Family caregivers and outcome of people with schizophrenia in rural China: 14-year follow-up study

  • Mao-Sheng Ran
  • Cheryl H. K. Chui
  • Irene Yin-Ling Wong
  • Wen-Jun Mao
  • Fu-Rong Lin
  • Bo Liu
  • Cecilia Lai-Wan Chan
Original Paper
First Online:
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Accepted:

Abstract

Objective

This study examined the differences in 14-year outcomes of persons with schizophrenia with and without family caregiver(s) in a rural community in China.

Methods

All participants with schizophrenia (n = 510) aged 15 years and older were identified in a 1994 epidemiological investigation of 123,572 people and followed up in 2004 and 2008 in Xinjin County, Chengdu, China.

Results

Individuals without family caregiver in 1994 had significantly higher rate of homelessness (23.8 %) and lower rate of survival (47.5 %) in 2008 than those with family caregivers (5.1 and 70.9 %). Compared with individuals with family caregivers, those without family caregivers were more likely to be male, live alone, have fewer family members, lower family economic status, lower rates of marriage and complete remission, higher mean scores on PANSS and lower mean score on GAF in 2008. The predictors of participants without family caregiver in 2008 included having a small number of family members at baseline and being male.

Conclusions

The absence of a family caregiver is a predictive factor of poorer long-term outcome of persons with schizophrenia in the rural community. The critical role of family caregiving should be incorporated in the planning and delivering of mental health policies and community-based mental health services.

Keywords

Family caregiver Schizophrenia Outcome Predictive factors China 
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Notes

Acknowledgments

The authors thank the Xinjin Mental Hospital and the Chengdu Mental Health Center for collaboration and data collection.

Compliance with ethical standards

Conflict of interest

None.

Funding

The 1994 Chengdu study was supported by a grant from the China Medical Board in New York (CMB, 92-557; MZ Xiang, PI). This study was supported in part by Global Research Initiative Program from National Institutes of Health (NIH, 1R01 TW007260-01; Ran MS, PI) and American Foundation for Suicide Prevention (AFSP; Ran MS, PI).

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Copyright information

© Springer-Verlag Berlin Heidelberg 2016

Authors and Affiliations

  • Mao-Sheng Ran
    • 1
  • Cheryl H. K. Chui
    • 1
  • Irene Yin-Ling Wong
    • 2
  • Wen-Jun Mao
    • 3
  • Fu-Rong Lin
    • 4
  • Bo Liu
    • 5
  • Cecilia Lai-Wan Chan
    • 1
  1. 1.Department of Social Work and Social AdministrationUniversity of Hong KongHong KongChina
  2. 2.School of Social Policy and PracticeUniversity of PennsylvaniaPhiladelphiaUSA
  3. 3.Chengdu Mental Health CenterChengduChina
  4. 4.Xinjin Mental HospitalXinjinChina
  5. 5.Jingzhou Mental Health CenterJingzhouChina

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