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Ageing identities and narratives of loss: (Re)Contextualising cognitive degeneration in ‘reel’ space and ‘real’ lives

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Abstract

The ageing/aged subject across different socio-cultural, legal, economic, and medical discourses has been imagined and defined as an ‘othered’ body marked with the differences of incapacitation, loss, and decay. Cognitive impairment is considered to be a potent signifier moulding elderly lives that leave them bereft of autonomy, agency, and choice. Alzheimer’s, dementia, and Parkinson’s disease are the most commonly found progressive cognitive disabilities that incapacitate individuals mentally and physically, making them a redundant subject of care. The rupture from the state of ‘actual’ being to a ‘blurred’ existence, arising from being subjected to a state of dependency, scars the essence of their selfhood, alienating them further from the family/society. This article, through a detailed explication of the cinematic portrayal of Alzheimer’s in two films—Maine Gandhi Ko Nahin Mara (I Did Not Kill Gandhi) (2005) and Mai (Mother) (2013)—attempts to re-engage with how the age-induced disease, often correlated with insanity and incompetence, negates the embodied subjectivity of the patients. Through an alternative reading of the ‘subject bodies’, these films challenge the normative understanding of how cognitive degeneration foists a symbolic death on the ‘living’ patient thereby foregrounding the need for special assistance and inclusive treatment. The article also probes the gendered act of caregiving which gets reiterated through the films and projects the adult daughter as the primary caregiver in an integrative manner. Thus, by analysing the elderly parent–adult daughter relational exchange, the article suggests how the reality around Alzheimer’s/senile dementia gets determined for the cared-for subject and the caregiver.

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Notes

  1. Richard Rushton, The Reality of Film: Theories of Filmic Reality (Manchester University Press 2011) 5.

  2. Ibid. 8.

  3. Ibid. 10–11.

  4. Leo Braudy and Marshall Cohen, Film Theory and Criticism: Introductory Readings (Oxford University Press 2009) xvii.

  5. In films like Koshish (Effort) (1972) and Iqbal (2005).

  6. In films such as Sparsh (Touch) (1980), Fanaa (Annihilation) (2006), and Kaabil (Capable) (2017).

  7. In movies like Main Aisa Hi Hoon (I Am Like This) (2005), My Name Is Khan (2010), and Barfi (2012).

  8. Like Black (2005), and U Me Aur Hum (You Me and Us) (2008).

  9. Hilde Lindemann, ‘Second Nature and the Tragedy of Alzheimer’s’ in Lars-Christer Hydén, Hilde Lindemann, and Jens Brockmeier (eds), Beyond Loss: Dementia, Identity, Personhood (Oxford University Press 2014) 18.

  10. The term ‘embodied selfhood’ involves identities and their subsequent lifestyles arising from a collectively shared form of bodily distinctions, facilitating one in understanding how particular bodies look, act, or both in a socio-cultural context. See Paul Higgs and Chris Gilleard, Ageing, Dementia and the Social Mind (Wiley Blackwell 2017) 9.

  11. Jahnu Barua, Maine Gandhi Ko Nahin Mara (written by Jahnu Barua and Sanjay Chauhan, Curtain Call Co. and Radical Entertainment Company 2005).

  12. Mahesh Kodiyal, Mai (written by Mahesh Kodiyal and Manoj Tapadia, AMG Worldwide Entertainment, Alliance Entertainment and Rhythm D’vine Entertainment 2013).

  13. Pia C Kontos, ‘Embodied Selfhood: An Ethnographic Exploration of Alzheimer’s Disease’ in Annette Leibing and Lawrence Cohen (eds), Thinking about Dementia: Culture, Loss, and the Anthropology of Senility (Rutgers University Press 2006) 195.

  14. Adrienne Asch and Michelle Fine, ‘Introduction: Beyond Pedestals’ in Michelle Fine and Adrienne Asch (eds), Women with Disabilities: Essays in Psychology, Culture, and Politics (Temple University Press 1988) 6.

