Abstract
Objectives
In Alberta, First Nations members visit Emergency Departments (EDs) at almost double the rate of non-First Nations persons. Previous publications demonstrate differences in ED experience for First Nations members, compared to the general population. The Alberta First Nations Information Governance Centre (AFNIGC), First Nations organizations, Universities, and Alberta Health Services conducted this research to better understand First Nations members’ ED experiences and expectations.
Methods
This was a participatory research project. Elders selected topics of focus through discussion with the research team, and approved our method of data collection. Sharing circles were held in February 2018 with Elders, First Nations patients, healthcare providers and health administrators from across Alberta. We analyzed data using the Western approach of thematic analysis, with review by two Indigenous team members. AFNIGC is custodian of the research data on behalf of Alberta First Nations, and approves publication of this work.
Results
Forty-six persons participated in four sharing circles lasting between one and a half and three hours. Findings included First Nations patients’ understandings of ED work, limited access to primary care services driving ED use, expectations of different treatment in ED based on race, experiences of racism, concerns about interactions with Children’s Services, healthcare avoidance, and avoiding specific hospitals. Equity approaches were identified as key to improving First Nations patients’ ED experiences.
Conclusions
Bringing First Nations perspectives to Western understandings of ED care is an important step toward identifying required improvements in the health system for better patient experiences and outcomes.
Résumé
Objectifs
Les membres des Premières Nations en Alberta consultent un médecin au service des urgences (SU) presque deux fois plus souvent que les non-membres des Premières Nations. Par ailleurs, d’après des publications antérieures, l’expérience des membres des Premières Nations au SU est différente de celle de la population en général. L’Alberta First Nations Information Governance Centre (AFNIGC), des organisations des Premières Nations, des universités et les Alberta Health Services ont donc joint leurs efforts pour entreprendre une recherche afin de mieux comprendre l’expérience des membres des Premières Nations au SU ainsi que leurs appréhensions.
Méthodes
Il s’agit d’un projet de recherche participatif. Des aînés ont choisi les sujets de discussion après échange de points de vue avec l’équipe de recherche, et ont approuvé la méthode de collecte de données. Des cercles d’échange d’opinions ont été organisés en février 2018 avec des aînés, des patients des Premières Nations, des fournisseurs de soins et des gestionnaires de services de santé de partout en Alberta. Nous avons analysé les données en utilisant l'approche occidentale de l'analyse thématique, avec examen par deux membres de l'équipe autochtone. L’AFNIGC s’est fait le consignataire des données de recherche au nom des Premières Nations de l’Alberta et a approuvé la publication du travail de recherche.
Résultats
Quarante-six personnes ont participé à quatre cercles d’échange de points de vue, dont la durée a varié d’une heure et demie à trois heures. Les résultats incluent la compréhension du travail des urgences par les patients des Premières nations, l'accès limité aux services de soins primaires qui conduit à l'utilisation des urgences, les attentes d'un traitement différent aux urgences en fonction de la race, les expériences de racisme, les préoccupations concernant les interactions avec les Services pour Enfants, l'évitement des soins de santé et le fait d'éviter certains hôpitaux. Les approches axées sur l’équité ont été jugées essentielles à l’amélioration des expériences des patients des Premières Nations aux urgences.
Conclusion
Intégrer les perspectives des Premières Nations à la compréhension occidentale des soins à l'urgence est une étape importante vers l'identification des améliorations requises dans le système de santé pour de meilleures expériences et de meilleurs résultats pour les patients.
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References
Alberta Health, AFNIGC. Trends in life expectancy over time for First Nations in Alberta. 2016. http://www.afnigc.ca/main/includes/media/pdf/fnhta/HTAFN-2016-05-31-LifeExp2.pdf. Accessed 2 Nov 2020.
Gracey M, King M. Indigenous health part 1: determinants and disease patterns. Lancet. 2009;374(9683):65.
King M, Smith A, Gracey M. Indigenous health part 2: the underlying causes of the health gap. Lancet. 2009;374(9683):76.
Allan B, Smylie J. First peoples, second class treatment: the role of racism in the health and well-being of Indigenous peoples in Canada. Toronto: Wellesley Institute; 2015.
Axelsson P, Kukutai T, Kippen R. The field of Indigenous health and the role of colonisation and history. J Popul Res. 2016;33(1):1.
