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Dysphagia

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Assessment of the Concerns of Caregivers of Children with Repaired Esophageal Atresia–Tracheoesophageal Fistula Related to Feeding–Swallowing Difficulties

  • Selen Serel ArslanEmail author
  • Numan Demir
  • Aynur Ayşe Karaduman
  • Feridun Cahit Tanyel
  • Tutku Soyer
Original Article
  • 30 Downloads

Abstract

The study aimed to assess concerns of caregivers of children with EA-TEF related to feeding–swallowing difficulties, compare the concerns according to type of atresia and repair time, and investigate its relationship with time to start oral feeding. Caregivers accompanying 64 children with EA-TEF were included. Age, sex, type of atresia, repair time, and time to start oral feeding were noted. Parents completed the Turkish version of the Feeding/Swallowing Impact Survey (T-FS-IS) to assess the concerns of caregivers related to feeding–swallowing difficulties. The T-FS-IS has three subscales including daily activities, worry, and feeding difficulties. The median age of patients was 3 (min = 1, max = 12) years, of which 57.8% were male. 43.8% of cases were isolated-EA, and 56.3% were EA-distal TEF. 57.8% of cases received early repair, and 42.2% had delayed repair. The median time to start oral feeding was 4 weeks (min = 1, max = 128). The mean scores of daily activities, worry, feeding difficulties, and total score from the T-FS-IS were 2.43 ± 1.18, 2.73 ± 1.28, 2.10 ± 0.97, and 2.44 ± 1.09, respectively. Caregivers of children with isolated-EA reported more problems in total score and all subscales of the T-FS-IS than EA-distal TEF (p < 0.01). Caregivers of children who received delayed repair reported more problems in total score and all subscales of the T-FS-IS than children with early repair (p < 0.05). Moderate to strong correlations were found between the T-FS-IS and time to start oral feeding (p < 0.01, r = 0.55–0.65). This study suggests that caregivers of children with isolated-EA and/or delayed repair and/or delay in oral intake may have higher concerns related to feeding–swallowing difficulties.

Keywords

Deglutition Deglutition disorders Esophageal atresia Tracheoesophageal fistula Caregiver Concern 

Notes

Acknowledgements

We would like to thank the children and parents who consented and participated in this study.

Funding

No funding.

Compliance with Ethical Standards

Conflict of interest

The authors declare that they have no conflicts of interest.

Ethical Approval

All procedures performed in the study involving human participants were in accordance with the ethical standards of the institutional research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

All participants signed an informed consent form.

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Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2019

Authors and Affiliations

  1. 1.Faculty of Physical Therapy and RehabilitationHacettepe UniversityAnkaraTurkey
  2. 2.Department of Pediatric Surgery, Faculty of MedicineHacettepe UniversityAnkaraTurkey

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