Abstract
Interest in navigation services in the mental health and/or addiction (MHA) sphere has grown over the past decade. However, little is known about the value of caregiver peer support in enhancing the navigation process. The Parent Advocate with Lived experience (PAL) service at the Family Navigation Project (FNP) provides peer support to caregivers supporting youth with MHA concerns. Caregivers (n = 26) were asked to rate their perceptions of their caregiver experience retrospectively and then 7 weeks following contact with FNP. A repeated-measures MANOVA comparing participants who had and had not accessed PAL services demonstrated a significant main effect of time, (F(15, 8) = 5.82, p = .008, \(\eta_{{\text{p}}}^{2}\) = .916), and a significant time-by-group interaction, (F(15, 8) = 3.69, p = .034, \(\eta_{{\text{p}}}^{2}\) = .874), signifying participants who accessed PAL services had more positive perceptions about their caregiving experience compared to participants who had not accessed PAL service. These findings support the future development of caregiver peer support roles within MHA services.
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Chinman, M., George, P., Dougherty, R. H., Daniels, A. S., Ghose, S. S., Swift, A., & Delphin-Rittmon, M. E. (2014). Peer support services for individuals with serious mental illnesses: Assessing the evidence. Psychiatric Services, 65(4), 429–441.
Chinman, M., Weingarten, R., Stayner, D., & Davidson, L. (2001). Chronicity reconsidered: Improving person-environment fit through a consumer-run service. Community Mental Health Journal, 37(3), 215–219.
Coatsworth-Puspoky, R., Forchuk, C., & Ward-Griffin, C. (2006). Peer support relationships: An unexplored interpersonal process in mental health. Journal of Psychiatric and Mental Health Nursing, 13(5), 490–497. https://doi.org/10.1111/j.1365-2850.2006.00970.x
Corrigan, P. W. (2006). Impact of consumer-operated services on empowerment and recovery of people with psychiatric disabilities. Psychiatric Services, 57(10), 1493–1496. https://doi.org/10.1176/ps.2006.57.10.1493
Cyr, C., McKee, H., O’Hagan, M., & Priest, R. (2016). Making the case for peer support: Report to the Peer Support Project Committee of the Mental Health Commission of Canada. Ottawa. Retrieved from http://www.mentalhealthcommission.ca
Dixon, L., Lucksted, A., Medoff, D., Burland, J., Stewart, B., Lehman, A., Fang, L. J., et al. (2011). Outcomes of a randomized study of a peer-taught family-to-family education program for mental illness. Psychiatric Services, 62(6), 591. https://doi.org/10.1176/appi.ps.62.6.591
Dumont, J. M., & Jones, K. (2002). Findings from a consumer/survivor defined alternative to psychiatric hospitalization. Outlook, Spring. The Evaluation Center @ HSRI and National Association of State Mental Health Program Directors Research Institute, Inc.
Fischer, S. M., Sauaia, A., & Kutner, J. S. (2007). Patient navigation: A culturally competent strategy to address disparities in palliative care. Journal of Palliative Medicine, 10(5), 1023–1028. https://doi.org/10.1089/jpm.2007.0070
Forchuk, C., Martin, M.-L., Chan, Y. L., & Jensen, E. (2005). Therapeutic relationships: From psychiatric hospital to community. Journal of Psychiatric and Mental Health Nursing, 12(5), 556–564. https://doi.org/10.1111/j.1365-2850.2005.00873.x
Freeman, H. P. (2006). Patient navigation: A community based strategy to reduce cancer disparities. Journal of Urban Health, 83(2), 139–141. https://doi.org/10.1007/s11524-006-9030-0
Hope + Me - Mood Disorders Association of Ontario. (2017). Peer support training at MDAO. Retrieved from https://mooddisorders.ca/node/1236
Markoulakis, R., Turner, M., Wicik, K., Weingust, S., Dobbin, K., & Levitt, A. (2018). Exploring peer support needs of caregivers for youth with mental illness or addictions concerns in family navigation services. Community Mental Health Journal, 54(5), 555–561. https://doi.org/10.1007/s10597-017-0191-y
Markoulakis, R., Weingust, S., Foot, J., & Levitt, A. (2016). The Family Navigation Project: An innovation in working with families to match mental health services with their youth’s needs. Canadian Journal of Community Mental Health, 35(1), 63–66. https://doi.org/10.7870/cjcmh-2016-026
Mead, S., Hilton, D., & Curtis, L. (2001). Peer support: A theoretical perspective. Psychiatric Rehabilitation Journal, 25(2), 134–141. https://doi.org/10.1037/h0095032
Mead, S., & MacNeil, C. (2006). Peer support: What makes it unique? International Journal of Psychosocial Rehabilitation, 10(2), 29–37.
