How much does it cost to care for survivors of colorectal cancer? Caregiver’s time, travel and out-of-pocket costs
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Cancer treatment is increasingly delivered in an outpatient setting. This may entail a considerable economic burden for family members and friends who support patients/survivors. We estimated financial and time costs associated with informal care for colorectal cancer.
Two hundred twenty-eight carers of colorectal cancer survivors diagnosed on October 2007–September 2009 were sent a questionnaire. Informal care costs included hospital- and domestic-based foregone caregiver time, travel expenses and out-of-pocket (OOP) costs during two phases: diagnosis and treatment and ongoing care (previous 30 days). Multiple regression was used to determine cost predictors.
One hundred fifty-four completed questionnaires were received (response rate = 68 %). In the diagnosis and treatment phase, weekly informal care costs per person were: hospital-based costs, incurred by 99 % of carers, mean = €393 (interquartile range (IQR), €131–€541); domestic-based time costs, incurred by 85 %, mean = €609 (IQR, €170–€976); and domestic-based OOP costs, incurred by 68 %, mean = €69 (IQR, €0–€110). Ongoing costs included domestic-based time costs incurred by 66 % (mean = €66; IQR, €0–€594) and domestic-based OOP costs incurred by 52 % (mean = €52; IQR, €0–€64). The approximate average first year informal care cost was €29,842, of which 85 % was time costs, 13 % OOP costs and 2 % travel costs. Significant cost predictors included carer age, disease stage, and survivor age.
Informal caregiving associated with colorectal cancer entails considerable time and OOP costs. This burden is largely unrecognised by policymakers, service providers and society in general. These types of studies may facilitate health decision-makers in better assessing the consequences of changes in cancer care organisation and delivery.
KeywordsColorectal cancer Informal care Cost-of-illness Out-of-pocket costs Regression
This study was funded by the Health Research Board as part of a research programme examining the economic impact of cancer in Ireland (SA/2004/1). We are grateful to the carers and colorectal cancer survivors who took part in the surveys and the clinicians and nurses who supported and facilitated the fieldwork. We also thank the clerical support team at the National Cancer Registry who aided with data input.
Conflict of interest
- 4.National Cancer Registry Ireland (2011) Cancer in Ireland 2011: annual report of the National Cancer Registry. http://www.ncri.ie/pubs/pubfiles/AnnualReport2011.pdf. Accessed 21 June 2012
- 8.Economist Intelligence Unit (2009) Breakaway: the global burden of cancer—challenges and opportunities. Economist Intelligence Unit. www.livestrongblog.org/GlobalEconomicImpact.pdf. Accessed 10 Mar 2010
- 12.Sharp L, Timmons A (2010) The financial impact of a cancer diagnosis. National Cancer Registry Ireland. http://www.ncri.ie/pubs/pubfiles/Financial%20impact%20of%20a%20cancer%20diagnosis.pdf. Accessed 22 Feb 2011
- 17.Central Statistics Office State Bank Ireland (2012) Consumer prices annual series. http://www.cso.ie/px/pxeirestat/Database/eirestat/Consumer%20Prices%20Annual%20Series/Consumer%20Prices%20Annual%20Series_statbank.asp?SP=ConsumerPricesAnnualSeries&Planguage=0. Accessed 13 Mar 2012
- 18.AA Ireland (2012) http://www.aaireland.ie/AA/Motoring-advice/Cost-of-motoring/Cost-of-Motoring-2009.aspx. Accessed 2 Feb 2012
- 19.Commission for Taxi Regulation (2010) Technical guidelines meter and receipt information revised national maximum taxi fare. National Transport Authority. http://www.nationaltransport.ie/downloads/taxi-reg/technical-guidelines-meter-receipt.pdf. Accessed 10 Feb 2012
- 20.Central Statistics Office (2010) Earnings and labour costs. http://www.cso.ie/en/media/csoie/releasespublications/documents/earnings/2009/earnlabcosts_q32009.pdf. Accessed 10 Nov 2011
- 26.Central Bank of Ireland (2012) Central Bank of Ireland exchange rates. http://www.centralbank.ie/polstats/stats/exrates/Pages/default.aspx. Accessed 14 May 2012
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