Technology Use and Reasons to Participate in Social Networking Health Websites among People Living with HIV in the US
- 676 Downloads
Online social media and mobile technologies hold potential to enhance adherence to antiretroviral therapy (ART), although little is known about the current use of these technologies among people living with HIV (PLWH). To address this gap in understanding, 312 PLWH (84% male, 69% White) US adults completed an online survey in 2009, from which 22 persons accepted an invitation to participate in one of two online focus groups. Results showed that 76% of participants with lower ART adherence used social networking websites/features at least once a week. Their ideal online social networking health websites included one that facilitated socializing with others (45% of participants) and ones with relevant HIV informational content (22%), although privacy was a barrier to use (26%). Texting (81%), and to a lesser extent mobile web-access (51%), was widely used among participants. Results support the potential reach of online social networking and text messaging intervention approaches.
KeywordsOnline social network Mobile phone Online survey Online focus group People living with HIV
This study was funded by the National Institute of Mental Health (5R34MH083549). We wish to thank the participants of this study for their time and effort.
- 5.Ammassari A, Trotta MP, Mussini C, Sora FD, Bellagamba R, Bonora S, et al. The use of a mobile phone intervention based on short message system (SMS) for assisting HIV-infected non-adherent patients to comply with antiretroviral therapy. In: 5th international conference on HIV treatment adherence, Miami; 2010.Google Scholar
- 7.Simoni JM, Huh D, Frick PA, Pearson CR, Andrasik MP, Dunbar PJ, Hooton T. Peer support and pager messaging to promote antiretroviral modifying therapy in Seattle: a randomized controlled trial. J Acquir Immune Defic Syndr. 2009;52(4):465–73. doi: 10.1097/QAI.0b013e3181b9300c. PMCID: PMC2795576.PubMedCrossRefGoogle Scholar
- 12.Fox S. Peer-to-peer healthcare: Many people-especially those living with chronic or rare diseases-use online connections to supplement professional medical advice. Washington, D.C.: Pew Research Center’s Internet & American Life Project; 2011 February 28, 2011.Google Scholar
- 14.Fox S. The social life of health information, 2011: Pew Internet and American Life Project: http://pewinternet.org/Reports/2011/Social-Life-of-Health-Info.aspx; 2011.
- 21.Smith A. 35% of American adults own a smartphone: http://pewinternet.org/~/media//Files/Reports/2011/PIP_Smartphones.pdf. Washington, D.C.: Pew Research Center; 2011.
- 24.Madden M, Zickuhr K. 65% of online adults use social networking sites: http://pewinternet.org/Reports/2011/Social-Networking-Sites.aspx. Washington, D.C.: Pew Research Center; 2011.