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European Journal of Pediatrics

, Volume 172, Issue 3, pp 293–304 | Cite as

Adolescent views on transition in diabetes and nephrology

  • Allison TongEmail author
  • Germaine Wong
  • Elisabeth Hodson
  • Rowan G. Walker
  • Lidwien Tjaden
  • Jonathan C. Craig
Review

Abstract

Managing the transition of adolescents from paediatric to adult care is complex and remains an important challenge. This aim of this study was to synthesize studies on perspective on transition to adult care among young people with diabetes or chronic kidney disease. We conducted a systematic review of surveys and qualitative studies that explored adolescent perspectives on transition to adult care in diabetes and chronic kidney disease. Searches were conducted to week 4, June 2010. For quantitative questionnaires, all items were mapped into a domain schema. Thematic synthesis of the qualitative findings was performed. Fourteen studies involving 854 respondents were included. The majority of participants felt somewhat prepared but had reservations about transfer. Five major themes were identified: (1) preparedness (timing of transfer, access to providers, parental involvement), (2) overwhelmed by an impersonal environment in adult service (sterile and unwelcoming, navigating new processes, feeling displaced), (3) independence (developing self-esteem and an adult identity, taking responsibility and ownership), (4) valuing familiarity (building trust, peer support) and (5) service and information needs (leniency, lack of access, efficiency, information needs). Conclusion Holistic and adolescent focussed transition programs are needed which address adolescent needs by providing adequate access to health services, encouraging independence and ownership of health management, promoting trust in providers, giving comprehensive information about what to expect and how to navigate adult services and facilitating interaction with younger patients.

Keywords

Health services Nephrology Systematic review Adolescent Diabetes mellitus 

Notes

Acknowledgments

AT is supported by the National Health and Medical Research Fellowship, ID 1037162.

Conflict of interest

The authors do not have any conflict of interest to declare.

Supplementary material

431_2012_1725_MOESM1_ESM.pdf (92 kb)
ESM 1 (PDF 92.3 kb)

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Copyright information

© Springer-Verlag 2012

Authors and Affiliations

  • Allison Tong
    • 1
    • 2
    Email author
  • Germaine Wong
    • 1
    • 2
    • 3
  • Elisabeth Hodson
    • 1
    • 2
  • Rowan G. Walker
    • 4
  • Lidwien Tjaden
    • 1
  • Jonathan C. Craig
    • 1
    • 2
  1. 1.Centre for Kidney ResearchThe Children’s Hospital at WestmeadSydneyAustralia
  2. 2.Sydney School of Public HealthThe University of SydneySydneyAustralia
  3. 3.Department of Nephrology and TransplantationWestmead HospitalSydneyAustralia
  4. 4.Department of NephrologyAlfred HospitalMelbourneAustralia

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