Pediatric Nephrology

, Volume 25, Issue 8, pp 1487–1496 | Cite as

Quality of life in children with chronic kidney disease (with child and parent assessments)

  • Necla Buyan
  • Mehmet Atilla Türkmen
  • Ilmay Bilge
  • Esra Baskin
  • Mehmet Haberal
  • Yelda Bilginer
  • Sevgi Mir
  • Sevinç Emre
  • Sema Akman
  • Ozan Ozkaya
  • Kibriya Fidan
  • Harika Alpay
  • Salih Kavukcu
  • Lale Sever
  • Zeynep Birsin Özçakar
  • Nahide Dogrucan
Original Article

Abstract

Herein the results of a multicenter study from the Turkish Pediatric Kidney Transplantation Study Group are reported. The aims of this study were to compare the quality of life (QoL) scores of Turkish children who are dialysis patients (DP), renal transplant recipients (TR), and age-matched healthy controls and to compare child-self and parent-proxy scores. The Turkish versions of the Kinder Lebensqualität Fragebogen (KINDL®) questionnaires were used as a QoL measure. The study group consisted of 211 children and adolescents with chronic kidney disease (CKD) (139 TR and 72 DP aged between 4–18 years; 13.7 ± 3.5 years) from 11 university hospitals, 129 parents of these patients, 232 age-matched healthy children and adolescents (aged between 4–18 years; 13.1±3.5  years) and 156 of their parents. Patients with CKD had lower scores in all subscales except for physical well-being than those in the control group. TR had higher scores in physical well-being, self-esteem, friends’ subscales, and total scores than DP. Child-self scores were lower than parent-proxy scores, especially in CKD, DP, and control groups. Concordance between parent-proxy and child-self reports in the TR, DP, CKD, and control groups was only moderate for the majority of subscales (r = 0.41–0.61). It was concluded that parent-proxy scores on the QoL were not equivalent to child-self scores and that evaluating both children’s and parents’ perspectives were important. Additionally, psychosocial counseling is crucial not only for patients with CKD but also for their parents.

Keywords

Quality of life Children Adolescent Kidney transplantation Dialysis 

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Copyright information

© IPNA 2010

Authors and Affiliations

  • Necla Buyan
    • 1
  • Mehmet Atilla Türkmen
    • 2
  • Ilmay Bilge
    • 3
  • Esra Baskin
    • 4
  • Mehmet Haberal
    • 5
  • Yelda Bilginer
    • 6
  • Sevgi Mir
    • 7
  • Sevinç Emre
    • 3
  • Sema Akman
    • 8
  • Ozan Ozkaya
    • 9
  • Kibriya Fidan
    • 1
  • Harika Alpay
    • 10
  • Salih Kavukcu
    • 2
  • Lale Sever
    • 11
  • Zeynep Birsin Özçakar
    • 12
  • Nahide Dogrucan
    • 13
  1. 1.Department of Pediatric NephrologyGazi University, School of MedicineAnkaraTurkey
  2. 2.Department of Pediatric NephrologyDokuz Eylül UniversityİzmirTurkey
  3. 3.Department of Pediatric Nephrologyİstanbul University, İstanbul Medical SchoolİstanbulTurkey
  4. 4.Department of Pediatric NephrologyBaşkent UniversityAnkaraTurkey
  5. 5.Department of SurgeryBaşkent UniversityAnkaraTurkey
  6. 6.Department of Pediatric NephrologyHacettepe UniversityAnkaraTurkey
  7. 7.Department of Pediatric NephrologyEge UniversityİzmirTurkey
  8. 8.Department of Pediatric NephrologyAkdeniz UniversityAntalyaTurkey
  9. 9.Department of Pediatric NephrologyOndokuz Mayıs UniversitySamsunTurkey
  10. 10.Department of Pediatric NephrologyMarmara UniversityİstanbulTurkey
  11. 11.Department of Pediatric Nephrologyİstanbul University, Cerrahpasa Medical SchoolİstanbulTurkey
  12. 12.Department of Pediatric NephrologyAnkara UniversityAnkaraTurkey
  13. 13.Gazi HospitalGazi UniversityAnkaraTurkey

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