Skip to main content

Advertisement

SpringerLink
Log in

Quality of life assessment scales in polio survivors: a scoping review

  • Review
  • Published:
Quality of Life Research Aims and scope Submit manuscript

Abstract

Background

Quality of life evaluation is essential to explore the effect of paralytic polio on the daily life experience of the polio survivor. Researchers have employed a range of assessment instruments to evaluate quality of life among polio survivors. Hence, to select the appropriate scale, it is crucial to compare the contents and psychometric properties of these instruments.

Purpose

This scoping review explores quality of life instruments that are used in polio literature and analyzes their contents and psychometric properties using the Consensus-based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria.

Method

Using the Arksey and O’Malley framework, we conducted a literature search in the following electronic databases Medline, CINAHL, Web of Science, Embase, and Google Scholar to identify relevant studies that focused on quality of life of polio survivors. Of the 88 articles that qualify for full-text screening, 34 studies met our inclusion criteria. Two independent reviewers extracted data from the selected studies via Covidence, a reference manager that allows for blinding of reviews.

Results

Most of the instruments included in this review are generic, self-reported, and multidimensional. Despite having mostly adequate psychometric properties, these properties were not evaluated in polio survivors.

Conclusion

The information provided in this review could be used to guide instrument selection and identify the need to develop a new tool or to adapt a pre-existing scale for measuring quality of life among polio survivors.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Log in via an institution

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Institutional subscriptions

Fig. 1
Fig. 2

Similar content being viewed by others

References

  1. Hatami, R., Rassafiani, M., Pishyareh, E., Karami, S., & Hashemi, O. (2015). The effect of community based rehabilitation program on quality of life of people with physical disability in Bostanabad, Tabriz, Iran. Jentashapir Journal of Health Research, 6(3), 2–6.

    Article  Google Scholar 

  2. Iemmi, V., Gibson, L., Blanchet, K., Suresh, K., Rath, S., Hartley, S., et al. (2015). Community-based rehabilitation for people with disabilities in low- and middle-income countries. Campbell Systematic Reviews, 15, 177.

    Google Scholar 

  3. Mannan, H., & Turnbull, A. P. (2007). A review of CBR-evaluations: QoL as outcome measure for future evaluations. Asia Pacific Disability Rehabilitation Journal, 18(1), 29–45.

    Google Scholar 

  4. Groce, N. E., Banks, L. M., & Stein, M. A. (2014). Surviving polio in a post-polio world. Social Science and Medicine, 107, 171–178.

    Article  PubMed  Google Scholar 

  5. Nielsen, N. M., Kay, L., Wanscher, B., Ibsen, R., Kjellberg, J., & Jennum, P. (2016). Long-term socio-economic consequences and health care costs of poliomyelitis: A historical cohort study involving 3606 polio patients. Journal of Neurology, 263(6), 1120–1128.

    Article  PubMed  Google Scholar 

  6. Verdugo, M. A., Schalock, R. L., Keith, K. D., & Stancliffe, R. J. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49(10), 707–717.

    Article  CAS  PubMed  Google Scholar 

  7. Brown, J., Bowling, A., & Flynn, T. (2004). Models of quality of life: A taxonomy, overview and systematic review of the literature review. Ageing & Society, 29, 657–678.

    Google Scholar 

  8. Theofilou, P. (2013). Quality of life: Definition and measurement. Europe’s Journal of Psychology, 9(1), 150–162.

    Article  Google Scholar 

  9. Post, M. (2014). Definitions of quality of life: What has happened and how to move on. Topics in Spinal Cord Injury Rehabilitation, 20(3), 167–180.

    Article  PubMed  PubMed Central  Google Scholar 

  10. Moons, P., Budts, W., & De Geest, S. (2006). Critique on the conceptualisation of quality of life: A review and evaluation of different conceptual approaches. International Journal of Nursing Studies, 43(7), 891–901.