  15. Howard Brody, Stories of Sickness (2nd edn, Oxford University Press 2003) 69.

  16. Barry Reisberg (ed), Alzheimer’s Disease: The Standard Reference (Free Press 1983), cited in Andrea Fontana and Ronald W Smith, ‘Alzheimer’s Disease Victims: The “Unbecoming” of Self and the Normalization of Competence’ (1989) 32(1) Sociological Perspectives 35, 36.

  17. Gershen Kaufman, The Psychology of Shame: Theory and Treatment of Shame-Based Syndromes (Springer 1989) 7.

  18. Lars-Christer Hydén, Hilde Lindemann, and Jens Brockmeier, ‘Introduction’ in Hydén et al., Beyond Loss (n 9) 1.

  19. Julia T Wood, Who Cares?: Women, Care, and Culture (Southern Illinois University Press 1994) 17.

  20. Lawrence Cohen, No Aging in India: Alzheimer’s, the Bad Family, and Other Modern Things (University of California Press 1998) xv.

  21. Stephen G Post, ‘Respectare: moral respect for the lives of the deeply forgetful’ in Julian C Hughes, Stephen J Louw, and Steven R Sabat (eds), Dementia: Mind, Meaning, and the Person (Oxford University Press 2006) 231.

  22. Kontos, ‘Embodied Selfhood’ (n 13) 209.

  23. Fontana and Smith, ‘Alzheimer’s Disease Victims’ (n 16).

  24. Ryan Prout, ‘Critical Condition: Alzheimer’s and Identity in Carla Subirana’s Nedar (2008)’ (2012) 18(2–3) Journal of Iberian and Latin American Studies 245, 250.

  25. Maurice Merleau-Ponty, Phenomenology of Perception (Routledge 1962) 89.

  26. Nancy Chodorow, The Reproduction of Mothering: Psychoanalysis and the Sociology of Gender (University of California Press 1978); Carol Gilligan, In a Different Voice: Psychological Theory and Women’s Development (Harvard University Press 1993).

  27. Chodorow, The Reproduction of Mothering (n 26) 7.

  28. John G Bruhn and Howard M Rebach, The Sociology of Caregiving (Springer 2014) 21–22; Wood, Who Cares? (n 19) 1.

  29. Deborah L O’Connor, ‘Caring for a Memory-Impaired Spouse: A Gender-Sensitive Perspective’ (1995) 7(3) Journal of Women & Aging 25, 39–40.

  30. Silver Talkies, ‘Is Caregiving Mainly a Woman’s Job?’ (HelpAge India, 09 August 2019). https://www.helpageindia.org/is-caregiving-mainly-a-womans-job/. Accessed 21 September 2022.

  31. Nivedita Singh, ‘Amendment Bill on Welfare of Parents, Senior Citizens May Be Discussed in Winter Session’ (News18, 23 November 2021). https://www.news18.com/news/india/amendment-bill-on-welfare-of-parents-senior-citizens-may-be-discussed-in-winter-session-4476080.html. Accessed 21 September 2022.

  32. Charles R Figley (ed), Treating Compassion Fatigue (Routledge 2002).

  33. Varsha Balakrishnan, ‘Caregiver’s Burden: The Silent Stress No One Talks Of’ (Times of India, 20 January 2020). https://timesofindia.indiatimes.com/life-style/health-fitness/de-stress/caregivers-burden-the-silent-stress-no-one-talks-of/articleshow/73377444.cms. Accessed 30 October 2022.

  34. Winnie WS Mak and Rebecca YM Cheung, ‘Psychological Distress and Subjective Burden of Caregivers of People with Mental Illness: The Role of Affiliate Stigma and Face Concern’ (2012) 48 Community Mental Health Journal 270.

  35. A Harry Lesser, ‘Dementia and Personal Identity’ in Hughes et al., Dementia (n 21) 55, 58.

  36. Charles R Figley, ‘Introduction’ in Figley, Treating Compassion Fatigue (n 32) 1, 5.

  37. Paul Valent, ‘Diagnosis and Treatment of Helper Stresses, Traumas, and Illnesses’ in Figley, Treating Compassion Fatigue (n 32) 17, 20.

