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European Child & Adolescent Psychiatry

, Volume 15, Supplement 1, pp i63–i71 | Cite as

Validity of the health-related quality of life assessment in the ADORE study: Parent Report Form of the CHIP-Child Edition

  • Anne W. Riley
  • David Coghill
  • Christopher B. Forrest
  • Maria J. Lorenzo
  • Stephen J. Ralston**
  • Georg Spiel
  • ADORE Study Group*
Article

Abstract

Objectives

To examine the cross-sectional reliability and validity of the Parent Report Form of the Child Health and Illness Profile-Child Edition (CHIP-CE), a generic measure of health-related quality of life (HRQoL), in children with ADHD in the pan-European ADHD Observational Research in Europe (ADORE) study.

Methods

Parents of children with ADHD (aged 6–18 years) in 10 European countries completed the CHIP-CE at the baseline visit (n=1,477; data missing for one patient). Analyses included determination of internal consistency reliability, ceiling and floor effects, factor analysis, and Pearson's correlations between CHIP-CE and other scales used to measure ADHD severity, problems and family strain.

Results

Internal consistency reliability was good-to-excellent (Chronbach's α>0.70) for all CHIP-CE domains and subdomains, and almost no ceiling and floor effects were observed. Factor analysis of the subdomains yielded a 12-factor solution. The domainlevel factor analysis identified six factors, the four domains of Satisfaction, Comfort, Resilience and Risk Avoidance. The two subdomains of Achievement domain, Peer Relations and Academic Performance, were separate factors in this sample. There were moderate-to-high correlations between the CHIP-CE scales and measures of ADHD and family factors. The HRQoL of children in ADORE was dramatically lower than that of community youth,with mean CHIP-CE scores almost 2 standard deviations below community norms.

Conclusions

The validity and reliability of CHIP-CE to measure HRQoL in children with ADHD across Europe was confirmed.

