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Supportive Care in Cancer

, Volume 11, Issue 10, pp 629–637 | Cite as

Family caregiver knowledge of treatment intent in a longitudinal study of patients with advanced cancer

  • Catherine M. Burns
  • Tracy Dixon
  • Dorothy Broom
  • Wayne T. Smith
  • Paul S. Craft
Original Article

Abstract

Goals of work

Caregivers have become part of a triad of care and frequently attend patient consultations in the ambulatory cancer setting. Effective caregiving and decision making require that they understand the course of the disease and the changing treatment goals. This study sought to evaluate caregiver perception of treatment intent.

Patients and methods

A cohort of 317 subjects (181 patients and 136 caregivers) from The Canberra Hospital's Cancer Services were followed for 6 months. Caregiver understanding of patient treatment intent was measured over time together with sources of information.

Main results

Most caregivers understood that the illness was life-threatening (92% at week 12) and that treatment goals were to control illness and improve quality of life. Only half understood that treatment was noncurative (48% at week 12); 27% were unsure and 25% believed that treatment would cure. A high proportion of caregivers identified the specialist as the source of information (77%) and almost half also included the general practitioner (47%). These figures remained fairly constant over time. There were significant gender and age differences in understanding. At baseline, more women than men had an accurate perception of treatment intent and these numbers increased over time. Men's perception did not change.

Conclusions

Caregivers' ability to fully engage in the task of caring for those with a terminal illness may be hampered by their lack of understanding of the treatment patients receive.

Keywords

Information-giving Advanced cancer Caregivers Knowledge 

Notes

Acknowledgements

This study was undertaken as part of the Canberra Cancer Quality of Life Project funded by the Australian Commonwealth Department of Health and Community Services. The authors wish to thank patients and their caregivers for their participation and medical, nursing and social work colleagues for their support.

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Copyright information

© Springer-Verlag 2003

Authors and Affiliations

  • Catherine M. Burns
    • 1
    • 2
    • 3
  • Tracy Dixon
    • 3
  • Dorothy Broom
    • 3
  • Wayne T. Smith
    • 3
  • Paul S. Craft
    • 4
  1. 1.The Canberra HospitalAustralia
  2. 2.The Cancer Council South AustraliaUnleyAustralia
  3. 3.National Centre for Epidemiology and Population HealthAustralian National UniversityAustralia
  4. 4.Medical Oncology UnitThe Canberra HospitalWodenAustralia

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