Health Council of Canada. Empathy, dignity, and respect. Toronto: Health Council of Canada; 2013.
Truth and Reconciliation Commission of Canada. Honouring the truth, reconciling for the future: summary of the final report of the Truth and Reconciliation Commission of Canada. Winnipeg, Manitoba: Truth and Reconciliation Commission of Canada; 2015.
Alberta Health, AFNIGC. Top reasons for emergency department visits for First Nations in Alberta 2010–2014. Alberta Health and AFNIGC; 2016. http://www.afnigc.ca/main/includes/media/pdf/fnhta/HTAFN-2016-07-26-ED-VISITS.pdf. Accessed 3 Nov 2020.
Cameron B, Carmargo Plazas MP, Salas AS, Bourque Bearskin RL, Hungler K. Understanding inequalities in access to health care services for Aboriginal people: a call for nursing action. Adv Nurs Sci. 2014;37(3):E1.
Sari O, Sidhu N, Wohlgemuth N. Patients’ experiences with emergency care in Saskatchewan hospitals. Saskatoon: Saskatchewan Health Quality Council; 2011.
Nwankwo C. First Nations and Métis health service: literature review of First Nations and Métis’ use of the emergency department. University of Saskatchewan & Saskatoon Health Region; 2014.
Browne A, Smye VL, Rodney P, Tang SY, Mussell B, O’Neil J. Access to primary care from the perspective of Aboriginal patients at an urban emergency department. Qual Health Res. 2011;21(3):333.
Ospina M, Rowe BH, Voaklander D, Senthilselvan A, Stickland MK, King M. Emergency department visits after diagnosed chronic obstructive pulmonary disease in Aboriginal people in Alberta, Canada. CJEM. 2016;18(6):420.
Batta R, Carey R, Sasbrink-Harkema MA, Oyedokun TO, Lim HJ, Stempien J. Equality of care between First Nations and non-First Nations patients in Saskatoon emergency departments. CJEM. 2019;21(1):111.
Thomas DP, Anderson IP. Use of emergency departments by Aboriginal and Torres Strait Islander people. Emerg Med Austral. 2006;18(1):68.
Weber T, Ziegler KM, Kharbanda AB, Payne N, Birger C, Puumala S. Leaving the emergency department without complete care: disparities in American Indian children. BMC Health Serv Res. 2018;18(1):267.
Wilson S. What is an Indigenous research methodology? Can J Nat Educ. 2001;25(2):175.
Ermine W. The ethical space of engagement. Indig. Law J. 2007;6(1):193.
Hyett S, Marjerrison S, Gabel C. Improving health research among Indigenous peoples in Canada. CMAJ. 2018;190(20):E616.
Cochran P, Marshall CA, Garcia-Downing C, Kendall E, Cook D, McCubbin L, et al. Indigenous ways of knowing: implications for participatory research and community. Am J Public Health. 2008;98(1):22.
Schnarch B. Ownership, control, access, and possession (OCAP) or self-determination applied to research: a critical analysis of contemporary First Nations research and some options for First Nations communities. Ottawa: National Aboriginal Health Organization; 2005.
First Nations Information Governance Centre. 2020. OCAP. http://www.FNIGC.ca/OCAP. Accessed 2 Nov 2020.
Kovach M. Indigenous methodologies: characteristics, conversations and contexts. Toronto: University of Toronto Press Scholarly Publishing Division; 2009.
Lavallée L. Practical application of an Indigenous research framework and two qualitative Indigenous research methods: sharing circles and Anishnaabe symbol-based reflection. Int J Qual Methods. 2009;8(1):21.
Kovach M. Conversational method in Indigenous research. First Peoples Child Fam Rev. 2010;5(1):40.
Cooper S, Endacott R. Generic qualitative research: a design for qualitative research in emergency care? Emerg Med J. 2007;12:816.
Mojtaba V, Hannele T, Terese B. Content analysis and thematic analysis: implications for conducting a qualitative descriptive study. Nurs Health Sci. 2013;3:398.
Kahlke RM. Generic qualitative approaches: pitfalls and benefits of methodological mixology. Int J Qual Methods. 2014;13:37.
QSR International. NVivo qualitative data analysis software (Version 11); 2015.
Guba EG. Criteria for assessing the trustworthiness of naturalistic inquiries. Educ Technol Res Dev. 1981;29(2):75.