    Article  PubMed  Google Scholar 

  11. Salvador-Carulla, L., Lucas, R., Ayuso-Mateos, J. L., & Miret, M. (2014). Use of the terms “Wellbeing” and “Quality of Life” in health sciences: A conceptual framework. The European Journal of Psychiatry, 28(1), 50–65.

    Article  Google Scholar 

  12. Garip, Y., Eser, F., Bodur, H., Baskan, B., Sivas, F., & Yilmaz, O. (2017). Health related quality of life in Turkish polio survivors: Impact of post-polio on the health related quality of life in terms of functional status, severity of pain, fatigue, and social, and emotional functioning. Revista Brasileira de Reumatologia, 57(1), 1–7.

    Article  PubMed  Google Scholar 

  13. Lund, M. L., & Lexell, J. (2011). Life satisfaction in persons with late effects of polio. Applied Research in Quality of Life, 6(1), 71–80.

    Article  Google Scholar 

  14. Saeki, S., & Hachisuka, K. (2006). Factors associated with Quality of life of polio survivors in Japan. JJOMT, 54, 84–90.

    Google Scholar 

  15. Shiri, S., Wexler, I. D., Feintuch, U., Meiner, Z., & Schwartz, I. (2012). Post-polio syndrome: Impact of hope on quality of life. Disability and Rehabilitation, 34(10), 824–830.

    Article  PubMed  Google Scholar 

  16. Lexell, J., & Brogårdh, C. (2012). Life satisfaction and self-reported impairments in persons with late effects of polio. Annals of Physical and Rehabilitation Medicine, 55(9–10), 577–589.

    Article  CAS  PubMed  Google Scholar 

  17. Yang, E. J., Lee, S. Y., Kim, K., Jung, S. H., Jang, S. N., Han, S. J., et al. (2015). Factors associated with reduced quality of life in polio survivors in Korea. PLoS ONE, 10(6), 1–11.

    Google Scholar 

  18. Atwal, A., Giles, A., Spiliotopoulou, G., Plastow, N., & Wilson, L. (2013). Living with polio and postpolio syndrome in the United Kingdom. Scandinavian Journal of Caring Sciences, 27(2), 238–245.

    Article  PubMed  Google Scholar 

  19. Spiliotopoulou, G., Fowkes, C., & Atwal, A. (2012). Assistive technology and prediction of happiness in people withpost-polio syndrome. Disability and Rehabilitation: Assistive Technology, 7(3), 199–204.

    PubMed  Google Scholar 

  20. Winberg, C., Flansbjer, U. B., Carlsson, G., Rimmer, J., & Lexell, J. (2014). Physical activity in persons with late effects of polio: A descriptive study. Disability and Health Journal, 7(3), 302–308.

    Article  PubMed  Google Scholar 

  21. Ahlström, G., & Karlsson, U. (2000). Disability and quality of life in individuals with postpolio syndrome. Disability and Rehabilitation, 22(9), 416–422.

    Article  PubMed  Google Scholar 

  22. Jacob, T., & Shapira, A. (2010). Quality of life and health conditions reported from two postpolio clinics in Israel. Journal of Rehabilitation Medicine, 42(4), 377–379.

    Article  PubMed  Google Scholar 

  23. Farbu, E., & Gilhus, N. E. (2002). Education, occupation, and perception of health amongst previous polio patients compared to their siblings. European Journal of Neurology, 9(3), 233–241.

    Article  CAS  PubMed  Google Scholar 

  24. Kemp, J. B., & Krause, J. S. (1999). Depression and life satisfaction among people ageing with post-polio and spinal cord injury. Disability and Rehabilitation, 21(5–6), 241–249.

    Article  CAS  PubMed  Google Scholar 

  25. Stuifbergen, A. K., Seraphine, A., Harrison, T., & Adachi, E. (2005). An explanatory model of health promotion and quality of life for persons with post-polio syndrome. Social Science and Medicine, 60(2), 383–393.

