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Measuring the Quality of Palliative Care for Patients with End-Stage Liver Disease

Abstract

Background/Aims

We examined the quality of palliative care received by patients with decompensated cirrhosis using an explicit set of palliative care quality indicators (QIs) for patients with end-stage liver disease (PC-ESLD).

Methods

We identified patients newly diagnosed with decompensated cirrhosis at a single veterans health center and followed up them for 2 years or until death. We piloted measurement of PC-ESLD QIs in all patients confirmed to have ESLD using a chart abstraction tool.

Results

Out of 167 patients identified using at least one sampling strategy, 62 were confirmed to meet ESLD criteria with chart abstraction. Ninety-eight percent of veterans in the cohort were male, mean age at diagnosis was 61 years, and 74% were White. The overall QI pass rate was 68% (64% for information care planning QIs and 76% for supportive care QIs). Patients receiving specialty palliative care consultation were more likely to receive information care planning QIs (67% vs. 37%, p = 0.02). The best performing sampling strategy had a sensitivity of 62% and specificity of 60%.

Conclusion

Measuring the quality of palliative care for patients with ESLD is feasible in the veteran population. Our single-center data suggest that the quality of palliative care is inadequate in the veteran population with ESLD, though patients offered specialty palliative care consultation and those affected by homelessness, drug, and alcohol abuse may receive better care. Our combination of ICD-9 codes can be used to identify a cohort of patients with ESLD, though better sensitivity and specificity may be needed.

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Fig. 1

Abbreviations

ICD-9 CM:

International Classification of Diseases, 9th Revision, Clinical Management

CDW:

Corporate data warehouse

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Author information

FK, SA, KL, and AW were involved in study concept and design; all authors were involved in data acquisition, analysis, and interpretation; AP, AA, and AW were involved in drafting of manuscript; all authors were involved in critical revision of manuscript; FK, SA, KL, and AW were involved in study supervision ; AW was involved in administrative, technical, or material support; and AA, ML, and AW were involved in statistical analysis. All authors approved the final submitted manuscript.

Correspondence to Arpan Patel.

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Patel, A., Asch, S., Antonio, A.L. et al. Measuring the Quality of Palliative Care for Patients with End-Stage Liver Disease. Dig Dis Sci (2020) doi:10.1007/s10620-019-05983-y

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Keywords

  • Palliative care
  • Cirrhosis
  • Healthcare quality
  • Veterans
  • End of life