Myers, N. A. L., Alolayan, Y., Smith, K., Pope, S. A., Broussard, B., Haynes, N., & Compton, M. T. (2015). A potential role for family members in mental health care delivery: The family community navigation specialist. Psychiatric Services, 66(6), 653–655. https://doi.org/10.1176/appi.ps.201300569
Ochocka, J., Nelson, G., Janzen, R., & Trainor, J. (2006). A longitudinal study of mental health consumer/survivor initiatives: Part 3—A qualitative study of impacts of participation on new members. Journal of Community Psychology, 34(3), 273–283. https://doi.org/10.1002/jcop.20099
Ontario Peer Development Initiative. (2021). OPDI training. Retrieved from https://www.opdi.org/training/opdi-training
Radigan, M., Wang, R., Chen, Y., & Xiang, J. (2014). Youth and caregiver access to peer advocates and satisfaction with mental health services. Community Mental Health Journal, 50(8), 915–921. https://doi.org/10.1007/s10597-014-9709-8
Reid, A., Doucet, S., & Luke, A. (2020). Exploring the role of lay and professional patient navigators in Canada. Journal of Health Services Research & Policy, 25(4), 229–237. https://doi.org/10.1177/1355819620911679
Reif, S., Braude, L., Lyman, D. R., Dougherty, R. H., Daniels, A. S., Ghose, S. S., Salim, O., et al. (2014). Peer recovery support for individuals with substance use disorders: Assessing the evidence. Psychiatric Services, 65(7), 853–861.
Repper, J., & Carter, T. (2011). A review of the literature on peer support in mental health services. Journal of Mental Health, 20(4), 392–411. https://doi.org/10.3109/09638237.2011.583947
Resnick, S. G., & Rosenheck, R. A. (2008). Integrating peer-provided services: A quasi-experimental study of recovery orientation, confidence, and empowerment. Psychiatric Services, 59(11), 1307–1314. https://doi.org/10.1176/ps.2008.59.11.1307
Schiffman, J., Reeves, G. M., Kline, E., Medoff, D. R., Lucksted, A., Hoagwood, K., Fang, L. J., et al. (2015). Outcomes of a family peer education program for families of youth and adults with mental illness. International Journal of Mental Health, 44(4), 303–315. https://doi.org/10.1080/00207411.2015.1076293
Sibthorp, J., Paisley, K., Gookin, J., & Ward, P. (2007). Addressing response-shift bias: Retrospective pretests in recreation research and evaluation. Journal of Leisure Research, 39(2), 295–315.
Solomon, P. (2004). Peer support/peer provided services underlying processes, benefits, and critical ingredients. Psychiatric Rehabilitation Journal, 27(4), 392–401. https://doi.org/10.2975/27.2004.392.401
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Partial financial support for this study was received through the Hurvitz Brain Sciences Summer Studentship at Sunnybrook Health Sciences Centre (KB).
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RM, SW, KD, and AL contributed to the study conception and design. Material preparation was conducted by RM, SC, SW, KD, and AL. Data collection and analysis were performed by KB, SC, RM, and AL. The first draft of the manuscript was written by KB and RM. All authors commented on previous versions of the manuscript. All authors read and approved the final manuscript.
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Markoulakis, R., Bowles, K., Chan, S. et al. Changes in Perception of Caregiving Experience Following Caregiver Peer Support Within a Mental Health and Addictions Navigation Service. Community Ment Health J 58, 740–748 (2022). https://doi.org/10.1007/s10597-021-00879-6
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DOI: https://doi.org/10.1007/s10597-021-00879-6