Advertisement

Supportive Care in Cancer

, Volume 14, Issue 4, pp 361–368 | Cite as

Development and evaluation of an audiovisual information resource to promote self-management of chemotherapy side-effects

  • Mariko Carey
  • Michael Jefford
  • Penelope Schofield
  • Siobhan Kelly
  • Meinir Krishnasamy
  • Sanchia Aranda
Original Article

Abstract

Based on a theoretical framework, we developed an audiovisual resource to promote self-management of eight common chemotherapy side-effects. A patient needs analysis identified content domains, best evidence for preparing patients for threatening medical procedures and a systematic review of effective self-care strategies informed script content. Patients and health professionals were invited to complete a written evaluation of the video. A 25-min video was produced. Fifty health professionals and 37 patients completed the evaluation. All considered the video informative and easy to understand. The majority believed the video would reduce anxiety and help patients prepare for chemotherapy. Underpinned by a robust theoretical framework, we have developed an evidence-based resource that is perceived by both patients and health professionals as likely to enhance preparedness for chemotherapy.

Keywords

Cancer Chemotherapy Video Patient education Self-management 

Notes

This project was supported by a grant from the Peter MacCallum Cancer Foundation. We also wish to thank the volunteers from the Cancer Connect program and The Cancer Council of Victoria for assisting with this project.