    Article  PubMed  Google Scholar 

  26. Harrison, T. C., & Stuifbergen, A. K. (2006). Life purpose: Effect on functional decline and quality of life in polio survivors. Rehabilitation Nursing, 31(4), 149–154.

    Article  PubMed  Google Scholar 

  27. Stuifbergen, A. K. (2005). Secondary conditions and life satisfaction among polio survivors. Rehabilitation Nursing, 30(5), 173–179.

    Article  PubMed  Google Scholar 

  28. Kling, C., Persson, A., & Gardulf, A. (2000). The health-related quality of life of patients suffering from the late effects of polio (post-polio). Journal of Advanced Nursing, 32(1), 164–173.

    Article  CAS  PubMed  Google Scholar 

  29. Geyh, S., Cieza, A., Kollerits, B., Grimby, G., & Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): A systematic review. Quality of Life Research, 16(5), 833–851.

    Article  CAS  PubMed  Google Scholar 

  30. Krančiukaitė, D., & Rastenytė, D. (2006). Measurement of quality of life in stroke patients. Medicina (Kaunas, Lithuania), 42(9), 709–716.

    Google Scholar 

  31. Bandari, D. S., Vollmer, T. L., Khatri, B. O., & Tyry, T. (2010). Assessing quality of life in patients with multiple sclerosis. International Journal of MS Care, 12, 34–41.

    Article  Google Scholar 

  32. Werhagen, L., & Borg, K. (2013). Impact of pain on quality of life in patients with post-polio syndrome. Journal of Rehabilitation Medicine, 45(2), 161–163.

    Article  PubMed  Google Scholar 

  33. Souza, A. C., Alexandre, N. M., & Guirardello, E. B. (2017). Psychometric properties in instruments evaluation of reliability and validity. Epidemiologia e Serviços de Saúde, 26(3), 649.

    Article  PubMed  Google Scholar 

  34. Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32.

    Article  Google Scholar 

  35. Ierssel Van, J., Sveistrup, H., & Marshall, S. (2018). Identifying the concepts contained within health-related quality of life outcome measures in concussion research using the International Classification of Functioning, Disability, and Health as a reference: A systematic review. Quality of Life Research, 27(12), 3071.

    Article  PubMed  Google Scholar 

  36. Tricco, A. C., Lillie, E., Zarin, W., Brien, K. K. O., Colquhoun, H. & Levac, D., et al. (2018). PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169, 467–473.

    Article  PubMed  Google Scholar 

  37. Bakas, T., McLennon, S. M., Carpenter, J. S. Buelow, J. M., Otte, J. L., Hanna, K. M. et al. (2012). Systematic review of health-related quality of life models. Health and Quality of Life Outcomes, 10(1), 134 (2012)

    Article  PubMed  PubMed Central  Google Scholar 

  38. Kostanjsek, N. (2011). Use of The International Classification of Functioning, Disability and Health (ICF) as a conceptual framework and common language for disability statistics and health information systems. BMC Public Health, 11(Suppl 4), S3.

    Article  PubMed  PubMed Central  Google Scholar 

  39. Barcaccia, B., Esposito, G., Matarese, M., Bertolaso, M., Elvira, M., & De Marinis, M. G. (2013). Defining quality of life: A wild-goose chase? Europe’s Journal of Psychology, 9(1), 185–203.

    Article  Google Scholar 

  40. Ahmad, T., Arif, S., Chaudary, N., & Anjum, S. (2014). Epidemiological characteristics of poliomyelitis during the 21st Century (2000–2013). International Journal of Public Health Science, 3(3), 143–157.

    Google Scholar 

  41. Center for Disease Control and Prevention. (2015). Poliomyelitis. In J. Hamborsky, A. Kroger, & S. Wolfe (Eds.), Epidemiology and prevention of vaccine-preventable diseases (13th ed., pp. 297–310). Washington DC: Center for Disease Control and Prevention.

