Perceived need for mental health care and barriers to care in the Netherlands and Australia
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- Prins, M., Meadows, G., Bobevski, I. et al. Soc Psychiatry Psychiatr Epidemiol (2011) 46: 1033. doi:10.1007/s00127-010-0266-3
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This study of Australian and Dutch people with anxiety or depressive disorder aims to examine people’s perceived needs and barriers to care, and to identify possible similarities and differences.
Data from the Australian National Survey of Mental Health and Well-Being and the Netherlands Study of Depression and Anxiety were combined into one data set. The Perceived Need for Care Questionnaire was taken in both studies. Logistic regression analyses were performed to check if similarities or differences between Australia and the Netherlands could be observed.
In both countries, a large proportion had unfulfilled needs and self-reliance was the most frequently named barrier to receive care. People from the Australian sample (N = 372) were more likely to perceive a need for medication (OR 1.8; 95% CI 1.3–2.5), counselling (OR 1.4; 95% CI 1.0–2.0) and practical support (OR 1.8; 95% CI 1.2–2.7), and people’s overall needs in Australia were more often fully met compared with those of the Dutch sample (N = 610). Australians were more often pessimistic about the helpfulness of medication (OR 3.8; 95% CI 1.4–10.7) and skills training (OR 3.0; 95% CI 1.1–8.2) and reported more often financial barriers for not having received (enough) information (OR 2.4; 95% CI 1.1–5.5) or counselling (OR 5.9; 95% CI 2.9–11.9).
In both countries, the vast majority of mental health care needs are not fulfilled. Solutions could be found in improving professionals’ skills or better collaboration. Possible explanations for the found differences in perceived need and barriers to care are discussed; these illustrate the value of examining perceived need across nations and suggest substantial commonalities of experience across the two countries.
KeywordsMental disorders International comparison Mental health surveys Anxiety Depression
Depressive and anxiety disorders are the most common and disabling mental health problems in modern society. In the Netherlands, 7.6 and 12.4% of the adult population suffered from depressive or anxiety disorders in the last 12 months , while in Australia these numbers were 6.6 and 5.6%, respectively . Despite the fact that effective treatments are available for depressive and anxiety disorders, the actual use of care for these common mental disorders is low and many people fail to receive treatment meeting minimal standards for adequacy, even in economically advantaged countries such as the Netherlands and Australia [2, 4, 41].
To understand why service use is so low, more knowledge should be obtained about people’s perceived needs and barriers to receive care. The European Study of the Epidemiology of Mental Disorders (ESEMeD) has recently estimated the level of unmet need for mental health care. However, in this study, need was defined as having a 12-month mental disorder which was disabling or had led to use of health services in the year prior to the interview . In our view, diagnosis and need for treatment are not the same. Perceived need and barriers to care, as measured from the patient’s perspective, have not been studied very often, except in Australia and the Netherlands [23, 24, 30]. Some earlier studies examined the perceived barriers to care for mental health problems from a physician’s [15, 28], an adolescent’s  or migrants’ point of view . One study about mental health services in Chile  differentiated between direct (lack of available services, not knowing where to go for help) and indirect (belief that problem will solve on its own, negative beliefs about helpfulness of services) barriers to care. A Canadian study  showed that perceived barriers due to acceptability were more prevalent than barriers due to accessibility and availability. A cross-national comparison study about reasons for not seeking care for a mental health problem in Canada, United States and the Netherlands  concluded that the two most frequently endorsed reasons were “I wanted to solve the problem on my own” and “I thought that the problem would get better by itself”. Comparisons with newly derived data are difficult since, in these studies, no specific instrument was used to measure barriers to care.
Meadows and colleagues  designed the Perceived Need for Care Questionnaire (PNCQ) for the Australian National Survey of Mental Health and Well-Being (NSMHWB), which is to our knowledge the first and only validated instrument that measures people’s perceptions of service needs for mental health problems and barriers to receive care. In 1997 and 2007, the Australian NSMHWB used this questionnaire in a population-wide sample. From 2004, it was also used in the Netherlands Study of Depression and Anxiety (NESDA), a longitudinal study about depressive and anxiety disorders .
