Cell and Tissue Banking

, Volume 12, Issue 3, pp 233–240 | Cite as

Safeguarding donors’ personal rights and biobank autonomy in biobank networks: the CRIP privacy regime

  • Christina Schröder
  • Karsten R. Heidtke
  • Nikolaus Zacherl
  • Kurt Zatloukal
  • Jochen Taupitz
Original Paper


Governance, underlying general ICT (Information and Communication Technology) architecture, and workflow of the Central Research Infrastructure for molecular Pathology (CRIP) are discussed as a model enabling biobank networks to form operational “meta biobanks” whilst respecting the donors’ privacy, biobank autonomy and confidentiality, and the researchers’ needs for appropriate biospecimens and information, as well as confidentiality. Tailored to these needs, CRIP efficiently accelerates and facilitates research with human biospecimens and data.


Biobanks Governance Infrastructure Networks Privacy 



We thank Dr. Peter Hecht for stimulating discussions and critical revision of the manuscript. Work described here was supported by grants 01GR0601 and 01GR0701 of the German Ministry for Education and Research (Bundesministerium für Bildung und Forschung, BMBF).


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Copyright information

© Springer Science+Business Media B.V. 2010

Authors and Affiliations

  • Christina Schröder
    • 1
  • Karsten R. Heidtke
    • 1
  • Nikolaus Zacherl
    • 2
  • Kurt Zatloukal
    • 3
  • Jochen Taupitz
    • 4
  1. 1.Fraunhofer Institut für Biomedizinische Technik (IBMT)Potsdam-GolmGermany
  2. 2.IMG Institut für medizinische Genomforschung Planungsgesellschaft mbHViennaAustria
  3. 3.Institut für PathologieMedizinische Universität GrazGrazAustria
  4. 4.Institut für MedizinrechtUniversität Mannheim, SchlossMannheimGermany

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