    Google Scholar 

  42. Mokkink, L. B., Terwee, C. B., Knol, D. L., Stratford, P. W., Alonso, J., Patrick, D. L., et al. (2010). The COSMIN checklist for evaluating the methodological quality of studies on measurement properties: A clarification of its content. BMC Medical Research Methodology, 10(22), 8.

    Google Scholar 

  43. Terwee, C. B., Mokkink, L. B., Knol, D. L., & Ostelo, R. W. J. G. (2012). Rating the methodological quality in systematic reviews of studies on measurement properties: A scoring system for the COSMIN checklist. Quality of Life Research, 21, 651–657.

    Article  PubMed  Google Scholar 

  44. Prinsen, C. A. C., Vohra, S., Rose, M. R., Boers, M., Tugwell, P., Clarke, M., et al. (2016). How to select outcome measurement instruments for outcomes included in a “Core Outcome Set” - a practical guideline. Trials, 17(1), 449–458.

    Article  PubMed  PubMed Central  Google Scholar 

  45. Östlund, G., Wahlin, Å., Sunnerhagen, K. S., & Borg, K. (2011). Post-polio syndrome: Fatigued patients a specific subgroup? Journal of Rehabilitation Medicine, 43(1), 39–45.

    Article  PubMed  Google Scholar 

  46. Vasiliadis, H. M., Collet, J. P., Shapiro, S., Venturini, A., & Trojan, D. A. (2002). Predictive factors and correlates for pain in postpoliomyelitis syndrome patients. Archives of Physical Medicine and Rehabilitation, 83(8), 1109–1115.

    Article  PubMed  Google Scholar 

  47. Jung, T. D., Broman, L., Stibrant-Sunnerhagen, K., Gonzalez, H., & Borg, K. (2014). Quality of life in Swedish patients with post-polio syndrome with a focus on age and sex. International Journal of Rehabilitation Research, 37(2), 173–179.

    Article  PubMed  Google Scholar 

  48. Trojan, D. A., Collet, J., Pollak, M. N., Shapiro, S., Jubelt, B., Miller, R. G., et al. (2001). Serum insulin-like growth factor-I (IGF-I) does not correlate positively with isometric strength, fatigue, and quality of life in post-polio syndrome. Journal of the Neurological Sciences, 182(2), 107–115.

    Article  CAS  PubMed  Google Scholar 

  49. Bertolasi, L., Frasson, E., Turri, M., Gajofatto, A., Bordignon, M., Zanolin, E., et al. (2013). A randomized controlled trial of IV immunoglobulin in patients with postpolio syndrome. Journal of the Neurological Sciences, 330(1–2), 94–99.

    Article  CAS  PubMed  Google Scholar 

  50. Murray, D., Hardiman, O., & Meldrum, D. (2014). Assessment of subjective and motor fatigue in Polio survivors, attending a Postpolio clinic, comparison with healthy controls and an exploration of clinical correlates. Physiotherapy Theory and Practice, 30(4), 229–235.

    Article  PubMed  Google Scholar 

  51. Finch, L. E., Venturini, A., Mayo, N. E., & Trojan, D. A. (2004). Effort-limited treadmill walk test: Reliability and validity in subjects with postpolio syndrome. American Journal of Physical Medicine and Rehabilitation, 83(8), 613–623.

    Article  PubMed  Google Scholar 

  52. Skough, K., Krossén, C., Heiwe, S., Theorell, H., & Borg, K. (2008). Effects of resistance training in combination with coenzyme Q10 supplementation in patients with post-polio: A pilot study. Journal of Rehabilitation Medicine, 40(9), 773–775.

    Article  PubMed  Google Scholar 

  53. Koopman, F. S., Voorn, E. L., Beelen, A., Bleijenberg, G., De Visser, M., Brehm, M. A., et al. (2015). No reduction of severe fatigue in patients with postpolio syndrome by exercise therapy or cognitive behavioral therapy. Neurorehabilitation and Neural Repair, 30(5), 402–410.

