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Supportive Care in Cancer

, Volume 25, Issue 6, pp 1905–1914 | Cite as

Uptake and adherence to an online intervention for cancer-related distress: older age is not a barrier to adherence but may be a barrier to uptake

  • Lisa Beatty
  • Emma KempEmail author
  • Claire Binnion
  • Jane Turner
  • Donna Milne
  • Phyllis Butow
  • Sylvie Lambert
  • Patsy Yates
  • Desmond Yip
  • Bogda Koczwara
Original Article

Abstract

Purpose

While online interventions are increasingly explored as an alternative to therapist-based interventions for cancer-related distress, limitations to efficacy potentially include low uptake and adherence. Few predictors of uptake or adherence to online interventions have been consistently identified, particularly in individuals with cancer. This study examined rates and predictors of uptake and adherence to Finding My Way, a RCT of an online intervention versus an information-only online control for cancer-related distress.

Methods

Participants were adults with cancer treated with curative intent. Adherence was assessed by login frequency, duration and activity level; analyses examined demographic, medical and psychological predictors of uptake and adherence.

Results

The study enrolled 191 adults (aged 26–94 years) undergoing active treatment for cancer of any type. Uptake was highest for females and for individuals with ovarian (80%) and breast cancer (49.8%), and lowest for those with melanoma (26.5%). Adherence was predicted by older age and control-group allocation. Baseline distress levels did not predict adherence. High adherers to the full intervention had better emotion regulation and quality of life than low adherers.

Conclusions

Uptake of online intervention varies according to age, gender and cancer type. While uptake was higher amongst younger individuals, once enrolled, older individuals were more likely to adhere to online interventions for cancer-related distress.

Keywords

Online intervention Cancer Cognitive behavioural therapy Uptake Adherence 

Notes

Acknowledgements

The authors would like to thank the men and women who participated in this clinical trial, during a difficult stage of their lives.

The authors would like to acknowledge all Finding My Way Investigators and Recruiters for their assistance and support on this project.

This research was supported by a number of hospital sites and organisations. This includes recruitment support by Register4 through its members’ participation in research and/or provision of samples and information; and from Breast Cancer Network Australia’s (BCNA) Review & Survey Group, a national, online group of Australian women living with breast cancer who are interested in receiving invitations to participate in research.

Compliance with ethical standards

Conflict of interest

This study was conducted as part of a larger clinical trial, for which L.B. is the recipient of a grant funded by the National Health and Medical Research Council (grant number 1042942). All other authors declare no conflict of interest.

Ethical approval

All procedures in studies involving human participants were conducted in accordance with the ethical standards of the Southern Adelaide Clinical Human Research Ethics Committee, the Royal Brisbane and Women’s Hospital Human Research Ethics Committee, and the ACT Health Human Research Ethics Committee, and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed consent

Informed consent was obtained from all individual participants included in the study.

Funding

This work was conducted as part of a larger clinical trial, supported by the National Health and Medical Research Council (grant number 1042942).

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Copyright information

© Springer-Verlag Berlin Heidelberg 2017

Authors and Affiliations

  • Lisa Beatty
    • 1
  • Emma Kemp
    • 1
    Email author
  • Claire Binnion
    • 1
  • Jane Turner
    • 2
  • Donna Milne
    • 3
  • Phyllis Butow
    • 4
  • Sylvie Lambert
    • 5
  • Patsy Yates
    • 6
  • Desmond Yip
    • 7
  • Bogda Koczwara
    • 8
  1. 1.School of PsychologyFlinders UniversityAdelaideAustralia
  2. 2.School of Medicine, Mental Health CentreUniversity of QueenslandHerstonAustralia
  3. 3.Department of Cancer Experiences Research, Peter MacCallum Cancer CentreMelbourneAustralia
  4. 4.School of PsychologyUniversity of SydneySydneyAustralia
  5. 5.Ingram School of NursingMcGill UniversityMontrealCanada
  6. 6.School of NursingQueensland University of TechnologyKelvin GroveAustralia
  7. 7.ANU Medical School, Department of Medical Oncology, The Canberra HospitalAustralian National UniversityGarranAustralia
  8. 8.Flinders Centre for Innovation in CancerBedford ParkAustralia

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