Europäische Versorgungsstandards für Menschen mit rheumatoider Arthritis
Übersetzung und Kommentierung der von der EULAR unterstützten Vorschläge des eumusc.net durch eine Task Force von DGRh und VRA mit Unterstützung der Deutschen Rheuma-Liga
Versorgung
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Zusammenfassung
In einer gemeinsamen Initiative des Vorstands der Deutschen Gesellschaft für Rheumatologie (DGRh) und des Verbands rheumatologischer Akutkliniken (VRA) wurden die kürzlich vom European Musculoskeletal Conditions Surveillance and Information Network (eumusc.net) vorgeschlagenen und von der European League Against Rheumatism (EULAR) unterstützten europäischen „standards of care“ für rheumatoide Arthritis (RA) übersetzt und kommentiert. Die Empfehlungen umfassen Aspekte des Managements der Erkrankung, der unmittelbaren medizinischen Versorgung sowie des Zugangs zu Informationen – einschließlich aller Arten von Unterstützung, die Menschen mit RA benötigen – und nicht zuletzt der Vermittlung des erforderlichen Wissens. Darüber hinaus geht es auch um Versorgungsstrukturen, z. B. um die Verfügbarkeit von medizinischem Personal mit entsprechender Expertise.
Schlüsselwörter
Empfehlungen Versorgungsstandards Rheumatoide Arthritis Management PatientenschulungStandards of care for people with rheumatoid arthritis in Europe
Translation and comments of the eumusc.net recommendations supported by EULAR performed by a national task force of the professional organisations DGRh and VRA supported by „Deutsche Rheumaliga“
Abstract
In a joint initiative by the boards of the German Society for Rheumatology (DGRh) and the Association of Rheumatology Clinics (VRA) the European „standards of care“ for rheumatoid arthritis, recently suggested by the European Musculoskeletal Conditions Surveillance and Information Network (eumusc.net) and supported by the European League Against Rheumatism (EULAR), were translated and annotated. The recommendations include aspects of the management of the disease, actual medical care, and access to information – this includes all types of support people with RA need, and, last but not least communication of the necessary knowledge. Furthermore, health care structures such as the availability of medical staff with relevant expertise are also important.
Keywords
Recommendations Standards of care Rheumatoid arthritis Management Patient educationNotes
Einhaltung ethischer Richtlinien
Interessenkonflikt
J. Braun, A. Krause, M. Aringer, G. Burmester, F. Bessler, J.-M. Engel, U. Faubel, R. Fischer-Betz, E. Genth, E. Gromnica-Ihle, B. Hellmich, I. Kötter, J. Lakomek, H.-M. Lorenz, K. Krüger, B. Manger, E. Märker-Hermann, K. Minden, U. Müller-Ladner, J. Rautenstrauch, S. Rehart, G. Riemekasten, M. Rudwaleit, W. Rüther, G. Schett, F. Schuch, H. Schulze-Koops, C. Specker, S. Wassenberg, D. Wiek, A. Zink und M. Schneider geben an, dass kein Interessenkonflikt besteht.
Dieser Beitrag beinhaltet keine von den Autoren durchgeführte Studien an Menschen oder Tieren.
Literatur
- 1.Helmick CG, Felson DT, Lawrence RC, Gabriel S, Hirsch R, Kwoh CK, Liang MH, Kremers HM, Mayes MD, Merkel PA, Pillemer SR, Reveille JD, Stone JH, National Arthritis Data Workgroup (2008) Estimates of the prevalence of arthritis and other rheumatic conditions in the United States. Part I. Arthritis Rheum 58(1):15–25CrossRefPubMedGoogle Scholar
- 2.World Health Organization (2011) World report on disability. www.who.int/disabilities/world_report/2011/report.pdf. Zugegriffen: 25.11.2015
- 3.Alamanos Y, Voulgari PV, Drosos AA (2006) Incidence and prevalence of rheumatoid arthritis, based on the 1987 American College of Rheumatology criteria: a systematic review. Semin Arthritis Rheum 36(3):182–188CrossRefPubMedGoogle Scholar
