The Dysphagia Handicap Index: Development and Validation
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Quality-of-life indicators for dysphagia provide invaluable information to the treating clinician regarding the success or failure of swallowing therapy. The purpose of this study was to develop a clinically efficient, statistically robust patient-reported outcomes tool that measures the handicapping effect of dysphagia on emotional, functional, and physical aspects of individual’s lives. 60 statements describing the handicapping effect of dysphagia were collected from patient reports and divided into subscales of physical, emotional, and functional problems. The statements were presented to 77 individuals with dysphagia. Respondents replied never, sometimes, or always to each statement and rated their self-perceived dysphagia severity on a 7-point equal-appearing interval scale. Cronbach’s α was performed to assess the internal consistency validation of the items within the questionnaire. The final questionnaire was reduced to 25 items and administered to 214 individuals with dysphagia and 74 controls. Test–retest was performed on 63 individuals with dysphagia. Cronbach’s α for the initial and final versions was strong at r = 0.96 and r = 0.94, respectively. Significant differences occurred between the dysphagia and control groups. Test–retest reliability was strong. We present a new, easy-to-complete, statistically robust, patient-reported outcomes measure for assessing the handicapping effect of dysphagia.
KeywordsDysphagia Handicap Quality of life Patient-reported outcomes Deglutition Deglutition disorders
The authors gratefully acknowledge the staff of the Division of Speech-Language Sciences and Disorders, Department of Neurology, Henry Ford Hospitals and Health Network for their assistance in data collection for this study.
- 2.Logemann J. Evaluation and treatment of swallowing disorders. Boston: College Hill Press; 1983. p. 132–53.Google Scholar
- 4.Fujiu M. Effect of tongue-holding maneuver on posterior pharyngeal wall movement during deglutition. Am J Speech Lang Pathol. 1996;5:23–30.Google Scholar
- 5.Chen A, Frankowski R, Bishop-Leone J, Hebert T, Leyk S, Lewin J, Goepfert H. The development and validation of a dysphagia-specific quality-of-life questionnaire for patients with head and neck cancer. Arch Otolaryngol. 2001;127:870–6.Google Scholar
- 9.Nunnally JC. Psychometric theory. 2nd ed. New York: McGraw-Hill; 1978.Google Scholar
- 10.World Health Organization. International classification of functioning, disability and health. The 54th World Health Assembly, May 22, 2001.Google Scholar
- 11.McLaughlin G. SMOG grading: a new readability formula. J Read. 1969;12(8):639–46.Google Scholar
- 12.Doak C, Doak L, Root J. Teaching patients with low literacy skills. 2nd ed. Philadelphia: Lippincott Company; 1996. p. 1–2.Google Scholar
- 13.Jacobson B, Johnson A, Grywalski C, Silbergleit A, Jacobson G, Benninger M, Newman C. The Voice Handicap Index (VHI): development and validation. Am J Speech Lang Pathol. 1997;6(3):66–70.Google Scholar