Supportive Care in Cancer

, Volume 19, Issue 8, pp 1183–1190 | Cite as

A survey of Internet utilization among patients with cancer

  • Kimra Castleton
  • Thomas Fong
  • Andrea Wang-Gillam
  • Muhammad A. Waqar
  • Donna B. Jeffe
  • Lisa Kehlenbrink
  • Feng Gao
  • Ramaswamy GovindanEmail author
Original Article



Recently published articles have established that a substantial number of cancer patients utilize the Internet to gather information about their respective diagnoses. The challenges for medical providers include understanding the prevalence and characteristics of patients using the Internet, reasons for Internet use, and the effectiveness of currently available websites in providing useful health-related information to patients.

Material and methods

Adults with cancer were asked to complete a self-administered, anonymous, 21-item questionnaire upon registration at the Alvin J. Siteman Cancer Center at the Washington University School of Medicine.


There were 500 respondents (mean age 58 years (range 18–90), 83% Caucasian and 15% African-American). Three hundred ninety-eight participants (80%) reported access to the Internet, and 315 (63%) reported searching for information about cancer on the Internet. Patients accessing the Internet for cancer information were younger than those who did not (median age 56 vs. 63 years; p < 0.001). Internet usage for cancer information also differed by race (p < 0.0001) and education (p < 0.0001). Among patients who searched the Internet for cancer information, 13.3% of patients had their decisions towards treatments affected or changed, and 11.4% of patients had their choice in physicians affected or changed because of Internet use; 23.5% of patients sought information on clinical trials, and 9.5% of patients were influenced or changed their decision regarding clinical trial enrollment due to Internet information.


Approximately two thirds of patients with cancer used the Internet to obtain information about their disease. Factors affecting Internet use for cancer information included age, race, and education. Clinical decisions can be affected by Internet use.


