Child's Nervous System

, Volume 27, Issue 11, pp 1957–1961

Web-based survey of resources for treatment and long-term follow-up for children with brain tumors in developing countries

  • Ibrahim Qaddoumi
  • Ekrem Unal
  • Blanca Diez
  • Rejin Kebudi
  • Yuri Quintana
  • Eric Bouffet
  • Guillermo Chantada
Original Paper

Abstract

Introduction

Information about pediatric survivors of brain tumors in developing countries is scant.

Purpose

In this study, we aimed to investigate the availability of resources for treatment and long-term follow-up of children with central nervous system tumors in developing countries.

Materials and methods

A web-based questionnaire on available services and follow-up of brain tumor survivors was posted at www.cure4kids.org, and registered users were invited to participate.

Results

A total of 140 evaluable responses from developing countries (n = 103) and high-income countries (n = 37) were obtained. There was a significant correlation between gross national income and the availability of services for treatment and follow-up and between patient load and the availability of some services.

Conclusion

The resources for treatment and long-term follow-up of children with brain tumors need to be improved in developing countries.

Keywords

Children CNS tumors Developing countries Late effects 

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Copyright information

© Springer-Verlag 2011

Authors and Affiliations

  • Ibrahim Qaddoumi
    • 1
  • Ekrem Unal
    • 2
  • Blanca Diez
    • 3
  • Rejin Kebudi
    • 4
  • Yuri Quintana
    • 5
  • Eric Bouffet
    • 6
  • Guillermo Chantada
    • 7
  1. 1.Division of Neuro-Oncology, Department of OncologySt. Jude Children’s Research HospitalMemphisUSA
  2. 2.Division of Pediatric Hematology and Oncology, Department of Pediatrics, Faculty of MedicineErciyes UniversityKayseriTurkey
  3. 3.Department of Neuro-OncologyInstitute of Neurological Research Dr Raul Carrea (FLENI)Buenos AiresArgentina
  4. 4.Department of Pediatric Hematology and Oncology, Cerrahpasa Medical Faculty, Oncology InstituteIstanbul UniversityIstanbulTurkey
  5. 5.International Outreach ProgramSt. Jude Children’s Research HospitalMemphisUSA
  6. 6.Division of Hematology and OncologyThe Hospital for Sick Children, University of TorontoTorontoCanada
  7. 7.Department of Pediatric Hematology and OncologyHospital JP GarrahanBuenos AiresArgentina

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