Abstract
American Indian/Alaska Native (AI/AN) communities experience high rates of several mental health (MH) difficulties (e.g., trauma, substance use, suicide) and encounter significant barriers to accessing MH care. Several barriers relate to rural residence (e.g., geographical distance to healthcare facilities, provider shortages) and cultural factors (e.g., racial discrimination, cultural misunderstandings, mistrust). Remotely delivered care via telehealth has demonstrated promise in increasing AI/AN communities’ access to MH care, but provider shortages limit scalability. Mobile MH applications (“apps”) may represent a scalable option for increasing AI/AN communities’ access to MH interventions but need to be culturally tailored to address cultural barriers to MH care. Although additional research is needed, several MH apps have demonstrated promise in addressing MH concerns (e.g., depression, anxiety). Few MH apps have been developed or evaluated for AI/AN communities, and greater attention to the development of MH apps for them is needed. Several models exist for evaluating MH apps, but they have not been applied to apps for AI/AN communities. This article provides guidance on factors to consider when developing apps for AI/AN communities, based on a review of the literature and existing apps for AI/AN communities. Some recommendations include using a bidirectional approach rooted in humility and cultural safety principles to promote mutual learning and patient-centered care. Partnering with AI/AN communities in developing MH apps is vital. These recommendations also may be valuable for those serving additional populations experiencing healthcare inequities and cultural barriers to MH care.
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References
American Psychiatric Association. (2017, Dec 19). Mental health disparities: American Indians and Alaska Natives [Pdf]. Retrieved May 7, 2023, from https://www.psychiatry.org/psychiatrists/cultural-competency/education/indigenous-patients
Andrilla, C. H. A., Patterson, D. G., Garberson, L. A., Coulthard, C., & Larson, E. H. (2018). Geographic variation in the supply of selected behavioral health providers. American Journal of Preventive Medicine, 54(6), S199–S207. https://doi.org/10.1016/j.amepre.2018.01.004
Aryana, B., Brewster, L., & Nocera, J. A. (2019). Design for mobile mental health: An exploratory review. Health and Technology, 9(4), 401–424. https://doi.org/10.1007/s12553-018-0271-1
Beals, J., Novins, D. K., Whitesell, N. R., Spicer, P., Mitchell, C. M., & Manson, S. M. (2005). Prevalence of mental disorders and utilization of mental health services in two American Indian reservation populations: Mental health disparities in a national context. The American Journal of Psychiatry, 162(9), 1723–1732. https://doi.org/10.1176/appi.ajp.162.9.1723
Bernal, G., Jiménez-Chafey, M. I., & Domenech Rodríguez, M. M. (2009). Cultural adaptation of treatments: A resource for considering culture in evidence-based practice. Professional Psychology, Research and Practice, 40(4), 361–368. https://doi.org/10.1037/a0016401
Brascoupé, S., & Waters, C. (2009). Cultural safety: Exploring the applicability of the concept of cultural safety to Aboriginal health and community wellness. Journal Aboriginal Health, 5, 6–41.
Brooke, J. (1986). System usability scale (SUS): A quick-and-dirty method of system evaluation user information. Reading, UK: Digital Equipment Co Ltd, 43, 1–7.