What perceived needs for care do people with a current anxiety or depressive disorder have in Australia and in the Netherlands, and what similarities and differences can be observed?
If there is any perceived need for care, are people’s perceived need for care in Australia more often or less often fully met compared with people’s perceived need for care in the Netherlands?
What barriers to care do people with perceived unmet or partially met need experience, and what similarities and differences can be observed between Australia and the Netherlands?
Comparing Australia and the Netherlands
The Netherlands and Australia are both high income group countries (based on World bank 2004 criteria) and show comparable numbers with respect to gross national income (GNI) per capita, life expectancy at birth, and health expenditure per capita [42, 43]. Both countries have formulated a mental health policy that includes advocacy, promotion, prevention, treatment and rehabilitation. The care provided is demand-driven and aiming to assure the rights of people with mental disorders . Mental health is part of the primary health care system in both countries, and general practitioners (GPs) provide the bulk of medical care; they are the first point of medical contact, and act as gatekeepers to the rest of the health care system.
Apart from these similarities, the two countries have health care systems that differ and could be divided into two broad categories. The Australian health care system has many similarities with a National Health Services (NHS) system, and the Dutch health care system mainly fits criteria for a Social Security (based) Health care (SSH) system. A NHS system is funded by means of general taxation and is strongly influenced by the state, while a SSH system is funded by means of earmarked premiums, has less state influence but strong influence from health care providers and (social) insurers . A complexity of the Australian system is that the State and Federally funded systems employ different funding models and the Federal route allows co-payment. Nevertheless, as in an NHS system, the influence of Government on entitlements is strong.
For many years, the Netherlands had a fragmented system of health insurance, with compulsory social health insurance for people with an income below a certain ceiling point, and a voluntary private health insurance section for people with a higher income . From the 1 January 2006, a single statutory insurance regime was introduced, which covers all residents of the Netherlands. All residents have a legal obligation to take out health insurance, for which they have to pay, and everybody has the option of taking out supplementary insurance . As a result of the reform, price competition between health insurers became very fierce, there was more transparency for consumers, and 20% of all consumers changed to another health insurer . As measured in 2005 and 2008, approximately 99% of Dutch citizens had taken out their (basic) health insurance, which covers GP care, primary care psychological care, and more specialized services (for which a referral from a GP is needed) [8, 26].
Though the Australian health system is built on the British model, it has evolved into something of a hybrid system. An Australian federal insurance provision is known as Medicare . Medicare provides tax funded health care insurance which covers much of the cost of care to the user. Most medical services are provided by private GPs and specialists on a fee for service basis that is indemnified by Medicare. However, the funded items have been predominantly medical ones. So, while GPs and psychiatrists have provided psychological treatments (which were covered), care from psychologists through this route was limited. Services funded through Australian states are free to the user—in mental health these typically have developed with continuity from psychiatric hospital establishments now with considerable community care activity, and a concentration on care of people with low prevalence disorders of high impact such as typically schizophrenia and bipolar disorder. Some funding for psychological services has been made progressively available with capped funding introduced for some services from 2002, and then more free availability of fee for service reimbursement since late 2006. Next to Medicare, Australia has also a significant private sector, with around 30% of the population having a private health insurance .
While keeping this information about Australia and the Netherlands in mind, we aim to examine people’s perceived needs and barriers to care, and to identify similarities and differences in the two countries.
This study involved secondary data analyses of two national surveys: NESDA  and the Australian NSMHWB . Both NESDA and NSMHWB used comparable methodology for the assessment of mental disorders, general disability, and comparable questions were asked about service use and perceived need for mental health treatment. The data were collected around the same time.
The Dutch study
NESDA is a multisite naturalistic cohort study following 2,981 participants aged 18 through 65 years over 8 years. This sample consists of 1,701 persons with a current (6-month recency) diagnosis of depressive and/or anxiety disorder (except for obsessive compulsive disorder and post-traumatic stress disorder), 907 persons with lifetime diagnoses or at risk because of a family history or subthreshold symptoms, and 373 healthy controls . The survey aims to examine the course of depressive and anxiety disorders and their combined presence. For the current study, we did not consider respondents recruited through specialized mental care settings, but used the primary care sample (i.e., the participants who were recruited through general practices). People were selected via a three-stage screening procedure between 2004 and 2007.
