Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: “Cascade”
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The aim of this study was to evaluate the feasibility and acceptability of “Cascade”: an online, group-based, cognitive behavioral therapy intervention, delivered “live” by a psychologist, to assist parents of children who have completed cancer treatment.
Forty-seven parents were randomized to Cascade (n = 25) or a 6-month waitlist (n = 22). Parents completed questionnaires at baseline, 1–2 weeks and 6 months post-intervention. Thirty parents completed full evaluations of the Cascade program (n = 21 randomized to Cascade, n = 9 completed Cascade post-waitlist).
Ninety-six percent of Cascade participants completed the intervention (n = 24/25). Eighty percent of parents completed every questionnaire (mean completion time 25 min (SD = 12)). Cascade was described as at least “somewhat” helpful by all parents. None rated Cascade as “very/quite” burdensome. Parents reported that the “online format was easy to use” (n = 28, 93.3 %), “I learnt new skills” (n = 28, 93.3 %), and “I enjoyed talking to others” (n = 29, 96.7 %). Peer-to-peer benefits were highlighted by good group cohesion scores.
Cascade is highly acceptable and feasible. Its online delivery mechanism may address inequities in post-treatment support for parents, a particularly acute concern for rural/remote families. Future research needs to establish the efficacy of the intervention.
KeywordsCancer and oncology Coping skills and adjustment Parents Computer applications/eHealth
The authors thank Dr. Antoinette Anazodo, Dr. Belinda Barton, Dr. Luciano Dallo-Pozza, Dr. Peter Downie, Prof. Afaf Girgis, Dr. Martha Grootenhuis, A/Prof. Madeleine King, Ms. Cherie Lowe, Dr. Maria McCarthy, Mr. Gordon Miles, Dr. Michael Osborn, Dr. Pandora Patterson, Dr. Nicole Schneider, Prof. Rosalie Viney, and Ms. Helen Wilson.
Compliance with ethical standards
This work is supported by Cancer Australia (grant number: APP1065428); the National Health and Medical Research Council of Australia (grant number: APP1067501), to CW; Cancer Institute of New South Wales (grant number: 11/ECF/3-43), to CW; and Cancer Institute of New South Wales (grant number: 14/ECF/1-11), to USD. The Behavioural Sciences Unit is supported by the Kids with Cancer Foundation.
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
- 14.Grootenhuis MA, Last BF (1997) Predictors of parental emotional adjustment to childhood cancer. Psychooncology 6:115–128. doi: 10.1002/(sici)1099-1611(199706)6:2<115::aid-pon252>3.0.co;2-d CrossRefPubMedGoogle Scholar
- 19.Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Sawyer S, Patterson P, Anazodo A, Thompson K, Cohn RJ (2012) Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: a multicenter randomised controlled trial of recapture life-AYA. BMC Cancer 12:339. doi: 10.1186/1471-2407-12-339 CrossRefPubMedPubMedCentralGoogle Scholar
- 22.Lovibond SH, Lovibond PF (1995) Manual for the depression anxiety stress scales, 2nd edn. Psychology Foundation, SydneyGoogle Scholar
- 23.Wakefield CE, Sansom-Daly UM, McGill BC, McCarthy M, Girgis A, Grootenhuis M, Barton B, Patterson P, Osborn M, Lowe C (2015) Online parent-targeted cognitive-behavioural therapy intervention to improve quality of life in families of young cancer survivors: study protocol for a randomised controlled trial. Trials 16:153. doi: 10.1186/s13063-015-0681-6 CrossRefPubMedPubMedCentralGoogle Scholar
- 25.Gaston L, Marmar CR (1994) The California psychotherapy alliance scales. In: Horvath AO, Greenberg LS (eds) The working alliance: theory, research and practice. New York, Wiley, pp 85–108Google Scholar
- 26.Stüntzner-Gibson D, Koren PE, DeChillo N (1995) The youth satisfaction questionnaire: what kids think of services. Fam Soc 76:616–624Google Scholar
- 28.Ferrell BR (1995) The impact of pain on quality of life. A decade of research. Nurs Clin N Am 30:609–624Google Scholar
- 36.Information and Research Branch of the Commonwealth Department of Health and Aged Care: Measuring Remoteness: Accessibility/Remoteness Index of Australia (ARIA). Canberra: Australia; 2001Google Scholar
- 37.Miles MB, Huberman AM (1994) Qualitative data analysis: an expanded sourcebook. Sage, LondonGoogle Scholar