References

  1. 1.
    Aranda S, Schofield P, Weih L, Yates P, Milne D, Faulkner R et al (2005) Mapping the quality of life and unmet needs of urban women with metastatic breast cancer. Eur J Cancer Care 14:211–222CrossRefGoogle Scholar
  2. 2.
    Avis NE, Crawford S, Manual J (2004) Psychosocial problems among younger women with breast cancer. Psychooncology 13:295–308PubMedCrossRefGoogle Scholar
  3. 3.
    Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J (2002) Self-management approaches for people with chronic conditions: a review. Patient Educ Couns 48:177–187PubMedCrossRefGoogle Scholar
  4. 4.
    Batchelor D (2001) Hair and cancer chemotherapy: consequences and nursing care—a literature study. Eur J Cancer Care 10:147–163CrossRefGoogle Scholar
  5. 5.
    Burish TG, Snyder SL, Jenkins RA (1991) Preparing patients for cancer chemotherapy: effect of coping preparation and relaxation interventions. J Consult Clin Psychol 59:518–525PubMedCrossRefGoogle Scholar
  6. 6.
    Carelle N, Piotto E, Bellanger A, Germanaud J, Thuiller A, Khayat D (2002) Changing patient perceptions of the side effects of cancer chemotherapy. Cancer 95:155–163PubMedCrossRefGoogle Scholar
  7. 7.
    Corney RH, Everett H, Howells A, Crowther ME (1992) Psychosocial adjustment following major gynaecological surgery for carcinoma of the cervix and vulva. J Psychosom Res 36:561–568PubMedCrossRefGoogle Scholar
  8. 8.
    Devine EC, Westlake SK (1995) The effects of psychoeducational care provided to adults with cancer: meta-analysis of 16 studies. Oncol Nurs Forum 22:1369–1381PubMedGoogle Scholar
  9. 9.
    Done ML, Lee A (1998) The use of a video to convey preanesthetic information to patients undergoing ambulatory surgery. Anesth Analg 87:531–536PubMedCrossRefGoogle Scholar
  10. 10.
    Dunn J, Steginga S, Rose P, Scott J, Allison R (2004) Evaluating patient education materials about radiation therapy. Patient Educ Couns 52:325–332PubMedCrossRefGoogle Scholar
  11. 11.
    Harrison R, Dey P, Selvin NJ, Eardley A, Gibbs A, Cowan R et al (2001) Randomized controlled trial to assess the effectiveness of a videotape about radiotherapy. Br J Cancer 84:8–10PubMedCrossRefGoogle Scholar
  12. 12.
    Hathaway D (1986) Effect of preoperative instruction on postoperative outcomes: a meta-analysis. Nurs Res 35:269–275PubMedCrossRefGoogle Scholar
  13. 13.
    Kissane DW, Clarke DM, Ikin J, Bloch S, Smith GC, Vitetta L et al (1998) Psychological morbidity and quality of life in Australian women with early stage breast cancer. Med J Aust 169:192–196PubMedGoogle Scholar
  14. 14.
    Kunkel EJ, Bakker JR, Myers RE, Oyesanmi O, Gomella LG (2000) Biospsychosocial aspects of prostate cancer. Psychosomatics 41:85–94PubMedCrossRefGoogle Scholar
  15. 15.
    Ley P (1988) Communicating with patients. Improving communications, satisfaction and compliance. Croom Helm, LondonGoogle Scholar
  16. 16.
    Luck A, Pearson S, Maddern G, Hewett P (1999) Effects of video information on precolonoscopy anxiety and knowledge: a randomised controlled trial. Lancet North Am Ed 354:2032–2035Google Scholar
  17. 17.
    McGregor S (2003) Information on video format can help patients with localised prostate cancer to be partners in decision making. Patient Educ Couns 49:279–283PubMedCrossRefGoogle Scholar
  18. 18.
    Mills ME, Sullivan K (1999) The importance of information giving for patients newly diagnosed with cancer: a review of the literature. J Clin Nurs 8:631–642PubMedCrossRefGoogle Scholar
  19. 19.
    Mykityshyn AL, Fisk AD, Rogers WA (2002) Learning to use a home medical device: mediating age-related differences with training. Hum Factors 44(3):354–364PubMedCrossRefGoogle Scholar
  20. 20.
    Sanson-Fisher R, Girgis A, Boyes A, Bonevski B, Burton L, Cook P (2000) The unmet supportive care needs of patients with cancer. Cancer 88:226–236PubMedCrossRefGoogle Scholar
  21. 21.
    Segal BH, Walsh TJ, Gea-Banacloche JC, Holland SM (2005) Infections in the cancer patient. In: De Vita VT, Hellman, Rosenberg SA (eds) Cancer: principles and practice of oncology, 7th edn. Lippincott Williams & Wilkins, Philadelphia, PA. http://gateway.ut.ovid.com/gw1/ovidweb. Cited 16 June 2005
  22. 22.
    Silburn K (1999) Tailoring information provision to meet consumer needs. Health Issues 58:12–15Google Scholar
  23. 23.
    Sitzia J, Hughes J, Sobrido L (1995) A study of patients’ experiences of side-effects associated with chemotherapy: a pilot stage report. Int J Nurs Stud 32:580–600PubMedCrossRefGoogle Scholar
  24. 24.
    Speigel D (1996) Cancer and depression. Br J Psychiatry Suppl 30:109–116Google Scholar
  25. 25.
    Suls J, Wan CK (1989) Effects of sensory and procedural information on coping with stressful medical procedures and pain: a meta-analysis. J Consult Clin Psychol 57:372–379PubMedCrossRefGoogle Scholar
  26. 26.
    Thewes B, Meiser B, Rickard J, Friedlander M (2003) The fertility- and menopause-related information needs of younger women with a diagnosis of breast cancer: a qualitative study. Psychooncology 12:500–511PubMedCrossRefGoogle Scholar
  27. 27.
    Thomas R, Daly M, Perryman B, Stockton D (2000) Forewarned is forearmed—benefits of preparatory information on video cassette for patients receiving chemotherapy or radiotherapy—a randomised controlled trial. Eur J Cancer 36:1536–1543PubMedCrossRefGoogle Scholar
  28. 28.
    Umsawasdi T, Middleman EA, Luna M, Bodey GP (1973) Klebsiella bacteremia in cancer patients. Am J Med Sci 265:473–482PubMedCrossRefGoogle Scholar

Copyright information

© Springer-Verlag 2006

Authors and Affiliations

  • Mariko Carey
    • 1
  • Michael Jefford
    • 1
  • Penelope Schofield
    • 1
    • 2
  • Siobhan Kelly
    • 1
  • Meinir Krishnasamy
    • 1
    • 3
  • Sanchia Aranda
    • 1
    • 4
  1. 1.Supportive Care Research GroupPeter MacCallum Cancer CentreVictoriaAustralia
  2. 2.School of Behavioural ScienceThe University of MelbourneVictoriaAustralia
  3. 3.School of NursingThe University of MelbourneVictoriaAustralia
  4. 4.School of Postgraduate NursingThe University of MelbourneVictoriaAustralia

Personalised recommendations