  38. Sarah Lamb, White Saris and Sweet Mangoes: Aging, Gender, and Body in North India (University of California Press 2000) 60.

  39. Sanjukta Dasgupta and Malashri Lal, ‘Introduction’ in Sanjukta Dasgupta and Malashri Lal (eds), The Indian Family in Transition: Reading Literary and Cultural Texts (Sage Publications 2007) 11, 12.

  40. Martina Zimmermann, The Poetics and Politics of Alzheimer’s Disease Life-Writing (Palgrave Macmillan 2017) 25.

  41. Bruhn and Rebach, The Sociology of Caregiving (n 28) 8.

  42. Zimmermann, The Poetics and Politics of Alzheimer’s Disease Life-Writing (n 40) 30.

  43. Sylvia Vatuk, ‘The Aging Woman in India: Self-Perceptions and Changing Roles’ in Alfred de Souza (ed), Women in Contemporary India and South Asia (2nd rev edn, Manohar Publications 1980) 142–163; Sarah E Lamb, Aging and the Indian Diaspora: Cosmopolitan Families in India and Abroad (Indiana University Press 2009) 32.

  44. Jyoti Shelar, ‘People Living with Dementia in India Will Triple to 11 Million by 2050, Says Report’ (Hindustan Times, 08 January 2022). https://www.hindustantimes.com/lifestyle/health/people-living-with-dementia-in-india-will-triple-to-11-million-by-2050-says-report-101641617451768.html. Accessed 22 September 2022.

  45. Lekha Subaiya and Dhananjay W Bansod, ‘Demographics of Population Ageing in India: Trends and Differentials’ (BKPAI Working Paper No 1, United Nations Population Fund (UNFPA), December 2011).

  46. Pushpendra Singh, et al., ‘Cognitive Impairment and Quality of Life among Elderly in India’ (2017) 12(4) Applied Research in Quality of Life 963.

  47. Sunilkumar S Jadenur, et al., ‘Prevalence of Cognitive Impairment among People Aged ≥ 50 Years in Rural Population of Belagavi Taluka: A Community Based Cross Sectional Study’ (2022) 13 Clinical Epidemiology and Global Health.

  48. Mental Healthcare Act 2017 s 2(s).

  49. Deepak Pihal and Jhumki Kundu, ‘Elderly Abuse a Growing Concern in India, Shows LASI’ (Down to Earth, 16 February 2021). https://www.downtoearth.org.in/news/health/elderly-abuse-a-growing-concern-in-india-shows-lasi-75554. Accessed 22 September 2022.

  50. Divya Gandhi, ‘Just a Fraction of an Estimated 5 Million Indians with Dementia and Alzheimer’s Are Diagnosed. Do We Need a New Policy to Ensure Their Well-Being?’ (Hindu, 22 November 2020). https://www.thehindu.com/sci-tech/health/just-a-fraction-of-an-estimated-5-million-indians-with-dementia-and-alzheimers-are-diagnosed-do-we-need-a-new-policy-to-ensure-their-well-being/article33147938.ece. Accessed 22 September 2022.

  51. Ranjana Diggikar, ‘Elderly Population Rising, Prone to Neurological Diseases: Experts’ (Times of India, 22 July 2016). https://timesofindia.indiatimes.com/city/aurangabad/Elderly-population-rising-prone-to-neurological-diseases-Experts/articleshow/53333051.cms. Accessed 22 September 2022.

  52. Gandhi, ‘Just a Fraction of an Estimated 5 Million Indians with Dementia and Alzheimer’s Are Diagnosed’ (n 50).

  53. Soumya Pillai, ‘A Wait That Knows No End: The Plight of Missing Alzheimer’s Patients’ Kin’ (Hindustan Times, 21 October 2018). https://www.hindustantimes.com/india-news/a-wait-that-knows-no-end-the-plight-of-missing-alzheimer-s-patients-kin/story-zPRvAqEnAZ5fjdoFefx5UO.html. Accessed 22 September 2022.

  54. Shobita Dhar, ‘Searching for Seniors’ (Times of India, 14 May 2018). https://timesofindia.indiatimes.com/india/searching-for-seniors/articleshow/64152974.cms. Accessed 22 September 2022.

