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Needs for care of patients with schizophrenia and the consequences for their informal caregivers

Results from the EPSILON multi centre study on schizophrenia
  • Karin Meijer
  • Aart Schene
  • Maarten Koeter
  • Helle Charlotte Knudsen
  • Thomas Becker
  • Graham Thornicroft
  • José Luis Vázquez-Barquero
  • Michele Tansella
ORIGINAL PAPER

Abstract.

Background:

Schizophrenia as a chronic mental disorder not only has far-reaching consequences for patients, but also for their family members or other informal caregivers. In this study, we investigated whether needs for care of patients with schizophrenia are related to (negative) consequences for their informal caregivers.

Method:

A total of 287 patients with schizophrenia and their informal caregivers participated in the EPSILON study of schizophrenia in five European countries. Caregiver consequences were measured by the Involvement Evaluation Questionnaire (IEQ) and needs for care by the Camberwell Assessment of Need (CAN).

Results:

Total number of needs for care as well as specific areas of needs for care of patients appeared to be only weak predictors of caregiver consequences in terms of explained variance.

Conclusion:

Subjective needs for care as measured by the CAN are not a good indicator for consequences experienced by the informal care system of patients with schizophrenia.

Key words

schizophrenia needs for care caregiver consequences family burden 

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Copyright information

© Steinkopff Verlag 2004

Authors and Affiliations

  • Karin Meijer
    • 1
  • Aart Schene
    • 1
  • Maarten Koeter
    • 1
  • Helle Charlotte Knudsen
    • 2
  • Thomas Becker
    • 3
  • Graham Thornicroft
    • 4
  • José Luis Vázquez-Barquero
    • 5
  • Michele Tansella
    • 6
  1. 1.Dept. of PsychiatryAcademic Medical Centre Rm. A3.254DE AmsterdamThe Netherlands
  2. 2.Psychiatric Centre NorthNæstvedDenmark
  3. 3.Dept. of PsychiatryUniversity of LeipzigLeipzigGermany
  4. 4.Dept. of Health Services Research, Institute of PsychiatryKing’s College LondonLondonUK
  5. 5.Clinical and Social Psychiatry Research UnitUniversity Hospital ‘Marqués de Valdecilla’SantanderSpain
  6. 6.Dept. of Medicine and Public Health, Section of PsychiatryUniversity of VeronaVeronaItaly

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