- 4.Loza E, Jover JA, Rodriguez L, Carmona L (2009) EPISER Study Group. Multimorbidity: prevalence, effect on quality of life and daily functioning, and variation of this effect when one condition is a rheumatic disease. Semin Arthritis Rheum 38(4):312–319CrossRefPubMedGoogle Scholar
- 5.Franke LC, Ament AJ, van de Laar MA, Boonen A, Severens JL (2009) Cost-of-illness of rheumatoid arthritis and ankylosing spondylitis. Clin Exp Rheumatol 4(Suppl 55):118–123Google Scholar
- 6.Smolen JS, Aletaha D, Bijlsma JW, Breedveld FC, Boumpas D, Burmester G, Combe B, Cutolo M, de Wit M, Dougados M, Emery P, Gibofsky A, Gomez-Reino JJ, Haraoui B, Kalden J, Keystone EC, Kvien TK, McInnes I, Martin-Mola E, Montecucco C, Schoels M, van der Heijde D (2010) T2T Expert Committee. Treating rheumatoid arthritis to target: recommendations of an international task force. Ann Rheum Dis 69(4):631–637CrossRefPubMedPubMedCentralGoogle Scholar
- 7.Autorité de Santé (HAS) (2007) http://www.has-sante.fr/portail/upload/docs/application/pdf/rheumatoid_arthritis_guidelines.pdf. Zugegriffen: 25.11.2015
- 8.Gossec L, Pavy S, Pham T, Constantin A, Poiraudeau S, Combe B, Flipo RM, Goupille P, Le Loët X, Mariette X, Puéchal X, Wendling D, Schaeverbeke T, Sibilia J, Tebib J, Cantagrel A, Dougados M (2006) Nonpharmacological treatments in early rheumatoid arthritis: clinical practice guidelines based on published evidence and expert opinion. Joint Bone Spine 73(4):396–402CrossRefPubMedGoogle Scholar
- 9.Forestier R, André-Vert J, Guillez P, Coudeyre E, Lefevre-Colau MM, Combe B, Mayoux-Benhamou MA (2009) Non-drug treatment (excluding surgery) in rheumatoid arthritis: clinical practice guidelines. Jt Bone Spine 76(6):691–698CrossRefGoogle Scholar
- 10.Fautrel B, Pham T, Gossec L, Combe B, Flipo RM, Goupille P, Le Loët X, Mariette X, Puéchal X, Wendling D, Schaeverbeke T, Sibilia J, Sany J, Dougados M (2005) Role and modalities of information and education in the management of patients with rheumatoid arthritis: development of recommendations for clinical practice based on published evidence and expert opinion. Jt Bone Spine 72(2):163–170CrossRefGoogle Scholar
- 11.Autorité de Santé (HAS) (2007) http://www.has-sante.fr/portail/upload/docs/application/pdf/rheumatoid_arthritis_guidelines.pdf. Zugegriffen: 25.11.2015
- 12.Gossec L, Fautrel B, Pham T, Combe B, Flipo RM, Goupille P, Le Loet X, Mariette X, Puéchal X, Wendling D, Schaeverbeke T, Sibilia J, Sany J, Dougados M (2005) Structural evaluation in the management of patients with rheumatoid arthritis: development of recommendations for clinical practice based on published evidence and expert opinion. Jt Bone Spine 72(3):229–234CrossRefGoogle Scholar
- 13.Schneider M, Lelgemann M, Abholz HH, Blumenroth M, Flügge C, Gerken M, Jäniche H, Kunz R, Krüger K, Mau W, Specker C, Zellner M (2011) Interdisziplinäre Leitlinie Management der frühen rheumatoiden Arthritis, 3. Aufl. Springer, HeidelbergGoogle Scholar
- 14.Scottish Intercollegiate Guidelines Network (SIGN) Management of early rheumatoid arthritis. A national clinical guideline. http://www.sign.ac.uk/guidelines/fulltext/50/index.html. Zugegriffen: 25.11.2015
- 15.Spanish Society of Rheumatology (SER) (2007) http://www.ser.es/guipcar/. Zugegriffen: 25.11.2015
- 16.Luqmani R, Hennell S, Estrach C, Birrell F, Bosworth A, Davenport G, Fokke C, Goodson N, Jeffreson P, Lamb E, Mohammed R, Oliver S, Stableford Z, Walsh D, Washbrook C, Webb F, British Society for Rheumatology (2006) British Health Professionals in Rheumatology Standards, Guidelines and Audit Working Group. British Society for Rheumatology and british health professionals in Rheumatology guideline for the management of rheumatoid arthritis (the first two years). Rheumatology (Oxford) 45(9):1167–1169CrossRefGoogle Scholar