Brooks, E., Novins, D. K., Noe, T., Bair, B., Dailey, N., Lowe, J., Richardson, W. J. Jr., Hawthorne, K., & Shore, J. H. (2013). Reaching rural communities with culturally appropriate care: A model for adapting remote monitoring to American Indian veterans with posttraumatic stress disorder. Telemedicine Journal and e-Health, 19(4), 272–277. https://doi.org/10.1089/tmj.2012.0117
Call, K. T., McAlpine, D. D., Johnson, P. J., Beebe, T. J., McRae, J. A., & Song, Y. (2006). Barriers to care among American Indians in public health care programs. Medical Care, 44(6), 595–600. https://doi.org/10.1097/01.mlr.0000215901.37144.94
Carroll, M., & Horton, M. B. (2013). Telehealth and Indian healthcare: Moving to scale and sustainability. Telemedicine Journal and e-Health, 19(5), 377–379. https://doi.org/10.1089/tmj.2012.0296
Castro, F. G., Barrera, M. Jr., & Holleran Steiker, L. K. (2010). Issues and challenges in the design of culturally adapted evidence-based interventions. Annual Review of Clinical Psychology, 6, 213–239. https://doi.org/10.1146/annurev-clinpsy-033109-132032
Centers for Disease Control and Prevention. National Center for Injury Prevention and Control. (2021). Web-based Injury Statistics Query and Reporting System (WISQARS). [Accessed 21 Apr 2021]. https://www.cdc.gov/injury/wisqars/index.html
Chelberg, G. R., Butten, K., & Mahoney, R. (2022). Culturally safe eHealth interventions with Aboriginal and Torres Strait Islander people: Protocol for a best practice framework. JMIR Research Protocols, 11(6), e34904–e34904. https://doi.org/10.2196/34904
Collins, L. M., Murphy, S. A., & Strecher, V. (2007). The multiphase optimization strategy (MOST) and the sequential multiple assignment randomized trial (SMART): New methods for more potent eHealth interventions. American Journal of Preventive Medicine, 32(5 Suppl), S112–S118. https://doi.org/10.1016/j.amepre.2007.01.022
Cromer, K. J., Wofford, L., & Wyant, D. K. (2019). Barriers to healthcare access facing American Indian and Alaska Natives in rural America. Journal of Community Health Nursing, 36(4), 165–187. https://doi.org/10.1080/07370016.2019.1665320
Curtis, E., Jones, R., Tipene-Leach, D., Walker, C., Loring, B., Paine, S.-J., & Reid, P. (2019). Why cultural safety rather than cultural competency is required to achieve health equity: A literature review and recommended definition. International Journal for Equity in Health, 18(1), 174–174. https://doi.org/10.1186/s12939-019-1082-3
Davis, F. D. (1989). Perceived usefulness, perceived ease of use, and user acceptance of information technology. MIS Quarterly, 13(3), 319–340. https://doi.org/10.2307/249008
Day, S. C., Caloudas, A., Frosio, K., Lindsay, J., & Shore, J. H. (2023). Culturally centered implementation of video telehealth for Rural Native Veterans. Telemedicine Journal and e-Health. https://doi.org/10.1089/tmj.2022.0506.Advanceonlinepublication.10.1089/tmj.2022.0506
Eyles, H., Jull, A., Dobson, R., Firestone, R., Whittaker, R., Te Morenga, L., Goodwin, D., & Mhurchu, C. N. (2016). Co-design of mHealth delivered interventions: A systematic review to assess key methods and processes. Current Nutrition Reports, 5(3), 160–167. https://doi.org/10.1007/s13668-016-0165-7
Firth, J., Torous, J., Nicholas, J., Carney, R., Pratap, A., Rosenbaum, S., & Sarris, J. (2017a). The efficacy of smartphone-based mental health interventions for depressive symptoms: A meta-analysis of randomized controlled trials. World Psychiatry, 16(3), 287–298. https://doi.org/10.1002/wps.20472