Shenton A. Strategies for ensuring trustworthiness in qualitative research projects. Educ Inf. 2004;22(2):63.
Ford-Gilboe M, Wathen CN, Varcoe C, Herbert C, Jackson BE, Lavoie JG, et al. How equity-oriented health care affects health: key mechanisms and implications for primary health care practice and policy. Milbank Q. 2018;96(4):635.
Burgess D, Beach MC, Saha S. Mindfulness practice: a promising approach to reducing the effects of clinician implicit bias on patients. Patient Educ Couns. 2017;100(2):372.
Burgess DJ, Warren J, Phelan S, Dovidio J, Van Ryn M. Stereotype threat and health disparities: what medical educators and future physicians need to know. Health Dispar Educ. 2010;25(Supp 2):S169.
National Collaborating Centre for Determinants of Health. Let’s talk: racism and health equity. Antigonish: National Collaborating Centre for Determinants of Health St. Francis Xavier University; 2017.
Jones CP. Confronting institutionalized racism. Phylon. 2002;1:7.
Griffith D, Mason M, Yonas M, Eng E, Jeffries V, Plihcik S, et al. Dismantling institutional racism: theory and action. Am J Community Psychol. 2007;39(3–4):381.
Czyzewski K. Colonialism as a broader social determinant of health. Int Indig Policy J. 2011;2(1):n/a.
Browne A, Varcoe C, Lavoie J, Smye V, Wong S, Krause M, et al. Enhancing health care equity with Indigenous populations: evidence-based strategies from an ethnographic study. BMC Health Serv Res. 2016;16:1.
Burns M, Monteith M, Parker L. Training away bias: the differential effects of counterstereotype training and self-regulation on stereotype activation and application. J Exp Soc Psychol. 2017;20(73):97.
Stone J, Moskowitz GB. Non-conscious bias in medical decision making: what can be done to reduce it? Med Educ. 2011;45(8):768.
Acknowledgements
We would like to acknowledge support in planning and conducting the meetings at which data were collected by Eunice Louis (Maskwacis Health Services), Toni Goodeagle (Siksika Health Services), Danika Littlechild (Maskwacis Health Services), Bonita Saddleback (formerly Maskwacis Health Services), Darcy Jagodzinsky (formerly Organization of Treaty 8 First Nations of Alberta), Kris Janvier (Organization of Treaty 8 First Nations of Alberta), Anne Bird (Yellowhead Tribal Council), Bonnie Healy (Blackfoot Confederacy), Chyloe Healy (formerly Alberta First Nations Information Governance Centre), Andy Alook (Bigstone Health), Brian Holroyd (University of Alberta and Alberta Health Services), Nicole Eshkakogan (formerly Alberta Health Services), Val Austen-Wiebe (Alberta Health Services), Kienan Williams (Alberta Health Services), Scott Fielding (formerly Alberta Health Services), as well as Elders Patsy Tina Jacobs (Stoney Nakoda Tsuut’ina Tribal Council), Dustin Twin (Organization of Treaty 8 First Nations of Alberta), and Leonard Bastien (AFNIGC).
Funding
Funding was provided by a peer-reviewed Campus Alberta Health Outcomes and Public Health Meeting Grant, and by larger contributions from Maskwacis Health Services, AFNIGC and Alberta Health Services (Strategic Clinical Networks). The funders had no role in directing research methods or reviewing results. AFNIGC has ensured compliance with the First Nations principles of Ownership, Control, Access to and Possession (OCAP®) of research data, and provides the disclaimer.
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Parts of this publication are based on data and information from the Engaging First Nations Knowledge Holders, Health Care Providers and Technicians on First Nations Members Emergency Department Experiences and Concerns Project. The analyses, conclusions, opinions and statements expressed herein, however, do not necessarily reflect the views of the Alberta First Nations Information Governance Centre (AFNIGC) and are solely those of the author(s). Statistics reproduced from this document must be accompanied by a citation of this document, including a reference to the page on which the statistic in question appears.
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McLane, P., Bill, L. & Barnabe, C. First Nations members’ emergency department experiences in Alberta: a qualitative study. Can J Emerg Med 23, 63–74 (2021). https://doi.org/10.1007/s43678-020-00009-3
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DOI: https://doi.org/10.1007/s43678-020-00009-3