    Article  PubMed  Google Scholar 

  54. Östlund, G., Wahlin, Å., Sunnerhagen, K. S., & Borg, K. (2008). Vitality among Swedish patients with post-polio: A physiological phenomenon. Journal of Rehabilitation Medicine, 40(9), 709–714.

    Article  PubMed  Google Scholar 

  55. Kaponides, G., Gonzalez, H., Olsson, T., & Borg, K. (2006). Effect of intravenous immunoglobulin in patients with post-polio syndrome—An uncontrolled pilot study. Journal of Rehabilitation Medicine, 38(2), 138–140.

    Article  PubMed  Google Scholar 

  56. Legters, K., Verbus, N. B., Kitchen, S., Tomecsko, J., & Urban, N. (2006). Fear of falling, balance confidence and health-related quality of life in individuals with postpolio syndrome. Physiotherapy Theory and Practice, 22(3), 127–135.

    Article  PubMed  Google Scholar 

  57. Vreede, K. S., Broman, L., & Borg, K. (2016). Long-term follow-up of patients with prior polio over A 17-year period. Journal of Rehabilitation Medicine, 48(4), 359–364.

    Article  PubMed  Google Scholar 

  58. Bertelsen, M., Broberg, S., & Madsen, E. (2009). Outcome of physiotherapy as part of a multidisciplinary rehabilitation in an unselected polio population with one-year follow-up: An uncontrolled study. Journal of Rehabilitation Medicine, 41(1), 85–87.

    Article  PubMed  Google Scholar 

  59. Vasconcelos, O. M., Prokhorenko, O. A., Salajegheh, M. K., Kelley, K. F., Livornese, K., Olsen, C. H., et al. (2007). Modafinil for treatment of fatigue in post-polio syndrome: A randomized controlled trial. Neurology, 68(20), 1680–1686.

    Article  CAS  PubMed  Google Scholar 

  60. Gonzalez, H., Stibrant Sunnerhagen, K., Sjoberg, I., Kaponides, G., Olsson, T., & Borg, K. (2006). Intravenous immunoglobulin for post-polio syndrome: A randomised controlled trial. The Lancet Neurology, 5(6), 493–500.

    Article  CAS  PubMed  Google Scholar 

  61. Gonzalez, H., Khademi, M., Borg, K., & Olsson, T. (2012). Intravenous immunoglobulin treatment of the post-polio syndrome: Sustained effects on quality of life variables and cytokine expression after one year follow up. Journal of Neuroinflammation, 9(1), 167.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  62. On, A. Y., Oncu, J., & Uludag, B. (2005). Effects of lamotrigine on the symptoms and life qualities of patients with post polio syndrome: A randomized, controlled study. NeuroRehabilitation, 20(4), 245–251.

    PubMed  Google Scholar 

  63. Oncu, J., Durmaz, B., & Karapolat, H. (2009). Short-term effects of aerobic exercise on functional capacity, fatigue, and quality of life in patients with post-polio syndrome. Clinical Rehabilitation, 23(2), 155–163.

    Article  PubMed  Google Scholar 

  64. On, A. Y., Oncu, J., Atamaz, F., & Durmaz, B. (2006). Impact of post-polio-related fatigue on quality of life. Journal of Rehabilitation Medicine, 38(5), 329–332.

    Article  PubMed  Google Scholar 

  65. Epstein, J., Santo, R. M., & Guillemin, F. (2015). A review of guidelines for cross-cultural adaptation of questionnaires could not bring out a consensus. Journal of Clinical Epidemiology, 68(4), 435–441.

    Article  PubMed  Google Scholar 

  66. Bentzen, N., Christiansen, T., McColl, E., & Meadows, K. (1998). Selection and cross-cultural adaptation of health outcome measures. The European Journal of General Practice, 4(1), 27–33.

    Article  Google Scholar 

  67. Kaka, B., Ogwumike, O., & Adeniyi, A. F. (2011). Factors associated with health-related quality of life among post-paralytic polio survivors in Nigeria. AJPARS, 3(1), 17–22.