Firth, J., Torous, J., Nicholas, J., Carney, R., Rosenbaum, S., & Sarris, J. (2017b)b. Can smartphone mental health interventions reduce symptoms of anxiety? A meta-analysis of randomized controlled trials. Journal of Affective Disorders, 218, 15–22. https://doi.org/10.1016/j.jad.2017.04.046
Gone, J. P., & Alcántara, C. (2007). Identifying effective mental health interventions for American Indians and Alaska Natives: A review of the literature. Cultural Diversity & Ethnic Minority Psychology, 13(4), 356–363. https://doi.org/10.1037/1099-9809.13.4.356
Gone, J. P., & Trimble, J. E. (2012). American Indian and Alaska Native mental health: Diverse perspectives on enduring disparities. Annual Review of Clinical Psychology, 8, 131–160. https://doi.org/10.1146/annurev-clinpsy-032511-143127
Grayshield, L., Rutherford, J. J., Salazar, S. B., Mihecoby, A. L., & Luna, L. L. (2015). Understanding and healing historical trauma: The perspectives of Native American elders. Journal of Mental Health Counseling, 37(4), 295–307. https://doi.org/10.17744/mehc.37.4.02
Griner, D., & Smith, T. B. (2006). Culturally adapted mental health intervention: A meta-analytic review. Psychotherapy (Chicago, Ill.), 43(4), 531–548. https://doi.org/10.1037/0033-3204.43.4.531
Heffernan, K. J., Chang, S., Maclean, S. T., Callegari, E. T., Garland, S. M., Reavley, N. J., Varigos, G. A., & Wark, J. D. (2016). Guidelines and recommendations for developing interactive eHealth apps for complex messaging in health promotion. JMIR mHealth and uHealth, 4(1), e14. https://doi.org/10.2196/mhealth.4423
Hensher, M., Cooper, P., Dona, S. W. A., Angeles, M. R., Nguyen, D., Heynsbergh, N., Chatterton, M. L., & Peeters, A. (2021). Scoping review: Development and assessment of evaluation frameworks of mobile health apps for recommendations to consumers. Journal of the American Medical Informatics Association: JAMIA, 28(6), 1318–1329. https://doi.org/10.1093/jamia/ocab041
Henson, P., David, G., Albright, K., & Torous, J. (2019). Deriving a practical framework for the evaluation of health apps. The Lancet. Digital Health, 1(2), e52–e54. https://doi.org/10.1016/S2589-7500(19)30013-5
Hiratsuka, V. Y., Moore, L., Avey, J. P., Dirks, L. G., Beach, B. D., Dillard, D. A., & Novins, D. K. (2019). An internet-based therapeutic tool for American Indian/Alaska native adults with posttraumatic stress disorder: user testing and developmental feasibility study. JMIR Formative Research, 3(4), e13682. https://doi.org/10.2196/13682
Hobson, G. R., Caffery, L. J., Neuhaus, M., & Langbecker, D. H. (2019). Mobile health for first nations populations: Systematic review. JMIR mHealth and uHealth, 7(10), e14877–e14877. https://doi.org/10.2196/14877
Holeman, I., & Kane, D. (2020). Human-centered design for global health equity. Information Technology for Development, 26(3), 477–505.
Huey, S. J. Jr, & Polo, A. J. (2008). Evidence-based psychosocial treatments for ethnic minority youth. Journal of Clinical Child and Adolescent Psychology 53, 37(1), 262–301. https://doi.org/10.1080/15374410701820174
Jones, L., Jacklin, K., & O’Connell, M. E. (2017). Development and use of health-related technologies in indigenous communities: Critical review. Journal of Medical Internet Research, 19(7), e256–e256. https://doi.org/10.2196/jmir.7520
Kathawalla, U., Nguyen-Feng, V., Archibald, E., Owen, J., & Street, A. (2021, July). Framework for developing and evaluating mobile mental health apps: Proposing cultural sensitivity components [Poster Abstract]. 2021 American Psychological Association Annual Conference (Virtual).
