Psychosocial acceptance of cleft patients: has something changed?
- 288 Downloads
The main purpose of this study was to analyse the reactions of a panel (non-cleft adults) when observing cleft lip morphology. Although rehabilitation of cleft lip and palate is improving, there are still indications of social rejection of cleft patients by the people around them. Polarity profiles have been used since 1973 to measure social distance with regard to cleft patients. Because rehabilitation results and education of the society have improved in recent decades, we investigated whether social distance has been affected.
The setting of this study is the Department of Oral, Craniomaxillofacial, and Facial Plastic Surgery, University Hospital of Leipzig, Germany
Patients and participants
Using a cross-sectional study design, we enrolled a sample of adult laypersons (n = 273). For the survey, we followed the concept of photograph presentation and questionnaire investigation reported by Sergl and Schmid (1973). We presented anonymised frontal and profile pictures of the faces of 50 cleft patients and asked the laypersons to specify social distance. Three predictor variables (layperson gender, profession and year of evaluation) were grouped.
Although social distance has reduced during the last 40 years, life situations which require emotional proximity still cause some concern. Professional background and gender affect laypersons’ attitudes.
Although rehabilitation of cleft lip and palate is much better than 40 years ago, social distance remains a problem in society. It is necessary to improve both results of rehabilitation of cleft patients and social acceptance by the people around them.
KeywordsCleft lip patients Social distance Laypersons
The authors would like to thank Professional School Schkeuditz, Bernd-Blindow-School Leipzig and Faculty of Dental Medicine, University of Leipzig, for their support of the project.
- 12.Stock NM, Feragen KB, Rumsey N (2015) Adults’ narratives of growing up with a cleft lip and/or palate: factors associated with psychological adjustment. Cleft Palate Craniofac J. doi: 10.1597/14-269
- 13.Stock NM, Feragen KB, Rumsey N (2014) “It doesn’t all just stop at 18”: psychological adjustment and support needs of adults born with cleft lip and/or palate. Cleft Palate Craniofac J. doi: 10.1597/14-178
- 14.Bogardus ES (1925) Measuring of social distance. J Appl Sociol 9:216–226Google Scholar
- 15.Sergl HG, Schmid F (1973) Der Spaltpatient und seine Umwelt. Fortschr Kiefer Gesichtschir XVI:200–204Google Scholar