First, patients who attended their GP in the last 4 months, irrespective of the reason for consultation, were sent a screening questionnaire containing the Kessler-10 (K-10), and five additional questions asking for the presence (yes/no) of anxiety symptoms to measure the presence of depressive or anxiety disorders . Second, patients with a K-10 score of 20 or higher or a positive score on any of the additional anxiety questions were interviewed by phone with the short form of the Composite Interview Diagnostic Instrument (CIDI). Third, patients who fulfilled the CIDI short-form criteria for a current depressive or anxiety disorder were invited for a baseline assessment, including a full CIDI (version 2.1) interview, conducted by trained clinical research staff. Ultimately, 743 patients fulfilled CIDI and DSM-IV criteria for a current depressive [major depressive disorder (MDD), dysthymia] or anxiety disorder [generalized anxiety disorder, social phobia, panic disorder, agoraphobia]. Patients with a primary diagnosis of psychotic disorder, bipolar disorder, obsessive compulsive disorder, post-traumatic stress disorder or severe addiction disorder were excluded since the course trajectory can be strongly affected by these disorders. A second exclusion criterion of NESDA was lack of fluency in Dutch since language problems would harm the validity and reliability of collected data. Of the 23,750 persons who were sent a screening questionnaire, 10,706 (45%) returned it. Women and older people were more likely to return the screener and participate in NESDA, but there were no differences in psychopathology between responders and non-responders [29, 39]. Nearly half (4,592) of the screeners returned were screen positive and the individuals concerned were interviewed by phone. Since 1,172 persons refused and 425 could not be contacted anymore, finally 2,995 persons were actually interviewed by phone. Of the 1,162 phone screen positives, 264 refused to participate in NESDA. Further details about the recruitment flow of NESDA respondents in the primary care sample can be found in Penninx et al. .
The Australian survey
The NSMHWB was commissioned by the Department of Health and Ageing and carried out by the Australian Bureau of Statistics (ABS) in 2007. Respondents were selected at random from a stratified, multistage area probability sample of private dwellings . Data were collected on the person level and the household level, and (replicate) weights, based on age and other characteristics, were used to account for selection bias . 14,805 persons aged 16–85 years who were usual residents of private dwellings across Australia were invited to complete a personal interview. Of these, 8,841 participated, representing a 60% response rate. Of the non-responses, about 88% refused (including 61% complete refusals and 27% were some information provided at household level) and 12% provided incomplete information or were non-contacts. A follow-up short-form interview was taken among non-responders in two metropolitan areas, which indicated the impact of non-response to be small at the aggregated level . Participation was voluntary and not remunerated, and those who were not fluent in English were excluded. The NSMHWB collected data on the lifetime and 12-month prevalence of mental disorders, the disability associated with these disorders and what services, if any, people use . The World Mental Health Survey Initiative version of the World Health Organization (WHO) CIDI 3.0 version was used at the baseline interview to produce diagnostic information on depressive, anxiety, and substance use disorders according to DSM-IV and ICD-10. Interviews were carried out by ABS interviewers with extensive prior experience in conducting household surveys, and CIDI interviewers had followed the official WMH-CIDI training program .
Health service use and perceived needs
If people reported to have a perceived unmet need or partially met need, they were asked about the reason(s) for not receiving (enough of) this specific service. Possible barriers to care were self-reliance (I’d rather solve it myself), pessimism (I thought it would not help), ignorance (I did not know where to get help), stigma (I was afraid of what others would think of me), finance (I could not afford the money), non-response (I asked for it but did not get any help), and alternative provision (I got help in another manner). The same questions were used in both Dutch and Australian studies.