- 17.Luqmani R, Hennell S, Estrach C, Basher D, Birrell F, Bosworth A, Burke F, Callaghan C, Candal-Couto J, Fokke C, Goodson N, Homer D, Jackman J, Jeffreson P, Oliver S, Reed M, Sanz L, Stableford Z, Taylor P, Todd N, Warburton L, Washbrook C, Wilkinson M, Society for Rheumatology (2009) British Health Professionals in Rheumatology Standards, Guidelines and Audit Working Group. British Society for Rheumatology and British Health Professionals in Rheumatology guideline for the management of rheumatoid arthritis (after the first 2 years). Rheumatology (Oxford) 48(4):436–439CrossRefGoogle Scholar
- 18.Kennedy T, McCabe C, Struthers G, Sinclair H, Chakravaty K, Bax D, Shipley M, Abernethy R, Palferman T, Hull R (2005) British Society for Rheumatology Standards, Guidelines and Audit Working Group (SGAWG). BSR guidelines on standards of care for persons with rheumatoid arthritis. Rheumatology (Oxford) 44(4):553–556CrossRefGoogle Scholar
- 19.National Institute for Health and Clinical Excellence (2009) Guidance. Rheumatoid Arthritis: National Clinical Guideline for Management and Treatment in Adults. National Collaborating Centre for Chronic Conditions, Royal College of Physicians, LondonGoogle Scholar
- 20.http://www.eumusc.net/workpackages_wp5.cfm. Zugegriffen: 25.11.2015
- 21.Stoffer MA, Smolen JS, Woolf A, Ambrozic A, Bosworth A, Carmona L, Fialka-Moser V, Loza E, Olejnik P, Petersson IF, Uhlig T, Stamm TA (2014) eumusc.net-working group. Development of patient-centred standards of care for rheumatoid arthritis in Europe: the eumusc.net project. Ann Rheum Dis 73(5):902–905CrossRefPubMedPubMedCentralGoogle Scholar
- 22.Arthritis and Musculoskeletal Alliance (ARMA) (2004) Standards of care for people with inflammatory arthritis. http://www.arma.uk.net/wp-content/uploads/pdfs/ia06.pdf. Zugegriffen: 25.11.2015Google Scholar
- 23.Mau W, Beyer W, Ehlebracht-König I, Engel JM, Genth E, Lange U, Kommission Rehabilitation (2015) Physikalische Medizin und Sozialmedizin der DGRh; treat to participation DGRh-Positionspapier zur nachhaltigen Verbesserung des funktionalen Gesundheitszustandes von Rheumakranken. Z Rheumatol 74:553–557CrossRefPubMedGoogle Scholar
- 24.Brouwers M, Kho ME, Browman GP, Burgers JS, Cluzeau F, Feder G, Fervers B, Graham ID, Grimshaw J, Hanna S, Littlejohns P, Makarski J, Zitzelsberger L, for the AGREE Next Steps Consortium (2010) AGREE II: Advancing guideline development, reporting and evaluation in healthcare. Can Med Assoc J 182(18):E839CrossRefGoogle Scholar
- 25.Freel AC, Shiloach M, Weigelt JA, Beilman GJ, Mayberry JC, Nirula R, Stafford RE, Tominaga GT, Ko CY, American College of Surgeons (2008) American College of Surgeons Guidelines Program: a process for using existing guidelines to generate best practice recommendations for central venous access. J Am Coll Surg 207(5):676–682CrossRefPubMedGoogle Scholar
- 26.Petersson IF, Strömbeck B, Andersen L, Cimmino M, Greiff R, Loza E, Sciré C, Stamm T, Stoffer M, Uhlig T, Woolf AD, Vliet Vlieland TP (2014) eumusc.net-working group. Development of healthcare quality indicators for rheumatoid arthritis in Europe: the eumusc.net project. Ann Rheum Dis 73(5):906–908CrossRefPubMedGoogle Scholar
- 27.Henrotin Y (2009) Need for high-standard translation methodology for the dissemination of guidelines. Osteoarthritis Cartilage 17(12):1536–1538CrossRefPubMedGoogle Scholar
- 28.Patermann J, Ehlebracht-König I, Lind-Albrecht G, Genth E, Reusch A, Küffner R, Müller-Ladner U, Braun J (2016) EULAR-Empfehlungen für die Schulung von Patienten mit entzündlich-rheumatischen Gelenkerkrankungen – Übersetzung und Bewertung für Deutschland. Z Rheumatol. doi:10.1007/s00393-015-0020-zPubMedGoogle Scholar
- 29.Braun J, Robbers J, Lakomek HJ (2016) Qualität in der Medizin in Deutschland – eine Bestandsaufnahme. Z Rheumatol. doi:10.1007/s00393-015-0021-yGoogle Scholar
- 30.Braun J, Lakomek HJ, Schneider M (2016) Eckpfeiler der Qualitätssicherung in der Medizin in Deutschland – wichtige Impulse für die rheumatologische Versorgungssituation. Z Rheumatol. (in press)Google Scholar
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