Neurological Sciences

, Volume 36, Issue 5, pp 751–757 | Cite as

Italian Frontotemporal Dementia Network (FTD Group-SINDEM): sharing clinical and diagnostic procedures in Frontotemporal Dementia in Italy

  • B. Borroni
  • R. Turrone
  • D. Galimberti
  • B. Nacmias
  • A. Alberici
  • A. Benussi
  • P. Caffarra
  • C. Caltagirone
  • S. F. Cappa
  • G. B. Frisoni
  • R. Ghidoni
  • C. Marra
  • A. Padovani
  • I. Rainero
  • E. Scarpini
  • V. Silani
  • S. Sorbi
  • F. Tagliavini
  • L. Tremolizzo
  • A. C. Bruni
  • The FTD Group-SINDEM
Original Article

Abstract

In the prospect of improved disease management and future clinical trials in Frontotemporal Dementia, it is desirable to share common diagnostic procedures. To this aim, the Italian FTD Network, under the aegis of the Italian Neurological Society for Dementia, has been established. Currently, 85 Italian Centers involved in dementia care are part of the network. Each Center completed a questionnaire on the local clinical procedures, focused on (1) clinical assessment, (2) use of neuroimaging and genetics; (3) support for patients and caregivers; (4) an opinion about the prevalence of FTD. The analyses of the results documented a comprehensive clinical and instrumental approach to FTD patients and their caregivers in Italy, with about 1,000 newly diagnosed cases per year and 2,500 patients currently followed by the participating Centers. In analogy to other European FTD consortia, future aims will be devoted to collect data on epidemiology of FTD and its subtypes and to provide harmonization of procedures among Centers.

Keywords

Frontotemporal dementia Frontotemporal lobar degeneration Network Survey Genetics Counseling 

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Copyright information

© Springer-Verlag Italia 2014

Authors and Affiliations

  • B. Borroni
    • 1
  • R. Turrone
    • 1
  • D. Galimberti
    • 2
  • B. Nacmias
    • 3
  • A. Alberici
    • 1
  • A. Benussi
    • 1
  • P. Caffarra
    • 4
  • C. Caltagirone
    • 5
  • S. F. Cappa
    • 6
  • G. B. Frisoni
    • 7
  • R. Ghidoni
    • 7
  • C. Marra
    • 8
  • A. Padovani
    • 1
  • I. Rainero
    • 9
  • E. Scarpini
    • 2
  • V. Silani
    • 10
  • S. Sorbi
    • 3
  • F. Tagliavini
    • 11
  • L. Tremolizzo
    • 12
  • A. C. Bruni
    • 13
  • The FTD Group-SINDEM
  1. 1.Center of Neurodegenerative Disorders, Neurology UnitUniversity of BresciaBresciaItaly
  2. 2.Department of Pathophysiology and Transplantation, “Dino Ferrari” CenterUniversity of MilanMilanItaly
  3. 3.Department of Neuroscience, Psychology, Drug Research and Child HealthUniversity of FlorenceFlorenceItaly
  4. 4.Department of NeuroscienceUniversity of Parma and Center for Cognitive DisordersParmaItaly
  5. 5.Department of Clinical Behavioural Neurology, IRCSS Santa Lucia Foundation RomeItaly Department of Neuroscience, University of Rome “Tor Vergata”RomeItaly
  6. 6.IUSS Pavia and San Raffaele Scientific InstituteMilanItaly
  7. 7.IRCCS Centro San Giovanni di Dio-FatebenefratelliBresciaItaly
  8. 8.Research Center for NeuropsychologyCatholic UniversityRomeItaly
  9. 9.Neurology Unit, Department of NeuroscienceUniversity of TurinTurinItaly
  10. 10.Department of Neurology-Stroke Unit and Laboratory of Neuroscience, IRCCS Istituto Auxologico Italiano–“Dino Ferrari” Center, Department of Pathophysiology and TransplantationUniversità degli Studi di MilanoMilanItaly
  11. 11.Department of Diagnostics and Applied Technology, Division of Neurology 5 - NeuropathologyFondazione IRCCS Istituto Neurologico Carlo BestaMilanItaly
  12. 12.Neurology Section, DCMTUniversity of Milano Bicocca Monza and NeuroMi-Milan Center for NeuroscienceMilanItaly
  13. 13.Regional Neurogenetic CenterASPCZLamezia TermeItaly

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