Health-related quality of life in inflammatory bowel disease
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The assessment of health-related quality of life may be an adjunct to understanding the chronic illness experience and its effects on health outcomes. In this study, we evaluated health-related quality of life of 150 patients with inflammatory bowel disease (63 ulcerative colitis, 87 Crohn's disease). We used a standardized measure, the Sickness Impact Profile, and a questionnaire we developed that elicits and prioritizes the disease-related worries and concerns of patients with IBD. Our preliminary data indicate that: (1) IBD patients experience moderate functional impairment more in the social and psychological than in the physical dimensions; (2) Crohn's disease patients report psychosocial dysfunction to a greater degree than ulcerative colitis patients; (3) IBD patients report greatest concerns about having surgery, degree of energy, and body image issues such as having an ostomy bag; and (4) functional status and patient concerns correlate better with other measures of health status and previous health care utilization than the physician's rating of disease activity. We believe that questionnaires measuring health-related quality of life (HRQOL) can be used in research and patient care to extend the clinical assessment of patients with IBD. Further work is needed to determine the role of HRQOL relative to disease activity and other physician-based assessments in predicting health outcomes.
Key wordsinflammatory bowel disease ulcerative colitis Crohn's disease health status quality of life disease concerns functional status health-related quality of life psychosocial
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- 2.Truelove SC, Witts LJ: Cortisone in ulcerative colitis. Final report on a therapeutic trial. Br Med J 2:1041–1048, 1955Google Scholar
- 3.Garrett JW, Drossman DA, Patrick DL: The assessment of quality of life in inflammatory bowel disease.In B Spilker (ed). Quality of Life Assessments in Clinical Studies. New York, Raven Press (in press).Google Scholar
- 4.Patrick DL, Elinson J: Sociomedical approaches to disease and treatment outcomes in cardiovascular care. Qual Life Cardiovasc Care 1:53–62, 1984Google Scholar
- 5.Green LW: Manual for scoring socioeconomic status for research on health behavior. Pub Hlth Rep 85:815–827, 1970Google Scholar
- 7.Dubois R: The status of health and quality of life. West Med J 125:8–9, 1976Google Scholar
- 15.Wells KB, Stewart A, Burnam A, Hays R, Daniels M, Greenfield S, Ware J, Rogers W, Berry S. Profiles of health and functioning for depressed and nondepressed adult outpatients of mental health and medical clinicians. Presented at the annual meeting of the American Psychiatric Association, Chicago, Illinois, May 1987Google Scholar