    Google Scholar 

  68. Adegoke, B. O. A., Oni, A. A., Gbiri, C. A., & Akosile, C. O. (2012). Paralytic poliomyelitis: Quality of life of adolescent survivors. Hong Kong Physiotherapy Journal, 30(2), 93–98.

    Article  Google Scholar 

  69. Donaldson, L. J., & Hayes, K. (2018). Eradicating polio The sprint at the end of the marathon. British Medical Journal, 361(May), 10–11.

    Google Scholar 

  70. Haywood, K., Garratt, L., & Fitzpatrick, A. (2005). Quality of life in older people: A structured review of generic self-assessed health instruments. Quality of Life Research, 14(7), 1651–1668.

    Article  CAS  PubMed  Google Scholar 

  71. Coons, S. J., Rao, S., Keininger, D. L., & Hays, R. D. (2000). A comparative review of generic quality-of-life instruments. Pharmacoeconomics, 17(1), 13–35.

    Article  CAS  PubMed  Google Scholar 

  72. Ware, J. E. J., & Sherbourne, C. D. (1992). The MOS 36-ltem Short-Form Health Survey (SF-36): I. Conceptual framework and item selection. Medical Care, 30(6), 473–483.

    Article  PubMed  Google Scholar 

  73. Ware, J. E. (2000). SF-36 health survey update. Spine, 25(24), 3130–3139.

    Article  PubMed  Google Scholar 

  74. Fawkes, C. (2013). SF-36. National Council For Osteopathic Research.

  75. Fayed, N., De Camargo, O. K., Kerr, E., Rosenbaum, P., Dubey, A., Bostan, C., et al. (2012). Generic patient-reported outcomes in child health research: A review of conceptual content using World Health Organization definitions. Developmental Medicine and Child Neurology, 54, 1085–1095.

    Article  PubMed  Google Scholar 

  76. Streiner, D. L., Norman, G. R., & Cairney, J. (2015). Health measurement scales a practical guide to their development and use (5th ed., p. 415). Oxford: Oxford University Press.

    Google Scholar 

  77. Kalpakjian, C. Z., & Lequerica, A. (2006). Quality of Life and menopause in women with physical disabilities. Journal of Women’s Health, 15(9), 1014–1027.

    Article  PubMed  Google Scholar 

  78. Kathleen, N. L., Aaronson, N. K., Alonso, J., Burnam, M. A., Patrick, D. L., Pen-in, E. B., et al. (1996). Evaluating quality-of-life and health status instruments: Development of scientific review criteria. Clinical Therapeutics, 18(5), 979–992.

    Article  Google Scholar 

  79. Gandek, B., Sinclair, S. J., Kosinski, M., & Ware, J. E. (2004). Psychometric evaluation of the SF-36 health survey in medicare managed care. Health Care Financing Review, 25(4), 5–25.

    PubMed  PubMed Central  Google Scholar 

  80. Steffen, T., & Seney, M. (2008). Test-retest reliability and minimal detectable change on balance and ambulation tests, the 36-item short- form health survey, and the unified Parkinson disease rating scale in people with Parkinsonism. Physical Therapy, 88(6), 733–746.

    Article  PubMed  Google Scholar 

  81. Lin, M.-R., Hwang, H.-F., Chen, C.-Y., & Chiu, W.-T. (2007). Comparisons of the brief form of the World Health Organization Quality of Life and Short Form-36 for persons with spinal cord injuries. American Journal of Physical Medicine and Rehabilitation, 86(2), 104–113.

    Article  PubMed  Google Scholar 

  82. Mcnaughton, H. K., Weatherall, M., & Mcpherson, K. M. (2005). Functional measures across neurologic disease states: Analysis of factors in common. Archives of Physical Medicine and Rehabilitation, 86, 2184–2188.