Internet Cancer Survey Education 


Conflict Statement



  1. 1.
    Jemal A, Siegel R, Ward E, Hao Y, Xu J, Thun MJ (2009) Cancer statistics, 2009. CA Cancer J Clin 59:225–249PubMedCrossRefGoogle Scholar
  2. 2.
    Diaz JA, Griffith RA, Ng JJ, Reinert SE, Friedmann PD, Moulton AW (2002) Patients' use of the Internet for medical information. J Gen Intern Med 17:180–185PubMedCrossRefGoogle Scholar
  3. 3.
    Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK, Viswanath K (2005) Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey. Arch Intern Med 165:2618–2624PubMedCrossRefGoogle Scholar
  4. 4.
    Schwartz KL, Roe T, Northrup J, Meza J, Seifeldin R, Neale AV (2006) Family medicine patients' use of the Internet for health information: a MetroNet study. J Am Board Fam Med 19:39–45PubMedCrossRefGoogle Scholar
  5. 5.
    Basch EM, Thaler HT, Shi W, Yakren S, Schrag D (2004) Use of information resources by patients with cancer and their companions. Cancer 100:2476–2483PubMedCrossRefGoogle Scholar
  6. 6.
    Chen X, Siu LL (2001) Impact of the media and the internet on oncology: survey of cancer patients and oncologists in Canada. J Clin Oncol 19:4291–4297PubMedGoogle Scholar
  7. 7.
    Masood J, Shahzad J, Gujral SS (2006) WWW; the wild, wild web: internet usage in patients with urological cancer. BJU Int 98:942PubMedCrossRefGoogle Scholar
  8. 8.
    Newnham GM, Burns WI, Snyder RD, Dowling AJ, Ranieri NF, Gray EL, McLachlan SA (2006) Information from the Internet: attitudes of Australian oncology patients. Intern Med J 36:718–723PubMedCrossRefGoogle Scholar
  9. 9.
    Pautler SE, Tan JK, Dugas GR, Pus N, Ferri M, Hardie WR, Chin JL (2001) Use of the internet for self-education by patients with prostate cancer. Urology 57:230–233PubMedCrossRefGoogle Scholar
  10. 10.
    Peterson MW, Fretz PC (2003) Patient use of the internet for information in a lung cancer clinic. Chest 123:452–457PubMedCrossRefGoogle Scholar
  11. 11.
    Berland GK, Elliott MN, Morales LS, Algazy JI, Kravitz RL, Broder MS, Kanouse DE, Munoz JA, Puyol JA, Lara M et al (2001) Health information on the Internet: accessibility, quality, and readability in English and Spanish. JAMA 285:2612–2621PubMedCrossRefGoogle Scholar
  12. 12.
    Ekman A, Hall P, Litton JE (2005) Can we trust cancer information on the Internet?—a comparison of interactive cancer risk sites. Cancer Causes Control 16:765–772PubMedCrossRefGoogle Scholar
  13. 13.
    Ullrich PF Jr, Vaccaro AR (2002) Patient education on the internet: opportunities and pitfalls. Spine 27:E185–188PubMedCrossRefGoogle Scholar
  14. 14.
    NCI Health Information National Trends Survey []
  15. 15.
    Metz JM, Devine P, DeNittis A, Jones H, Hampshire M, Goldwein J, Whittington R (2003) A multi-institutional study of Internet utilization by radiation oncology patients. Int J Radiat Oncol Biol Phys 56:1201–1205PubMedCrossRefGoogle Scholar
  16. 16.
    Atkinson NL, Saperstein SL, Pleis J (2009) Using the internet for health-related activities: findings from a national probability sample. J Med Internet Res 11:e4PubMedCrossRefGoogle Scholar
  17. 17.
    Buntrock S, Hopfgarten T, Adolfsson J, Onelov E, Steineck G (2007) The Internet and prostate cancer patients: searching for and finding information. Scand J Urol Nephrol 41:367–374PubMedCrossRefGoogle Scholar
  18. 18.
    James N, Daniels H, Rahman R, McConkey C, Derry J, Young A (2007) A study of information seeking by cancer patients and their carers. Clin Oncol (R Coll Radiol) 19:356–362Google Scholar
  19. 19.
    Shim M (2008) Connecting internet use with gaps in cancer knowledge. Health Commun 23:448–461PubMedCrossRefGoogle Scholar
  20. 20.
    Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L (2004) How the internet affects patients' experience of cancer: a qualitative study. BMJ 328:564PubMedCrossRefGoogle Scholar
  21. 21.
    Eysenbach G (2003) The impact of the Internet on cancer outcomes. CA Cancer J Clin 53:356–371PubMedCrossRefGoogle Scholar
  22. 22.
    Helft PR, Eckles RE, Johnson-Calley CS, Daugherty CK (2005) Use of the internet to obtain cancer information among cancer patients at an urban county hospital. J Clin Oncol 23:4954–4962PubMedCrossRefGoogle Scholar
  23. 23.
    Smith RP, Devine P, Jones H, DeNittis A, Whittington R, Metz JM (2003) Internet use by patients with prostate cancer undergoing radiotherapy. Urology 62:273–277PubMedCrossRefGoogle Scholar
  24. 24.
    Helft PR, Hlubocky F, Daugherty CK (2003) American oncologists' views of internet use by cancer patients: a mail survey of American Society of Clinical Oncology members. J Clin Oncol 21:942–947PubMedCrossRefGoogle Scholar
  25. 25.
    Tejeda HA, Green SB, Trimble EL, Ford L, High JL, Ungerleider RS, Friedman MA, Brawley OW (1996) Representation of African-Americans, Hispanics, and whites in National Cancer Institute cancer treatment trials. J Natl Cancer Inst 88:812–816PubMedCrossRefGoogle Scholar

Copyright information

© Springer-Verlag 2010

Authors and Affiliations

  • Kimra Castleton
    • 1
  • Thomas Fong
    • 2
  • Andrea Wang-Gillam
    • 1
  • Muhammad A. Waqar
    • 3
  • Donna B. Jeffe
    • 1
  • Lisa Kehlenbrink
    • 1
  • Feng Gao
    • 4
  • Ramaswamy Govindan
    • 1
    • 5
    Email author
  1. 1.Alvin J Siteman Cancer Center at Washington University School of Medicine in St. LouisSt. LouisUSA
  2. 2.Hematology/OncologySouthern California Permanente Medical GroupFontanaUSA
  3. 3.Department of Internal Medicine, The Brooklyn Hospital CenterBrooklynUSA
  4. 4.Division of BiostatisticsAlvin J Siteman Cancer Center at Washington University School of Medicine in St. LouisSt. LouisUSA
  5. 5.Washington University School of MedicineSt. LouisUSA

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