.

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Copyright information

© Springer Science+Business Media Dordrecht 2016

Authors and Affiliations

  • Jonas F. Ludvigsson
    • 1
    • 2
    • 3
  • Catarina Almqvist
    • 1
    • 4
  • Anna-Karin Edstedt Bonamy
    • 5
    • 8
  • Rickard Ljung
    • 6
  • Karl Michaëlsson
    • 7
  • Martin Neovius
    • 5
  • Olof Stephansson
    • 5
    • 8
  • Weimin Ye
    • 1
  1. 1.Department of Medical Epidemiology and BiostatisticsKarolinska InstitutetStockholmSweden
  2. 2.Department of PaediatricsÖrebro University HospitalÖrebroSweden
  3. 3.Division of Epidemiology and Public Health, School of MedicineUniversity of NottinghamNottinghamUK
  4. 4.Astrid Lindgren Children’s HospitalKarolinska University HospitalStockholmSweden
  5. 5.Clinical Epidemiology Unit, Department of Medicine SolnaKarolinska InstitutetStockholmSweden
  6. 6.Unit of Epidemiology, Institute of Environmental MedicineKarolinska InstitutetStockholmSweden
  7. 7.Department of Surgical SciencesUppsala UniversityUppsalaSweden
  8. 8.Department of Women’s and Children’s HealthKarolinska Institutet and HospitalStockholmSweden

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