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Journal of Inherited Metabolic Disease

, Volume 40, Issue 2, pp 169–170 | Cite as

The galactosemia network (GalNet)

  • M. E. Rubio-GozalboEmail author
  • A. M. Bosch
  • A. Burlina
  • G. T. Berry
  • E. P. Treacy
  • Steering Committee on behalf of all Galactosemia Network representatives
Letter to the Editors

Keywords

Rare Disease Collaborative Research Patient Registry International Network Galactosemia 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

Acknowledgments

Financially supported by the European Galactosemia Society and Dutch Galactosemia Societies (patient organizations); University Medical Center Maastricht Foundation; Netherlands Organization for Scientific Research (NWO); The Irish Health Research Board (HRB-HRA) grant and a MRCG/HRB grant.

Compliance with ethical standards

Conflict of interest

None.

Supplementary material

10545_2016_9989_MOESM1_ESM.doc (29 kb)
ESM 1 (DOC 29 kb)

Copyright information

© SSIEM 2016

Authors and Affiliations

  1. 1.Department of Pediatrics and Laboratory Genetic Metabolic DiseasesMaastricht University Medical CenterMaastrichtThe Netherlands
  2. 2.Department of Pediatrics, Academic Medical CenterUniversity of AmsterdamMaastrichtThe Netherlands
  3. 3.Department of PediatricsUniversity of PadovaPadovaItaly
  4. 4.Division of Genetics and Genomics, The Manton Center for Orphan Disease Research, Boston Children’s HospitalHarvard Medical SchoolBostonUSA
  5. 5.National Centre for Inherited Metabolic Disorders, Temple St Childrens University Hospital and Mater Misericordiae University HospitalDublinIreland
  6. 6.University College DublinDublinIreland

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