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International Journal of Public Health

, Volume 59, Issue 2, pp 373–379 | Cite as

“I can’t do this, it’s too much”: building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers

  • Carla TreloarEmail author
  • Rebecca Gray
  • Loren Brener
  • Clair Jackson
  • Veronica Saunders
  • Priscilla Johnson
  • Magdalena Harris
  • Phyllis Butow
  • Christy Newman
Original Article

Abstract

Objectives

Social inclusion theory has been used to understand how people at the margins of society engage with service provision. The aim of this paper was to explore the cancer care experiences of Aboriginal people in NSW using a social inclusion lens.

Methods

Qualitative interviews were conducted with 22 Aboriginal people with cancer, 18 carers of Aboriginal people and 16 health care workers.

Results

Participants’ narratives described experiences that could be considered to be situational factors in social inclusion such as difficulties in managing the practical and logistic aspects of accessing cancer care. Three factors were identified as processes of social inclusion that tied these experiences together including socio-economic security, trust (or mistrust arising from historic and current experience of discrimination), and difficulties in knowing the system of cancer treatment.

Conclusions

These three factors may act as barriers to the social inclusion of Aboriginal people in cancer treatment. This challenges the cancer care system to work to acknowledge these forces and create practical and symbolic responses, in partnership with Aboriginal people, communities and health organisations.

Keywords

Australia Aborigine Cancer Treatment Diagnosis Trust Socio economic security 

Notes

Acknowledgments

We express our gratitude to the services that supported recruitment of participants and to participants for sharing their stories with us. This research was conducted within a larger project funded by a NHMRC Health Services Research Grant (ID 440202). We thank the rest of the APOCC study team, including from the Cancer Council NSW, Professor Dianne O’Connell, Dr Rajah Supramaniam, Ms Jennifer Rodger and Ms Kristy Weir, and from The University of Sydney, Professor Bruce Armstrong and Dr Anthony Dillon. Other members of the APOCC Advisory Committee include Ms Liz O‘Sullivan, Professor Ian Olver, Dr Jenny Hunt and Mr Michael Langford.

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Copyright information

© Swiss School of Public Health 2013

Authors and Affiliations

  • Carla Treloar
    • 1
    Email author
  • Rebecca Gray
    • 1
  • Loren Brener
    • 1
  • Clair Jackson
    • 1
  • Veronica Saunders
    • 1
    • 3
  • Priscilla Johnson
    • 1
    • 2
  • Magdalena Harris
    • 1
    • 4
  • Phyllis Butow
    • 5
  • Christy Newman
    • 1
  1. 1.National Centre in HIV Social ResearchUniversity of New South WalesSydneyAustralia
  2. 2.Aboriginal Mental Health UnitCamperdown Community Health CentreSydneyAustralia
  3. 3.Cancer Council NSWKings CrossAustralia
  4. 4.The Centre for Research on Drugs and Health BehaviourLondon School of Hygiene and Tropical MedicineLondonUK
  5. 5.Centre for Medical Psychology and Evidence-based Decision-MakingThe University of SydneySydneyAustralia

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