In Australia, the WMH-CIDI version 3.0 was used whereas in the Netherlands an earlier CIDI version 2.1 was used. The CIDI version 3.0 has a number of modifications from the CIDI 2.1 with the goal to improve problems with underreporting in the CIDI 2.1 . Based on earlier studies, it seemed that CIDI 2.1 respondents quickly learn the logic of the stem-branch structure after a few sections and recognize that they can shorten the interview if they say no to the stem questions. Therefore, version 3.0 had included a screener in the beginning of the interview to alleviate the effects of learned responses . Furthermore, in the Australian survey, respondents had to meet the CIDI 3.0 criteria for lifetime disorder before they were asked a subset of the diagnostic questions for 12-month (or less) recency. Therefore, the threshold for a diagnosis of 12 months (or less) would be somewhat lower with the CIDI 3.0 than with the CIDI 2.1. Studies that compared separately each of the CIDI versions 2.1 and 3.0 with the Structured Clinical Interview for DSM-IV (SCID) showed generally good individual level CIDI-SCID concordance for lifetime prevalence estimates of most disorders [5, 14]. The CIDI instrument has shown to be a valid and reliable instrument to detect depressive and anxiety disorders according to DSM-IV criteria.
Since both surveys have collected a wide range of sociodemographic and clinical status data, we included age, gender, education level, type of diagnosis and disability as covariates in order to control for any differences within and between the two countries. Both surveys used the World Health Organization Disability Assessment Schedule (WHODAS) to assess general disability. NESDA used the WHODAS-II version that consists of 36 Likert formatted questions , while the NSMHWB used a shortened 12-item version . The total scores of both WHODAS versions could range from 0 (no disability) to 100 (maximal impairment). Final WHODAS scores in NESDA could be calculated using two SPSS syntax versions (available through the WHO)—the 36 version if the person had a job, and the 32 version if people did not have a job (and work items were excluded). This latter version was used for the current study since the NSMHWB did not include items about work in their WHODAS total score.
Combining the two data sets
A model-based approach was used to compare the NSMHWB and NESDA data, and a pooled data set was created. Notwithstanding the methodological differences, these two national surveys are the best available recourses to study perceived need for care and barriers to care in people with anxiety and depressive disorders in the two countries.
First, descriptive statistics were used to outline the sociodemographic and clinical characteristics of the two selected samples. To compare the two samples on categorical data, cross-tabs with Pearson–Chi-square were used. Since the WHODAS and K-10 scores were not normally distributed, the non-parametric Mann–Whitney U test was used to compare the two countries.
In order to test the first research question, binary logistic regression analysis was performed on the total sample (N = 982) to compare people with any need for care (see light gray boxes in Fig. 2) with those who had no need for care, with country (Australia vs. the Netherlands) as the independent variable. Age, gender, education level, type of disorder and disability score (WHODAS) were added to the model as covariates. This analysis was also performed separately for each of the five needs for care (information, medication, counselling, practical support, and skills training).
To test the second research question, another binary logistic regression analysis was performed only on those people with any perceived need for care (N = 803) to compare people with a fully met need with those with partially or unmet need for care (see dark gray boxes in Fig. 2), with the same independent variable (country) and covariates. Again, this analysis was also performed separately for each of the five need categories named above.
Finally, in order to test the third research question, binary logistic regression analyses were performed on only those people with a partially met or unmet need to investigate whether each of the seven perceived barriers to care was different between the two countries. Again, the same control variables were used here. All analyses were performed using SPSS for Windows version 16.0 and P values were considered significant if ≤0.05.
Comparisons of sociodemographic and clinical characteristics in the two samples
The Netherlands (N = 610)
Australia (N = 372)
Age categories (years)b (%)
Education levelb (%)
Anxiety disordersa (%)
Generalized anxiety disorder
Affective disordersa (%)
Major depressive disorder
Type of disorder (%)
Depressive disorder(s) only
Anxiety disorder(s) only
Both depressive and anxiety disorders
The Netherlands (N = 610)
Australia (N = 372)
In both countries, two-thirds had used services for a mental health problem (64.1% in Neth and 65.3% in Aus). In the Netherlands, 22.6% had only seen a GP for their mental health problems in the past 6 months, while in Australia 20.7% had seen a GP only in the past 12 months. Nearly the same part of both samples had seen a GP and a mental health professional for their mental health problem (3.6% in Neth and 4.0% in Aus). Since we did not have information on the same time frames, real comparisons could not be made, but it seemed that service use was reported as about the same in the two countries although with different timeframes.
