AIDS and Behavior

, Volume 21, Supplement 1, pp 44–50 | Cite as

The Role of Civil Society Organizations in Monitoring the Global AIDS Response

  • Julia SmithEmail author
  • Christoforos Mallouris
  • Kelley Lee
  • Tobias Alfvén
Original Paper


Civil society organizations (CSOs) are recognized as playing an exceptional role in the global AIDS response. However, there is little detailed research to date on how they contribute to specific governance functions. This article uses Haas’ framework on global governance functions to map CSO’s participation in the monitoring of global commitments to the AIDS response by institutions and states. Drawing on key informant interviews and primary documents, it focuses specifically on CSO participation in Global AIDS Response Progress Reporting and in Global Fund to Fight AIDS, Tuberculosis and Malaria processes. It argues that the AIDS response is unique within global health governance, in that CSOs fulfill both formal and informal monitoring functions, and considers the strengths and weaknesses of these contributions. It concludes that future global health governance arrangements should include provisions and resources for monitoring by CSOs because their participation creates more inclusive global health governance and contributes to strengthening commitments to human rights.


HIV AIDS Monitoring Civil society organizations UNAIDS Global Fund to Fight AIDS Tuberculosis Malaria 


El rol de las organizaciones de la sociedad civil en el monitoreo de la respuesta mundial al sida Las organizaciones de la sociedad civil (OSC) son reconocidas por jugar un rol excepcional en la respuesta mundial al SIDA. Sin embargo, hasta la fecha, la investigación detallada sobre cómo éstas contribuyen a funciones específicas de gobernanza, es limitada. Este artículo utiliza el marco de funciones de gobernanza global propuesto por Haas para mapear la participación las OSC en el monitoreo de los compromisos globales de instituciones y Estados frente a la respuesta al SIDA. Basándose en entrevistas con informantes clave y documentos primarios, se enfoca específicamente en la participación de las OSC en el Informe mundial de avances en la lucha contra el SIDA y en los procesos del Fondo Mundial de lucha contra el SIDA, la tuberculosis y la malaria. Se argumenta que, debido a que las OSC cumplen funciones de monitoreo tanto formales como informales, la respuesta al SIDA es única dentro de la gobernanza de la salud mundial, y se consideran las fortalezas y debilidades de estas contribuciones. Se concluye que futuros acuerdos en gobernanza de la salud mundial deberían incluir provisiones y recursos para el monitoreo por la parte de las OSC, ya que su participación genera una gobernanza de la salud mundial más inclusiva y contribuye a fortalecer los compromisos con la defensa de los derechos humanos.



This study was partly funded by National Cancer Institute, US National Institutes of Health, Grant R01-CA091021. The contents of this paper are solely the responsibility of the authors and do not necessarily represent the official views of the funders.

Compliance with Ethical Standards

Conflict of Interest

The authors declare no conflicts of interest.

Ethical approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed consent

Informed consent was obtained from all individual participants included in the study.


  1. 1.
    Buse K, Blackshaw R, Ndayisaba M. Zeroing in on AIDS and global health post-2015. Glob Health. 2012;8(1):42.CrossRefGoogle Scholar
  2. 2.
    Doyle C, Patel P. Civil society organisations and global health initiatives: problems of legitimacy. Soc Sci Med. 2008;66(9):1928–38.CrossRefPubMedGoogle Scholar
  3. 3.
    Haas P. Is there a global governance deficit and what should be done about it?. Geneva: Ecologic; 2003.Google Scholar
  4. 4.
    Lee K. Civil society organizations and the functions of global health governance: what role within intergovernmental organizations? Glob Health Gov. 2010;3(2):1–20.Google Scholar
  5. 5.
    United Nations. Declaration of Commitment on HIV/AIDS. United Nations General Assembly Special Session on HIV/AIDS 25–27 June 2001. United Nations. New York.Google Scholar
  6. 6.
    UNAIDS representative 1. Interviewed by Smith J. 2013.Google Scholar
  7. 7.
    CSO representative 4. Interviewed by Smith J. 2013.Google Scholar
  8. 8.
    UNAIDS. United Nations General Assembly Special Session on HIV/AIDS: monitoring the Declaration of Commitment on HIV/AIDS. Guidelines on construction of core indicators. UNAIDS: Geneva; 2013.Google Scholar
  9. 9.
    NCPI country reports submitted to UNAIDS 2012.Google Scholar
  10. 10.
    NCPI country reports submitted to UNAIDS 2014.Google Scholar
  11. 11.
    UNAIDS representative 2. Interviewed by Mallouris C. 2015.Google Scholar
  12. 12.
    CSO representative 1. Interviewed by Mallouris C. 2015.Google Scholar
  13. 13.
    CSO representative 2. Interviewed by Mallouris C. 2015.Google Scholar
  14. 14.
    CSO representative 3. Interviewed by Mallouris C. 2015.Google Scholar
  15. 15.
    UNAIDS. Global aids response progress reporting 2015, construction of core indicators for monitoring the 2011 United Nations Political Declaration on HIV and AIDS. Geneva: UNAIDS; 2014.Google Scholar
  16. 16.
    ITPC. Missing the target reports. 2012. Accessed 15 May 2015.
  17. 17.
    GNP+, Global criminalisation scan. 2015. Accessed 15 May 2015.
  18. 18.
    ICASO, AIDS advocacy alert: reviewing National AIDS responses—how to get involved. 2007. Accessed 15 May 2016.
  19. 19.
    UNAIDS. Shadow reports received. Geneva: UNAIDS; 2012.Google Scholar
  20. 20.
    UNAIDS. Shadow reports received. Geneve:UNAIDS; 2014.Google Scholar
  21. 21.
    GFATM, Partnership forum. 2015. Accessed 30 April 2015.
  22. 22.
    Center Fremont. Global fund partnership forum 2011: an independent evaluation. New York: Fremont Center; 2011.Google Scholar
  23. 23.
    GFATM. A strategy framework for the global fund 2012–2016: draft revisions 1.1 and 1.2. Geneva; 2011. (emphasis added).Google Scholar
  24. 24.
    GFATM representative 1. Interviewed by Smith J. 2013.Google Scholar
  25. 25.
    MACRO. The five-year evaluation of the global fund to fight AIDS, tuberculosis, and malaria synthesis of study areas 1, 2 and 3. Geneva: GFATM; 2009.Google Scholar
  26. 26.
    GFATM representative 2. Interviewed by Smith J. 2013.Google Scholar
  27. 27.
    Global ICW. Governance manual. Buenos Aires: International Community of Women Living With HIV/AIDS; 2012.Google Scholar
  28. 28.
    CSO representative 5. Interviewed by Smith J. 2013.Google Scholar
  29. 29.
    Taylor A, Alfven T, Hougendobler D, Tanaka S, Buse K. Leveraging nonbinding instruments for global health governance: reflections from the global AIDS reporting mechanism for WHO reform. Public Health. 2014;128(2):151–60.CrossRefPubMedGoogle Scholar

Copyright information

© Springer Science+Business Media New York 2016

Authors and Affiliations

  • Julia Smith
    • 1
    Email author
  • Christoforos Mallouris
    • 2
  • Kelley Lee
    • 1
  • Tobias Alfvén
    • 2
    • 3
  1. 1.Faculty of Health SciencesSimon Fraser UniversityBurnabyCanada
  2. 2.UNAIDSGenevaSwitzerland
  3. 3.Global Health - Health Systems and Policy, Department of Public Health SciencesKarolinska InstitutetSolnaSweden

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