  55. Om Prakash Singh, ‘Neglect and Abandonment of Persons with Dementia in India: Urgent Need for Residential and Day-Care Facilities’ (2019) 61(5) Indian Journal of Psychiatry 429.

  56. Amy Kazmin, ‘How Families in India Are Filling the Gaps in Dementia Care’ (Financial Times, 11 December 2017). https://www.ft.com/content/0226fc06-d4da-11e7-8c9a-d9c0a5c8d5c9. Accessed 22 September 2022.

  57. Alzheimer’s Disease International, World Alzheimer Report 2019: Attitudes to Dementia (Alzheimer’s Disease International 2019) 18, 117.

  58. Richard Schulz, et al., ‘Dementia Patient Suffering and Caregiver Depression’ (2008) 22(2) Alzheimer’s Disease and Associated Disorders 170; Cherie Simpson and Patricia Carter, ‘Mastery: A Comparison of Wife and Daughter Caregivers of a Person with Dementia’ (2013) 31(2) Journal of Holistic Nursing 113; Donald H Taylor Jr, et al., ‘Identifying Trajectories of Depressive Symptoms for Women Caring for Their Husbands with Dementia’ (2008) 56(2) Journal of the American Geriatrics Society 322.

  59. Mental Healthcare Act 2017 s 18(4).

  60. Gandhi, ‘Just a Fraction of an Estimated 5 Million Indians with Dementia and Alzheimer’s Are Diagnosed’ (n 50).

  61. Balakrishnan, ‘Caregiver’s Burden’ (n 33).

  62. Beth Perry, Janice E Dalton, and Margaret Edwards, ‘Family Caregivers’ Compassion Fatigue in Long-Term Facilities’ (2010) 22(4) Nursing Older People 26.

  63. Jennifer R Day, Ruth A Anderson, and Linda L Davis, ‘Compassion Fatigue in Adult Daughter Caregivers of a Parent with Dementia’ (2014) 35(10) Issues in Mental Health Nursing 796.

  64. Hannah Zeilig, ‘Dementia as a Cultural Metaphor’ (2014) 54(2) Gerontologist 258; Raquel Medina, Cinematic Representations of Alzheimer’s Disease (Palgrave Macmillan 2018) 4.

  65. ‘Bollywood Doesn’t Like Me and There Are Reasons, Says Jahnu Barua’ (Hindustan Times, 29 March 2018). https://www.hindustantimes.com/bollywood/bollywood-doesn-t-like-me-and-there-are-reasons-says-jahnu-barua/story-GguWRsriE4Sm5IFEUs4UrN.html. Accessed 22 September 2022.

  66. Priyanka Borpujari, ‘Jahnu Barua finds beauty in the mundane in his Alzheimer’s-themed short film ‘That Gusty Morning’ (Scroll.in, 31 December 2016). https://scroll.in/reel/825299/jahnu-barua-finds-beauty-in-the-mundane-in-his-alzheimers-themed-short-film-that-gusty-morning#:~:text=%E2%80%9CMy%20characters%20are%20born%20out,with%20Alzheimer%27s%20and%20their%20families. Accessed 28 October 2022.

  67. Judith G Gonyea, Ruth Paris, and Lisa de Saxe Zerden, ‘Adult Daughters and Aging Mothers: The Role of Guilt in the Experience of Caregiver Burden’ (2008) 12(5) Aging & Mental Health 559.

Acknowledgements

We are extremely grateful to Editor-in-Chief Prof C Raj Kumar and to the special issue editors, especially Prof Shivangi Gangwar, for her support and advice throughout. We also thank the reviewers for their observations, comments, and recommendations that immensely enriched this article.

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Correspondence to Debashrita Dey or Priyanka Tripathi.

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Dey, D., Tripathi, P. Ageing identities and narratives of loss: (Re)Contextualising cognitive degeneration in ‘reel’ space and ‘real’ lives. Jindal Global Law Review 13, 329–346 (2022). https://doi.org/10.1007/s41020-022-00179-4

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