Key words

ADHD children Europe factor structure health-related quality of life 

Abbreviations

ADHD

Attention-Deficit/Hyperactivity Disorder

ADHD-RS-IV

ADHD Rating Scale-IV

ADORE

Attention-Deficit/Hyperactivity Disorder Observational Research in Europe

CGI-S

Clinical Global Impression-Severity

CHIP-CE

Child Health and Illness Profile – Child Edition

PRF

Parent Report Form

FSI

Family Strain Index

HRQoL

Health-Related Quality of Life

SDQ

Strengths and Difficulties Questionnaire

References

  1. 1.
    Barkley RA (2002) International consensus statement on ADHD. January 2002. Clin Child Fam Psychol Rev 5:89–111PubMedCrossRefGoogle Scholar
  2. 2.
    Becker A, Steinhausen H-C, Baldursson G, Dalsgaard S, Lorenzo MJ, Ralston SJ, Döpfner M, Rothenberger A and the ADORE study group (2006) Psychopathological screening of children with ADHD: Strengths and Difficulties Questionnaire in a pan-European study. Eur Child Adolesc Psychiatry 15(Suppl 1):56–62Google Scholar
  3. 3.
    Boyle MH, Offord DR, Hoffman HG, Catlin GP, Byles JA, Cadman DT, Crawford JW, Links PS, Rae-Grant NI, Szatmari P (1987) Ontario Child Health Study. I Methodology. Arch Gen Psychiatry 44:826–831PubMedGoogle Scholar
  4. 4.
    Browne MW (1972) Oblique rotation to a partially specified target. Br J Math Stat Psychol 25:207–212Google Scholar
  5. 5.
    DuPaul GJ, Power TJ,Anastopoulos AD, Reid R (1998) ADHD Rating Scale-IV: Checklists, Norms, and Clinical Interpretation. Guilford Press, New YorkGoogle Scholar
  6. 6.
    Green BF (2001) Using Procrustes factor analysis to verify the structure of a multiattribute health status measure. Paper presented at the Annual Meeting of the Psychometric Society, June 21–24:2001, King of Prussia, PAGoogle Scholar
  7. 7.
    Guy W (1976) Subject's Treatment Emergent Symptom Scale. In: Guy W (ed) Assessment Manual for Psychopharmacology. Washington, US Government Printing Office, pp 347–350Google Scholar
  8. 8.
    Harpin VA (2005) The effect of ADHD on the life of an individual, their family, and community from preschool to adult life. Arch Dis Child 90(Suppl 1):2–7CrossRefGoogle Scholar
  9. 9.
    Johnston C, Mash EJ (2001) Families of children with attention-deficit/hyperactivity disorder: review and recommendations for future research. Clin Child Fam Psychol Rev 4:183–207PubMedCrossRefGoogle Scholar
  10. 10.
    Landgraf JM, Rich M, Rappaport L (2002) Measuring quality of life in children with attention-deficit/hyperactivity disorder and their families: development and evaluation of a new tool. Arch Pediatr Adolesc Med 156:384–391PubMedGoogle Scholar
  11. 11.
    Matza LS, Rentz AM, Secnik K, Swensen AR, Revicki DA, Michelson D, Spencer T, Newcorn JH, Kratochvil CJ (2004) The link between health-related quality of life and clinical symptoms among children with attention-deficit hyperactivity disorder. J Devel Behav Pediatr 25:166–174CrossRefGoogle Scholar
  12. 12.
    Matza LS, Secnik K, Mannix S, Sallee FR (2005) Parent-proxy EQ-5D ratings of children with attention-deficit hyperactivity disorder in the US and the UK. Pharmacoeconomics 23:777–790PubMedCrossRefGoogle Scholar
  13. 13.
    McDowell I, Newell C (1996) Measuring health: A guide to rating scales and questionnaires. 2nd ed. Oxford University Press, New YorkGoogle Scholar
  14. 14.
    Preuss U, Ralston SJ, Baldursson G, Falissard B, Lorenzo MJ, Pereira R, Valsveld L, Coghill D and the ADORE study group (2006) Study design, baseline characteristics and interventions in a cross-cultural framework: results from the ADORE study. Eur Child Adolesc Psychiatry 15(Suppl 1):4–14Google Scholar
  15. 15.
    Rajmil L, Serra-Sutton V, Estrada MD, Fernandez de Sanmamed, MJ, Guillamon I, Riley AW, Alonso J (2004) Crosscultural adaptation of the Spanish versionof the Child Health and Illness Profile, Child Edition (CHIP-CE). An Pediatr 60:522–529 [in Spanish]CrossRefGoogle Scholar
  16. 16.
    Ralston SJ, Lorenzo MJ (2004) ADORE – Attention-Deficit Hyperactivity Disorder Observational Research in Europe. European Child Adolesc Psychiatry 13(Suppl 1):36–42Google Scholar
  17. 17.
    Rentz AM, Matza LS, Secnik K, Swensen A, Revicki DA (2005) Psychometric validation of the child health questionnaire (CHQ) in a sample of children and adolescents with attention-deficit/hyperactivity disorder. Qual Life Res 14:719–734PubMedCrossRefGoogle Scholar
  18. 18.
    Riley AW, Forrest CB, Rebok G, Starfield B, Green BF, Robertson JA, Friello P (2004) The child report form of the CHIP-Child Edition: reliability and validity. Med Care 42:221–231PubMedCrossRefGoogle Scholar
  19. 19.
    Riley AW, Forrest CB, Starfield B, Rebok GW, Robertson JA, Green BF (2004) The parent report form of the CHIP-Child Edition: reliability and validity. Med Care 42:210–220PubMedCrossRefGoogle Scholar
  20. 20.
    Riley AW, Robertson JA, Forrest CB,Green BF, Rebok G, Starfield B (2001) Technical Manual for the Child Health and Illness Profile-Child Edition (CHIP-CE) Parent and Child Report Forms. 1.0 ed. Johns Hopkins University, Baltimore, MDGoogle Scholar
  21. 21.
    Riley AW, Lyman LM, Spiel G, Döpfner M, Lorenzo MJ, Ralston SJ and the ADORE study group (2006) The Family Strain Index. Reliability, validity and factor structure of a brief questionnaire for families of children with ADHD. Eur Child Adolesc Psychiatry 15(Suppl 1):72–78Google Scholar
  22. 22.
    Shaffer D, Gould MS, Brasic J, Ambrosini P, Fisher P, Bird H, Aluwahlia S (1983) A children's global assessment scale (CGAS). Arch Gen Psychiatry 40:1228–1231PubMedGoogle Scholar
  23. 23.
    Starfield B, Riley AW, Green BF, Ensminger ME, Ryan SA, Kelleher K, Kim-Harris S, Johnston D, Vogel K (1995) The adolescent child health and illness profile: A population-based measure of health. Med Care 33:553–566PubMedCrossRefGoogle Scholar
  24. 24.
    Swensen AR, Birnbaum HG, Secnick K, Marynchenko M, Greenberg P, Claxton A (2003) Attention-deficit/hyperactivity disorder: increased costs for patients and their families. J Am Acad Child Adolesc Psychiatry 42:1415–1423PubMedCrossRefGoogle Scholar
  25. 25.
    World Health Organization (1992) International Statistical Classification of Diseases and Related Health Problems. 10th Revision (ICD-10). World Health Organization, Geneva, SwitzerlandGoogle Scholar

Copyright information

© Steinkopff Verlag 2006

Authors and Affiliations

  • Anne W. Riley
    • 1
  • David Coghill
    • 2
  • Christopher B. Forrest
    • 1
  • Maria J. Lorenzo
    • 3
  • Stephen J. Ralston**
  • Georg Spiel
    • 4
  • ADORE Study Group*
  1. 1.Johns Hopkins Bloomberg School of Public Health, 692 Hampton HouseBaltimore, MD 21205USA
  2. 2.Section of Psychiatry Division of Pathology and NeuroscienceUniversity of DundeeDundeeScotland, UK
  3. 3.Eli Lilly and Company, Lilly Research CentreWindlesham, SurreyUK
  4. 4.Landeskrankenhaus Klagenfurt, Dept. of Child and Adolescent NeuropsychiatryKlagenfurtAustria

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