Perceived need: any need versus no need
Binary logistic regression analysis: country (ref. category is the Netherlands) influencing any need for care (ref. category is no need for care), controlling for age, sex, education level, type of disorder and disability
The Netherlands, N (%)
Australia, N (%)
Any need (vs. no need)
Perceived need: fully met need versus partially met need and unmet need
Binary logistic regression analysis: country (ref. category is the Netherlands) influencing fully met need for care (ref. category is partially met need and unmet need), controlling for age, sex, education level, type of disorder and disability in patients with any need for care
The Netherlands, N (%)
Australia, N (%)
Fully met need (vs. partially and unmet need)
Occurrence (%) of perceived barriers to care in patients with partially or unmet needs for care in the Netherlands (N = 387) and Australia (N = 198)
Binary logistic regression analysis: country (ref. category is the Netherlands) influencing barriers to care [ref. category is no (not perceived as a barrier)], controlling for age, sex, education level, type of disorder and disability in patients with partially or unmet needs for care
Perceived need for treatment
Results of this comparison study between Australia and the Netherlands show that the extent to which people with anxiety or depressive disorder perceive a need for treatment is quite similar. Need for counselling and information is most frequently expressed in both countries, and the majority of people have unfulfilled care needs. This reveals that perceived needs of people with anxiety or depressive disorder are generally high and many needs stay partially met or unmet, which makes in worthwhile to further explore options to better reach patients’ needs.
However, people with anxiety or depressive disorder in Australia more often expressed any perceived need for medication, counselling and practical support as compared to Dutch people. Further, Australian people have their medication, counselling and skills training needs more often fully met. So, it seems that people in Australia seek and receive help more frequently for common mental disorders than their counterparts in the Netherlands, and more often feel to have received enough of it, especially for medication, counselling and skills training. Perhaps Australians have more knowledge about possible services or have better access to care. A literature review describes multiple “mental health literacy” initiatives in Australia but none in the Netherlands . It might also be the case that Dutch people have a more critical attitude towards or higher expectation of mental health services available in the Netherlands, since that seemed the case in an earlier national comparison study  and in cancer patients .
Barriers to treatment
With regard to the barriers, both countries had similar percentages on self-reliance as an important reason for not receiving care, which was found before . This might contribute to longer delays between onset of a mental disorder and initial contact with a (mental) health professional. (Online) Self-help services are freely available nowadays [27, 37], and might be used instead of the more “real-life” services by those who choose to deal with their mental illness alone .
There were also significant differences between perceived barriers to receive care in Australia and the Netherlands. Firstly, Australian people reported more financial barriers to receive information and counselling for their mental problems compared with the Dutch people, where none of the respondents had reported financial barriers for receiving medication. A recent survey of chronically ill patients (incl. depression) in Australia, Canada, France, Germany, the Netherlands, New Zealand, UK and the US found that Dutch patients were most protected against out-of-pocket costs, while Australia ranked in the middle . So probably, people in Australia more often have to pay (extra) for mental health services while in the Netherlands the insurance system covers most, especially in case of medication and counselling. Still, Australians have most of their perceived needs more often fully met than the Dutch have. So, lack of finance might be a problem in some specific groups in Australia, but it does not prevent others of perceiving their needs being fully met.
Furthermore, Australian people were more likely to see stigma as a barrier to receive skills training and were more pessimistic about the helpfulness of medication and skill training when compared with the Dutch people. The Dutch, on the other hand, reported more often to see alternatives for their counselling needs. Possible explanations for these findings could be found in subtle national cultural differences. Hoftstede  studied cultural differences of people from over 50 countries around the world and found that people in Australia and the Netherlands have very similar attitudes about “power distance” (social inequality) and “individualism” (vs. collectivism). However, the countries differed markedly on the dimension “masculinity” (vs. femininity). The Netherlands were among the three most “feminine” countries, meaning that both men and women are supposed to be modest, tender, concerned with quality of life, and social gender roles overlap. Australia scored relatively high on masculinity, which means that social gender roles distinct more clearly and men are supposed to be more assertive, tough and focused on success than women . Feelings of shame (stigma) and pessimism about treatment may fit the more “tough” (male) values of Australians while seeing alternatives may fit the more “tender” (female) values of the Dutch.