King, W. R., & He, J. (2006). A meta-analysis of the technology acceptance model. Information & Management, 43(6), 740–755. https://doi.org/10.1016/j.im.2006.05.003
Kruse, C. S., Bouffard, S., Dougherty, M., & Parro, J. S. (2016). Telemedicine use in rural Native American communities in the era of the ACA: A systematic literature review. Journal of Medical Systems, 40(6), 145. https://doi.org/10.1007/s10916-016-0503-8
Lagan, S., Aquino, P., Emerson, M. R., Fortuna, K., Walker, R., & Torous, J. (2020). Actionable health app evaluation: Translating expert frameworks into objective metrics. NPJ Digital Medicine, 3(1), 100–100. https://doi.org/10.1038/s41746-020-00312-4
Lagan, S., D’Mello, R., Vaidyam, A., Bilden, R., & Torous, J. (2021b). Assessing mental health apps marketplaces with objective metrics from 29,190 data points from 278 apps. Acta Psychiatrica Scandinavica, 144(2), 201–210. https://doi.org/10.1111/acps.13306
Lagan, S., Sandler, L., & Torous, J. (2021a). Evaluating evaluation frameworks: A scoping review of frameworks for assessing health apps. British Medical Journal Open, 11(3), e047001–e047001. https://doi.org/10.1136/bmjopen-2020-047001
Lewis, J. R. (2018). The System Usability Scale: Past, present, and future. International Journal of Human-Computer Interaction, 34(7), 577–590. https://doi.org/10.1080/10447318.2018.1455307
Lustria, M. L., Noar, S. M., Cortese, J., Van Stee, S. K., Glueckauf, R. L., & Lee, J. (2013). A meta-analysis of web-delivered tailored health behavior change interventions. Journal of Health Communication, 18(9), 1039–1069. https://doi.org/10.1080/10810730.2013.768727
Maar, M. A., Beaudin, V., Yeates, K., Boesch, L., Liu, P., Madjedi, K., Perkins, N., Hua-Stewart, D., Beaudin, F., Wabano, M. J., & Tobe, S. W. (2019). Wise practices for cultural safety in electronic health research and clinical trials with indigenous people: secondary analysis of a randomized clinical trial. Journal of Medical Internet Research, 21(11), e14203. https://doi.org/10.2196/14203
Mohr, D. C., Schueller, S. M., Montague, E., Burns, M. N., & Rashidi, P. (2014). The behavioral intervention technology model: An integrated conceptual and technological framework for eHealth and mHealth interventions. Journal of Medical Internet Research, 16(6), e146. https://doi.org/10.2196/jmir.3077
National Center for Health Statistics. (2018). National Health Interview Survey, 2018 [Table A-7a. Age-adjusted percentages (with standard errors) of feelings of sadness, hopelessness, worthlessness, and that everything is an effort among adults aged 18 and over, by selected characteristics: United States, 2018]. Retrieved May 7, 2023, from https://ftp.cdc.gov/pub/Health_Statistics/NCHS/NHIS/SHS/2018_SHS_Table_A-7.pdf
Ng, M. M., Firth, J., Minen, M., & Torous, J. (2019). User engagement in mental health apps: A review of measurement, reporting, and validity. Psychiatric Services (Washington, D.C.), 70(7), 538–544. https://doi.org/10.1176/appi.ps.201800519
Noorbergen, T. J., Adam, M. T., Teubner, T., & Collins, C. E. (2021). Using co-design in mobile health system development: A qualitative study with experts in co-design and mobile health system development. JMIR mHealth and uHealth, 9(11), e27896.
Novins, D. K., Beals, J., Moore, L. A., Spicer, P., Manson, S. M., & AI-SUPERPFP Team. (2004). Use of biomedical services and traditional healing options among American Indians: Sociodemographic correlates, spirituality, and ethnic identity. Medical Care, 42(7), 670–679. https://doi.org/10.1097/01.mlr.0000129902.29132.a6
Nwosu, A., Boardman, S., Husain, M. M., & Doraiswamy, P. M. (2022). Digital therapeutics for mental health: Is attrition the Achilles heel? Frontiers in Psychiatry, 13, 900615. https://doi.org/10.3389/fpsyt.2022.900615
Office of Minority Health Resource Center. (2019, Sept 25). Mental and behavioral health - American Indians/Alaska Natives. U.S. Department of Health and Human Services. Retrieved May 7, 2023, from https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=4&lvlid=39