    Article  PubMed  Google Scholar 

  83. Forchheimer, M., McAweeney, M., & Tate, D. (2004). Use of the SF-36 among persons with spinal cord injury. American Journal of Physical Medicine and Rehabilitation, 83(5), 390–395.

    Article  PubMed  Google Scholar 

  84. Leonardi, M., Raggi, A., Pagani, M., Carella, F., Soliveri, P., Albanese, A., et al. (2012). Parkinsonism and related disorders relationships between disability, quality of life and prevalence of nonmotor symptoms in Parkinson’ s disease. Parkinsonism & Related Disorders, 18(1), 35–39.

    Article  Google Scholar 

  85. Baro, E., Ferrer, M., Vazquez, O., Miralles, R., Pont, A., Esperanza, A., et al. (2006). Using the Nottingham Health Profile (NHP) among older adult inpatients with Varying Cognitive Function. Quality of Life Research, 15, 575–585.

    Article  PubMed  Google Scholar 

  86. Jans, M. P., Schellevis, Ë. G., & Van, Eijk J. T. M. (1999). The Nottingham Health Profile: Score distribution, internal consistency and and validity in asthma and COPD patients. Quality of Life Research, 8, 501–507.

    Article  CAS  PubMed  Google Scholar 

  87. Demet, K., Guillemin, F., & Martinet, N. (2002). Nottingham Health Profile: Reliability in a sample of 542 subjects with major amputation of one or several limbs. Prosthetics and Orthotics International, 26, 120–123.

    Article  CAS  PubMed  Google Scholar 

  88. Beaton, D. E., Hogg-Johnson, S., & Bombardier, C. (1997). Evaluating changes in health status: Reliability and responsiveness. Journal of Clinical Epidemiology, 50(1), 79–93.

    Article  CAS  PubMed  Google Scholar 

  89. Ferrans, C. E., & Powers, M. J. (1992). Psychometric assessment of the Quality of Life Index. Research in Nursing & Health, 15(1), 29–38.

    Article  CAS  Google Scholar 

  90. Stuifbergen, A. K., & Roberts, G. J. (1997). Health promotion practices of women with multiple sclerosis. Archives of Physical Medicine and Rehabilitation, 78(Supplement), 3–9.

    Article  Google Scholar 

  91. Ferrans, C. E., & Powers, M. J. (2007). The Quality of Life Index: Development and psychometric properties. Nursing Research, 1(88), 32–37.

    Google Scholar 

  92. May, L. A., & Warren, S. (2002). Original Article Measuring quality of life of persons with spinal cord injury: External and structural validity. Spinal Cord, 40, 341–351.

    Article  CAS  PubMed  Google Scholar 

  93. Marti, C., Hensler, S., Herren, D. B., Niedermann, K., & Marks, M. (2016). JHS (E) measurement properties of the EuroQoL EQ-5D-5L to assess. Journal of Hand Surgery (European Volume), 41(9), 957–962.

    Article  CAS  Google Scholar 

  94. Conner-spady, B. L., Marshall, D. A., Bohm, E., Dunbar, M. J., Loucks, L., Al, Khudairy A., et al. (2015). Reliability and validity of the EQ-5D-5L compared to the EQ-5D- 3L in patients with osteoarthritis referred for hip and knee replacement. Quality of Life Research, 24, 1775–1784.

    Article  PubMed  Google Scholar 

  95. Brazier, J., Jones, N., & Kind, P. (1993). Testing the validity of the euroqol and comparing it with the SF-36 health survey questionnaire. Quality of Life Research, 2(3), 169–180.

    Article  CAS  PubMed  Google Scholar 

  96. Sonntag, M., Konnopka, A., Leichsenring, F., Salzer, S., Beutel, M. E., Herpertz, S., et al. (2013). Reliability, validity and responsiveness of the EQ-5D in assessing and valuing health status in patients with social phobia. Health and Quality of Life Outcomes, 11(215), 1–9.