Now that we know what barriers prevent people to seek help for their anxiety or depressive symptoms, we should look for possible ways to overcome these barriers to care. Initiatives that aim to educate individuals about anxiety and depression, different treatment options and their effectiveness could be helpful. GPs could play a crucial role here.
Strengths and limitations
One important limitation is that the two studies used different ways for recruiting respondents, which should be kept in mind when interpreting the results. The use of different versions of the CIDI is also a limitation that should be mentioned. It is likely that people in the Australian sample had a slightly higher chance of having a diagnosis according to the WMH-CIDI because this latter CIDI version had a modified question flow, intended to promote episode recall and reduce opportunities to purposively influence the interview duration with strategies that would lead to false negatives [20, 38], and because respondents were only assessed for the presence of some 6-month symptoms of the disorder once they had met lifetime criteria for the disorder. Service use was assessed with different timeframes in the two surveys, with a longer timeframe in Australia and this cannot be excluded as a source of bias possibly making a contribution to the higher levels of need found in Australia. Consideration of recall bias effects would mean however that this effect is likely to be somewhat less than the proportional timeframe differences. For future work where cross-national comparison is a primary aim standardization of timeframes would be worthwhile. To overcome some of these limitations, we have made similar respondent selections based on certain CIDI diagnoses, 6-month recency and K-10 scores of 20 or higher, which increase comparability of respondents of both studies. Further, it could be that non-responders experienced greater or different barriers to care compared with responders, which might have influenced the results in both countries. This also counts for individuals with other diagnoses. Finally, we have no information about other perceived barriers such as time constrains, lack of trust in health care providers and accessibility. The most important strength is the use of the PNCQ in both studies, giving us the largest data set ever so far collected containing comparable information about perceived needs and barriers to care of people suffering from specific anxiety and depressive disorders and for the first time enabling some international comparisons.
The findings from this study suggest that, whatever the health care system characteristics, in both countries the vast majority of mental health care needs of people with common mental disorders are not fulfilled. Self-reliance and pessimism are the most important reasons for not having received (enough of) a certain service. So solutions for this problem should not be found in refinement of the organizational or financial arrangements, but for example in improvements in GP skills to provide counselling themselves or refer to other mental health care professionals or self-help-methods. At the same time, initiatives to inform and encourage people to seek help via their GP in case of anxiety or depressive symptoms might increase the amount of well-informed choices to either use mental health care services or not. A collaborative care model for treatment for anxiety and depression in the primary care setting could be helpful as well. The combination of allied health professionals, educational tools and follow-up sessions to monitor medication and cognitive behaviour therapy has been shown effective before [10, 17, 32]. Notwithstanding the differences in perceived barriers to care, Australian patients with anxiety or depressive disorder more often perceive their needs as being fully met than Dutch patients do. Further research is needed to unravel the exact mechanisms behind this.
The infrastructure for the NESDA study (http://www.nesda.nl) is funded through the Geestkracht program of the Netherlands Organisation for Health Research and Development (ZonMw, grant number 10-000-1002) and is supported by participating universities and mental health care organizations [VU University Medical Center, GGZ inGeest, Arkin, Leiden University Medical Center, GGZ Rivierduinen, University Medical Center Groningen, Lentis, GGZ Friesland, GGZ Drenthe, Scientific Institute for Quality of Healthcare (IQ healthcare), Netherlands Institute for Health Services Research (NIVEL) and Netherlands Institute of Mental Health and Addiction (Trimbos)]. The 2007 NSMHWB was funded by the Australian Government Department of Health and Ageing, and conducted by the Australian Bureau of Statistics.
All authors would like to thank all those who participated in both studies and declare to have no conflict of interests.
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