Computer Supported Cooperative Work (CSCW)

, Volume 28, Issue 6, pp 1001–1009 | Cite as

Personal Health Records and Patient-Oriented Infrastructures: Building Technology, Shaping (New) Patients, and Healthcare Practitioners

  • Enrico Maria PirasEmail author
  • Federico Cabitza
  • Myriam Lewkowicz
  • Liam Bannon

The Personal Health Record (PHR) is an umbrella label that refers to a family of digital Information and Communication Technologies under direct patient control which has gained momentum in the last decade. The “Personally Controlled Health Record”, a phrasing used in the early days and now almost abandoned, could be considered a more accurate label as it points to the revolutionary feature of such technologies. ‘Revolutionary’ is here used in its etymological sense, in that providing patient access and control over their clinical data was a part of a more general movement of transforming a provider-centred care into a patient-centric one.

The success of the label is due to the fact that PHR has been considered a response to long-awaited solutions both in the scientific community and in the policymaking debate, especially in the USA. Policymakers have regarded PHRs as a way to create connections among the dispersed actors of a distributed, or better yet fragmented, healthcare system....


Personal health records Healthcare Infrastructure Patient-centered care 



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Copyright information

© Springer Nature B.V. 2019

Authors and Affiliations

  • Enrico Maria Piras
    • 1
    Email author
  • Federico Cabitza
    • 2
    • 3
  • Myriam Lewkowicz
    • 4
  • Liam Bannon
    • 5
    • 6
  1. 1.Fondazione Bruno KesslerTrentoItaly
  2. 2.University of Milano-BicoccaMilanItaly
  3. 3.IRCCS Istituto Ortopedico GaleazziMilanoItaly
  4. 4.Troyes University of TechnologyTroyes CedexFrance
  5. 5.University of LimerickLimerickIreland
  6. 6.Aarhus UniversityAarhusDenmark

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