Supportive Care in Cancer

, Volume 20, Issue 8, pp 1911–1918 | Cite as

Preliminary development of a lymphedema symptom assessment scale for patients with head and neck cancer

  • Jie Deng
  • Sheila H. Ridner
  • Barbara A. Murphy
  • Mary S. Dietrich
Original Article

Abstract

Purpose

Currently, no instruments are available to assess symptoms secondary to lymphedema in patients with head and neck cancer (HNC). The study aim was to develop and conduct preliminary tests of such an instrument.

Methods

A preliminary item pool was generated from a literature review, previous work in breast cancer-related lymphedema, and an observational study. The item pool was revised based on an expert panel's suggestions and feedback from 18 patients with HNC. The current questionnaire, the Lymphedema Symptom Intensity and Distress Survey-Head and Neck (LSIDS-H&N), was then pilot tested in 30 patients with HNC.

Results

Preliminary testing (1) demonstrated feasibility, readability, and ease of use of the LSIDS-H&N and (2) identified that there was a considerable level of symptom burden in the cohort of patients in the piloting sample.

Conclusion

Content validity of the LSIDS-H&N was supported by the expert panel during development of the LSIDS-H&N. Further testing is ongoing.

Keywords

Secondary lymphedema Head and neck cancer (HNC) Symptom assessment Instrument development Late effect 

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Copyright information

© Springer-Verlag 2011

Authors and Affiliations

  • Jie Deng
    • 1
  • Sheila H. Ridner
    • 1
    • 2
  • Barbara A. Murphy
    • 2
  • Mary S. Dietrich
    • 1
    • 2
    • 3
  1. 1.School of NursingVanderbilt UniversityNashvilleUSA
  2. 2.Vanderbilt-Ingram Cancer CenterNashvilleUSA
  3. 3.Department of Biostatistics, School of MedicineVanderbilt UniversityNashvilleUSA

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