Okamoto, S. K., Kulis, S., Marsiglia, F. F., Steiker, L. K., & Dustman, P. (2014). A continuum of approaches toward developing culturally focused prevention interventions: From adaptation to grounding. The Journal of Primary Prevention, 35(2), 103–112. https://doi.org/10.1007/s10935-013-0334-z
Perera, C., Salamanca-Sanabria, A., Caballero-Bernal, J., Feldman, L., Hansen, M., Bird, M., Hansen, P., Dinesen, C., Wiedemann, N., & Vallières, F. (2020). No implementation without cultural adaptation: A process for culturally adapting low-intensity psychological interventions in humanitarian settings. Conflict and Health, 14, 46. https://doi.org/10.1186/s13031-020-00290-0
Ramos, G., Ponting, C., Labao, J. P., & Sobowale, K. (2021). Considerations of diversity, equity, and inclusion in mental health apps: A scoping review of evaluation frameworks. Behaviour Research and Therapy, 147, 103990. https://doi.org/10.1016/j.brat.2021.103990
Reilly, R., Stephens, J., Micklem, J., Tufanaru, C., Harfield, S., Fisher, I., Pearson, O., & Ward, J. (2020). Use and uptake of web-based therapeutic interventions amongst Indigenous populations in Australia, New Zealand, the United States of America and Canada: A scoping review. Systematic Reviews, 9(1), 1–123. https://doi.org/10.1186/s13643-020-01374-x
Roddy, M. K., Chen, P. V., Fletcher, T. L., Wassef, M., Lindsay, J. A., Cloitre, M., & Hogan, J. B. (2023). Coaching with Internet-based mental health program: Patient and coach experiences. Telemedicine Journal and e-Health. https://doi.org/10.1089/tmj.2023.0116.Advanceonlinepublication.10.1089/tmj.2023.0116
Sanders, E.B.-N., & Stappers, P. J. (2008). Co-creation and the new landscapes of design. CoDesign, 4(1), 5–18. https://doi.org/10.1080/15710880701875068
Shore, J. H. (2019). Intended and unintended consequence in the digital age of psychiatry: The interface of culture and technology in psychiatric treatments. The Psychiatric Clinics of North America, 42(4), 659–668. https://doi.org/10.1016/j.psc.2019.08.008
Shore, J., Kaufmann, L. J., Brooks, E., Bair, B., Dailey, N., Richardson, W. J. Jr., Floyd, J., Lowe, J., Nagamoto, H., Phares, R., & Manson, S. (2012). Review of American Indian veteran telemental health. Telemedicine Journal and e-Health, 18(2), 87–94. https://doi.org/10.1089/tmj.2011.0057
Shore, J. H., Brooks, E., Savin, D., Orton, H., Grigsby, J., & Manson, S. M. (2008). Acceptability of telepsychiatry in American Indians. Telemedicine Journal and e-Health, 14(5), 461–466. https://doi.org/10.1089/tmj.2007.0077
Smye, V., & Browne, A. J. (2002). ‘Cultural safety’ and the analysis of health policy affecting aboriginal people. Nurse Researcher, 9(3), 42–56. https://doi.org/10.7748/nr2002.04.9.3.42.c6188
Spanhel, K., Balci, S., Feldhahn, F., Bengel, J., Baumeister, H., & Sander, L. B. (2021). Cultural adaptation of internet- and mobile-based interventions for mental disorders: A systematic review. NPJ Digital Medicine, 4(1), 128. https://doi.org/10.1038/s41746-021-00498-1
Stenberg, P. L. (2018). The purchase of Internet subscriptions in Native American households. Telecommunications Policy, 42(1), 51–60. https://doi.org/10.1016/j.telpol.2017.08.003
Sucala, M., Ezeanochie, N. P., Cole-Lewis, H., & Turgiss, J. (2020). An iterative, interdisciplinary, collaborative framework for developing and evaluating digital behavior change interventions. Translational Behavioral Medicine, 10(6), 1538–1548. https://doi.org/10.1093/tbm/ibz109
Toombs, E., Kowatch, K. R., Dalicandro, L., McConkey, S., Hopkins, C., & Mushquash, C. J. (2021). A systematic review of electronic mental health interventions for Indigenous youth: Results and recommendations. Journal of Telemedicine and Telecare, 27(9), 539–552. https://doi.org/10.1177/1357633X19899231
Torous, J., Nicholas, J., Larsen, M. E., Firth, J., & Christensen, H. (2018). Clinical review of user engagement with mental health smartphone apps: Evidence, theory and improvements. Evidence-Based Mental Health, 21(3), 116–119. https://doi.org/10.1136/eb-2018-102891
Trinidad, S. B., Shane, A. L., Guinn, T. R., Apok, C. R., Collier, A. F., Avey, J. P., & Donovan, D. M. (2023). The cultural adaption of a sobriety support app for Alaska Native and American Indian people: Qualitative feasibility and acceptability study. JMIR Formative Research, 7, e38894–e38894. https://doi.org/10.2196/38894
