Abstract
Public policy advocacy is crucial to ensure equitable access for all those seeking applied behavior analysis (ABA) services. Based on their experiences engaging in state-level public policy advocacy, the authors created a Public Policy Advocacy Actions Checklist that summarizes specific strategies they found to be successful with a variety of public policy issues relevant to ABA. Although this article focuses on advocacy efforts related to Medicaid reimbursement rates and Medicaid policies for ABA service provision, the strategies presented have also been used to advocate for coverage of telehealth ABA services, licensure for behavior analysts, and mandates for commercial insurance to cover ABA and/or autism intervention. The State of Wisconsin is used to illustrate implementation of the Public Policy Advocacy Actions Checklist, and the states of Arizona and Massachusetts are presented as additional examples of successful advocacy efforts using these strategies. This article walks behavior analysts through the process of identifying the local challenges and opportunities, developing advocacy goals, implementing an action plan, collecting data, recruiting support from the community, and influencing policy makers to implement favorable policy changes. The authors present additional resources to support new behavior analyst advocates including links to free advocacy toolkits, tips on selecting a lobbyist, recommendations for meetings with policy makers, a sample budget request, and two examples of “call to action” communications encouraging members of the community to contact their representatives regarding a specific issue. Finally, the successful advocacy outcomes and remaining opportunities for advocacy in each of these three states are discussed.
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References
American Medical Association. (2023). Current procedural terminology (CPT) professional edition 2023.
American Public Health Association. (n.d.). Tips for making a visit to your policy maker. https://www.apha.org/-/media/files/pdf/advocacy/policymaker_visit_tips.ashx
American Public Health Association. (2009). APHA health reform advocacy toolkit. https:// www2.archivists.org/sites/all/files/AmericanPublicHealthAssocAdvocacyToolkit.pdf
Association of Accredited Public Policy Advocates to the European Union. (2017). Questions to ask a lobbyist. http://www.aalep.eu/questions-ask-lobbyist
Association of Public Health Nurses. (2021). Public health advocacy guidebook and toolkit. https://www.phnurse.org/assets/docs/APHN%20Public%20Health%20Policy%20Advocacy%20Guidebook%20and%20Toolkit%20_May%202021.pdf
Andermann, A. (2016). Taking action on the social determinants of health in clinical practice: a framework for health professionals. Canadian Medical Association Journal (CMAJ), 188(17–18), E474–E483. https://doi.org/10.1503/cmaj.160177
Behavior Analyst Certification Board (BACB). (2020). Ethics code for behavior analysts. https://bacb.com/wp-content/ethics-code-for-behavior-analysts
Chasson, G. S., Harris, G. E., & Neely, W. J. (2007). Cost comparison of early intensive behavioral intervention and special education for children with autism. Journal of Child & Family Studies, 16, 401–413.
Christopher, M. A., Duhl, J. J., Rosati, R., & M. Sheehan, K. (2015). Advocacy for Vulnerable Patients. AJN: American Journal of Nursing, 115(3), 66–69. https://doi.org/10.1097/01.NAJ.0000461810.34602.58 .
Federal Trade Commission. (2023). Spotlight on trade associations. https://www.ftc.gov/advice-guidance/competition-guidance/guide-antitrust-laws/dealings-competitors/spotlight-trade-associations
Forward Health. (n.d.). New behavioral treatment benefit. https://www.forwardhealth.wi.gov/WIPortal/content/html/btb/Behavioral_Treatment_Benefit.htm.spage
Gomez, M., & Saal, L. (2022, November 8). In the room where it happens: Advocacy 101 for literacy leaders. The Reading Teacher, 76.
Hodge, L., & Raymond, C. (2023). Code poverty: An adaptation of the social-ecological model to inform a more strategic direction toward nursing advocacy. Nursing Inquiry, 30(1), e12511. https://doi.org/10.1111/nin.12511
Jacobson, J. W., Mulick, J. A., & Green, G. (1998). Cost benefit estimates for early intensive behavioral intervention for young children with autism: General model and single state case. Behavioral Interventions, 13, 201–226.
Jurns, C. (2019). Policy advocacy motivators and barriers: Research results and applications. Online Journal of Issues in Nursing, 24(3). https://doi.org/10.3912/OJIN.Vol24No03PPT63
Larsson, E. V. (2012). The cost of autism and the cost-effectiveness of ABA and EIBI: Early intensive behavioral intervention. Lovaas Institute for Early Intervention. https://www.whatdotheyknow.com/request/210877/response/525530/attach/9/Annex%20A%20Larsson%202012%20The%20Costs%20of%20Autism.pdf?cookie_passthrough=1.
Mandatory Coverage, Wis. Stat. § 632.895(12m).(n.d.) https://docs.legis.wisconsin.gov/document/statutes/632.895(12m)
National Association of Social Workers. (2021). NASW code of ethics. https://www.socialworkers.org/About/Ethics/Code-of-Ethics
Peters-Scheffer, N., Didden, R., Korzilius, H., & Matson, J. (2012). Cost comparison of early intensive behavioral intervention and treatment as usual for children with autism spectrum disorder in the Netherlands. Research in Developmental Disabilities, 33(6), 1763–1772.
Presskreischer, R., Barry, C. L., Lawrence, A. K., McCourt, A., Mojtabai, R., & McGinty, E. E. (2023). Factors affecting state-level enforcement of the Federal Mental Health Parity and Addiction Equity Act: A cross-case analysis of four states. Journal of Health Politics, Policy & Law, 48(1), 1–34. https://doi.org/10.1215/03616878-10171062
Social Security Act, 42 U.S.C. § 1396d et seq. (2012).
Stone, A. (2023). With patient and persistent advocacy, nurses help pass critical healthcare legislation. ONS Voice. https://voice.ons.org/advocacy/with-patient-and-persistent-advocacy-nurses-help-pass-critical-healthcare-legislation
U.S. Department of Health & Human Services. (2014). CMCS informational bulletin: Clarification of Medicaid coverage of services to children with autism. https://www.medicaid.gov/federal-policy-guidance/downloads/cib-07-07-14.pdf
Wisconsin Public Health Association. (2010). Legislative toolkit for the public health professional. https://cdn.ymaws.com/www.wpha.org/resource/resmgr/docs/final-version-legislative-to.pdf
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The authors acknowledge the following individuals for their contributions: the members of the MassCAP advisory board, the executive boards of BABAT, MassCAP, AzABA, and WAPA, the team at Husch Blackwell Strategies, the Wisconsin Department of Health Services, and Dr. Davis-Wilson.
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Thompson, R.L., Belokas, J., Johnson, K. et al. The Public Policy Advocacy Actions Checklist: Success Stories from Three States. Behav Analysis Practice (2023). https://doi.org/10.1007/s40617-023-00874-1
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DOI: https://doi.org/10.1007/s40617-023-00874-1