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Canadian Journal of Public Health

, Volume 91, Issue 5, pp 353–356 | Cite as

Social Planning in Canada for Families with HIV Infection

  • Robyn L. Salter GoldieEmail author
  • Dale J. De Matteo
  • Lilian M. Wells
  • Gloria R. Aykroyd
  • Susan M. King
Article
  • 1 Downloads

Abstract

Parents living with HIV and their children face complex medical and social problems. Whether the children are infected or not, they are all affected by the presence of HIV in a parent. The purpose of this article is to describe the problems of families with HIV and to propose social planning measures to respond to their psychosocial needs. It is based on a multicentre study that included in-depth interviews with 110 parents representing 91 Canadian families living with HIV. The study’s findings and recommendations were reviewed by parents with HIV, social workers specializing in helping affected families, and a multidisciplinary consensus conference. This process identified six areas needing attention: stigma and disclosure; promoting and supporting family health; planning and transitions for the care of children; economic issues; cultural and immigrant issues; and education, advocacy, policy development, and research. Recommendations for action were made in each area.

Résumé

Les parents vivant avec le VIH connaissent des problèmes médicaux et sociaux complexes. Infectés ou non, les enfants ne peuvent qu’être affectés par la présence du VIH chez un parent. Notre étude répond à la demande pressante de planification sociale qui s’exprime au Canada afin de subvenir aux besoins psychosociaux de ces familles. À cet effet, des entrevues multi-sites détaillées ont été menées avec 110 parents représentant 91 familles vivant au Canada avec le VIH. Conclusions et recommandations ont ensuite été soumises à des groupes de parents vivant avec le VIH, des travailleurs sociaux spécialisés dans l’aide aux familles concernées, et à une conférence de professionnels de plusieurs disciplines visant au consensus. Ce processus de grande ampleur a permis l’identification de six grands domaines prioritaires: stigmatisation et divulgation; promotion des soins de santé dans les familles et modes de soutien appropriés; planification et transitions des soins aux enfants; problèmes économiques; immigration et questions culturelles; enfin problèmes d’éducation, de revendications, de politique sociale et de recherche. Des recommandations concrètes sont faites pour chacun de ces domaines.

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Copyright information

© The Canadian Public Health Association 2000

Authors and Affiliations

  • Robyn L. Salter Goldie
    • 1
    Email author
  • Dale J. De Matteo
    • 2
  • Lilian M. Wells
    • 3
  • Gloria R. Aykroyd
    • 4
  • Susan M. King
    • 5
    • 6
  1. 1.Department of Social WorkThe Hospital for Sick ChildrenTorontoCanada
  2. 2.HIV ProgramThe Hospital for Sick ChildrenTorontoCanada
  3. 3.Faculty of Social WorkUniversity of TorontoTorontoCanada
  4. 4.HIV Care ProgrammeSt. Joseph’s Health CentreLondonCanada
  5. 5.Department of PaediatricsThe Hospital for Sick ChildrenTorontoCanada
  6. 6.Faculty of MedicineUniversity of TorontoTorontoCanada

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