United States Bureau of Indian Affairs. (2021, Jan 29). Indian entities recognized by and eligible to receive services from the United States Bureau of Indian Affairs. Retrieved May 7, 2023, from Federal Register: Indian Entities Recognized by and Eligible To Receive Services From the United States Bureau of Indian Affairs
United States Census Bureau. (2021). 2021 American community survey. Retrieved May 7, 2023, from B02010: AMERICAN INDIAN AND ALASKA ... - Census Bureau Table
United States Department of Health and Human Services Office of Minority Health (updated 2023 February 24) Profile: American Indian/Alaska Native. Retrieved May 7, 2023, from https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=3&lvlid=62
Vaghefi, I., & Tulu, B. (2019). The continued use of mobile health apps: Insights from a longitudinal study. JMIR mHealth and uHealth, 7(8), e12983. https://doi.org/10.2196/12983
Valdez, R. S. (2010). Designing culturally-informed consumer health IT: An exploration and proposed integration of contrasting methodological perspectives [Review of Designing culturally-informed consumer health IT: An exploration and proposed integration of contrasting methodological perspectives]. Proceedings of the Human Factors and Ergonomics Society Annual Meeting, 54(9), 718–722. SAGE Publications. https://doi.org/10.1177/154193121005400908
Vigil-Hayes, M., Collier, A. F., Hagemann, S., Castillo, G., Mikkelson, K., Dingman, J., Muñoz, A., Luther, J., & McLaughlin, A. (2021). Integrating cultural relevance into a behavioral mHealth intervention for native american youth. Proceedings of the ACM on Human Computer Interaction, 5(CSCW1), 165. https://doi.org/10.1145/3449239
Vigil-Hayes, M., Futterman Collier, A., Castillo, G., Blackhorse, D., Awbery, N., & Abrahim, J. P. (2019). Designing a Mobile Game That Develops Emotional Resiliency in Indian Country. Extended abstracts on Human factors in computing systems. CHI Conference, 2019, LBW2122. https://doi.org/10.1145/3290607.3312790
Warne, D., & Lajimodiere, D. (2015). American Indian health disparities: psychosocial influences: American Indian health disparities. Social and Personality Psychology Compass, 9(10), 567–579. https://doi.org/10.1111/spc3.12198
Wei, Y., Zheng, P., Deng, H., Wang, X., Li, X., & Fu, H. (2020). Design features for improving mobile health intervention user engagement: Systematic review and thematic analysis. Journal of Medical Internet Research, 22(12), e21687. https://doi.org/10.2196/21687
Westermeyer, J., Canive, J., Thuras, P., Chesness, D., & Thompson, J. (2002). Perceived barriers to VA mental health care among Upper Midwest American Indian Veterans: Description and associations. Medical Care, 40(1), I62–I71. https://doi.org/10.1097/00005650-200201001-00008
Zephier Olson, M. D., & Dombrowski, K. (2020). A systematic review of Indian boarding schools and attachment in the context of substance use studies of Native Americans. Journal of Racial and Ethnic Health Disparities, 7(1), 62–71. https://doi.org/10.1007/s40615-019-00634-4
Zhou, E. S., Ritterband, L. M., Bethea, T. N., Robles, Y. P., Heeren, T. C., & Rosenberg, L. (2022). Effect of culturally tailored, internet-delivered cognitive behavioral therapy for insomnia in Black women: A randomized clinical trial. JAMA Psychiatry, 79(6), 538–549. https://doi.org/10.1001/jamapsychiatry.2022.0653
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This work is supported by grants from the VA Office of Rural Health and Veterans Rural Health Resource Center-Salt Lake City. This work is also partially supported by the Houston VA HSR&D Center for Innovations in Quality, Effectiveness and Safety (CIN13-413) and the VA South Central Mental Illness Research, Education and Clinical Center.
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Caloudas, A.B., Frosio, K., Torous, J. et al. Mobile Mental Health Applications for American Indian and Alaska Native Communities: Review and Recommendations. J. technol. behav. sci. (2023). https://doi.org/10.1007/s41347-023-00348-9
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DOI: https://doi.org/10.1007/s41347-023-00348-9