Abstract
Adolescents with ASD show interest in and desire for relationships, yet deficits in social and communication skills characteristic of ASD may impair their ability to seek and maintain relationships. Parents are often responsible for providing education related to sexuality and relationships, and many express the need for support in teaching their children about these topics. To address these needs, the present study enrolled eight adolescents with ASD and their parents in a six-session program designed to provide education on sexuality and relationships. Adolescent participants included six males and two females, all of whom were between the ages of 12 and 16 (M = 13.4, SD = 0.92).To assess the utility of the program, parents were asked to provide information on adolescent behavior, parent–child discussion of topics related to sexuality and relationships, and parent satisfaction with the program. Adolescents completed knowledge questionnaires. Following the program, parents expressed satisfaction with the experience. Parents further reported that they were discussing a greater number of topics with their adolescents.
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References
Centers for Disease Control and Prevention: Autism spectrum disorder (ASD). http://www.cdc.gov/ncbddd/autism/data.html. Accessed 4 Nov 2014 (2014)
American Psychiatric Association: Diagnostic and Statistical Manual of Mental Disorders, 5th edn. American Psychiatric Publishing, Arlington (2013)
Gabriels, R.L., Van Bourgondien, M.E.: Sexuality and autism. In: Gabriels, R.L., Hill, D.E. (eds.) Growing up with Autism: Working with School-Age Children and Adolescence, pp. 58–72. Guilford Press, New York (2007)
Stokes, M., Newton, N., Kaur, A.: Stalking, and social and romantic functioning among adolescents and adults with autism spectrum disorders. J. Autism Dev. Disord. 37, 1969–1986 (2007)
Brown-Lavoie, S.M., Viecili, M.A., Weiss, J.A.: Sexual knowledge and victimization in adults with autism spectrum disorder. J. Autism Dev. Disord. 44, 2185–2196 (2014)
Hellemans, H., Colson, K., Verbraeken, C., Vermeiren, R., Deboutte, D.: Sexual behavior in high-functioning male adolescents and young adults with autism spectrum disorder. J. Autism Dev. Disord. 37, 260–269 (2007)
Ruble, L.A., Dalrymple, N.J.: Social/sexual awareness of persons with autism: a parental perspective. Arch. Sex. Behav. 22, 229–240 (1993)
Konstantareas, M.M., Lunsky, Y.J.: Sociosexual knowledge, experience, attitudes, and interests of individuals with autistic disorder and developmental delay. J. Autism Dev. Disord. 27, 397–413 (1997)
Ousley, O.Y., Mesibov, G.B.: Sexual attitudes and knowledge of high-functioning adolescents and adults with autism. J. Autism Dev. Disord. 21, 471–481 (1991)
Gilmour, L., Schalomon, P.M., Smith, V.: Sexuality in a community based sample of adults with autism spectrum disorder. Res. Autism Spectr. Disord. 6, 313–318 (2012)
Mehzabin, P., Stokes, M.A.: Self-assessed sexuality in young adults with high-functioning autism. Res. Autism Spectr. Disord. 5, 614–621 (2011)
Hellemans, H., Roeyers, H., Leplae, W., Dewaele, T., Deboutte, D.: Sexual behavior in male adolescents and young adults with autism spectrum disorder and borderline/mild mental retardation. Sex. Disabil. 28, 93–104 (2010)
Stokes, M.A., Kaur, A.: High-functioning autism and sexuality. Autism 9, 266–289 (2005)
Ballan, M.S.: Parental perspectives of communication about sexuality in families of children with autism spectrum disorders. J. Autism Dev. Disord. 42, 676–684 (2012)
Nichols, S., Blakeley-Smith, A.: “I’m not sure we’re ready for this …”: working with families toward facilitating healthy sexuality for individuals with autism spectrum disorders. Soc. Work Ment. Health 8, 72–91 (2010)
Travers, J., Tincani, M.: Sexuality education for individuals with autism spectrum disorders: critical issues and decision making guidelines. Educ. Train. Autism Dev. Disabil. 45, 284–293 (2010)
Meister, C., Norlock, D., Honeyman, S., Pierce, K.: Sexuality and autism: a parenting skills enhancement group. Can. J. Hum. Sex. 3, 283–289 (1994)
Chan, J., John, R.M.: Sexuality and sexual health in children and adolescents with autism. J. Nurse Pract. 8, 306–315 (2012)
Gilmour, L., Smith, V., Schalomon, M.: Sexuality and ASD: current state of research. In: Patel, V.B., et al. (eds.) Comprehensive Guide to Autism, pp. 569–584. Springer Science + Business Media, New York (2014)
Sullivan, A., Caterino, L.C.: Addressing the sexuality and sex education of individuals with autism spectrum disorders. Educ. Treat. Child. 31, 381–394 (2008)
Iovannone, R., Dunlap, G., Huber, H., Kincaid, D.: Effective educational practices for students with autism spectrum disorders. Focus Autism Dev. Disabil. 18(3), 150–165 (2003)
Schuster, M.A., Corona, R., Elliott, M.N., Kanouse, D.E., Eastman, K.L., Zhou, A.J., Klein, D.J.: Evaluation of Talking Parents, Healthy Teens, a new worksite based parenting programme to promote parent-adolescent communication about sexual health: randomised controlled trial. Br. Med. J. 337, 273–277 (2008)
Tarnai, B., Wolfe, P.S.: Social stories for sexuality education for persons with autism/pervasive developmental disorder. Sex. Disabil. 26, 29–36 (2008)
Laugeson, E.A., Frankel, F., Mogil, C., Dillon, A.R.: Parent-assisted social skill training to improve friendships in teens with autism spectrum disorders. J. Autism Dev. Disord. 39, 596–606 (2009)
Rosqvist, J.: Exposure Treatments for Anxiety Disorders: A Practitioner’s Guide to Concepts, Methods, and Evidence-Based Practice. Routledge, New York (2005)
Kroeger, K.A., Schultz, J.R., Newsom, C.: A comparison of two group-delivered social skills programs for young children with autism. J. Autism Dev. Disord. 37, 808–817 (2007)
Acknowledgments
We extend our thanks to the staff of the Center for Autism and Related Disabilities for their support, as well as our appreciation to the parents and adolescents who participated in the program.
Funding
This study was supported by the New York State Department of Education (Contract Number C813000) and the Glens Falls Foundation M&M Fund.
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All authors declare that they have no conflicts of interest.
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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed Consent
As described above in the “Methods” section, informed consent or assent was obtained from all individual participants included in the study. Parents provided informed consent, and adolescents provided assent.
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Corona, L.L., Fox, S.A., Christodulu, K.V. et al. Providing Education on Sexuality and Relationships to Adolescents with Autism Spectrum Disorder and Their Parents. Sex Disabil 34, 199–214 (2016). https://doi.org/10.1007/s11195-015-9424-6
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DOI: https://doi.org/10.1007/s11195-015-9424-6