    Google Scholar 

  97. Kaasa, S., Mastekaasa, A., & Naess, S. (1988). Quality of life of lung cancer patients in a randomized clinical trial evaluated by a psychosocial well-being questionnaire. Acta Oncologica, 27, 335–342.

    Article  CAS  PubMed  Google Scholar 

  98. Kaasa, S., Mastekaasa, A., Stokke, I., & Naess, S. (1988). Validation of a Quality of Life Questionnaire for use in clinical trials for treatment of patients with inoperable lung cancer. European Journal of Cancer and Clinical Oncology, 24(4), 691–701.

    Article  CAS  PubMed  Google Scholar 

  99. WHOQOL. (1998). Development of the World Health Organization WHOQOL-BREF Quality of Life Assessment. Psychological Medicine, 28, 551–558.

    Article  Google Scholar 

  100. Berlim, M. T., Pavanello, D. P., Caldieraro, M. A. K., & Fleck, M. P. A. (2005). Reliability and validity of the WHOQOL BREF in a sample of Brazilian outpatients with major depression. Quality of Life Research, 14, 561–564.

    Article  PubMed  Google Scholar 

  101. Skevington, S. M., Lotfy, M., & Connell, K. A. O. (2004). The World Health Organization’ s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial A Report from the WHOQOL Group. Quality of Life Research, 13, 299–310.

    Article  CAS  PubMed  Google Scholar 

  102. Cummins, R. A., McCabe, M. P., & Romeo, Y. (1994). The Comprehensive Quality of Life Scale (Comqol): Instrument development and psychometric evaluation on college staff and students. Educational and Psychological Measurement, 54(2), 372–382.

    Article  Google Scholar 

  103. Gullone, E., & Cummins, R. A. (1999). The comprehensive quality of life scale: A psychometric evaluation with an adolescent sample. Behaviour Change, 16(2), 127–139.

    Article  Google Scholar 

  104. Cummins, R. A. (1997). Self-rated Quality of life Scales for people with an intellectual disability: A review. Journal of Applied Research in Intellectual Disabilities, 1(3), 199–216.

    Article  Google Scholar 

  105. Galanakis, M., Lakioti, A., Pezirkianidis, C., Karakasidou, E., & Stalikas, A. (2017). Reliability and Validity of the Satisfaction with Life Scale (SWLS) in a Greek Sample. International Journal of Humanities and Social Studies, 5(2), 120–127.

    Google Scholar 

  106. Post, M. W., Van Leeuwen, C. M., Van Koppenhagen, C. F., & De Groot, S. (2012). Validity of the life satisfaction questions, the life satisfaction questionnaire, and the satisfaction with life scale in persons with spinal cord injury. Archives of Physical Medicine and Rehabilitation, 93(10), 1832–1837.

    Article  PubMed  Google Scholar 

  107. López-ortega, M., Torres-castro, S., & Rosas-carrasco, O. (2016). Psychometric properties of the Satisfaction with Life Scale (SWLS): Secondary analysis of the Mexican Health and Aging Study. Health and Quality of Life Outcomes, 14(170), 1–7.

    Google Scholar 

  108. Pavot, W., & Diener, E. (2009). Review of the satisfaction with life scale. Social Indicators Research Series, 39, 101.

    Article  Google Scholar 

  109. Brorsson, B., Ifver, J., & Hays, R. D. (1993). The Swedish health-related quality of life survey. Quality of Life Research, 2(1), 33–45.

    Article  CAS  PubMed  Google Scholar 

  110. Ware, J. E., Kosinski, M., & Keller, S. D. (1996). A 12-Item Short-Form Health Survey: Construction of scales and preliminary tests of reliability and validity. Medical Care, 34(3), 220–233.

    Article  PubMed  Google Scholar 

  111. Huo, T., Guo, Y., Shenkman, E., & Muller, K. (2018). Assessing the reliability of the short form 12 (SF-12) health survey in adults with mental health conditions: A report from the wellness incentive and navigation (WIN) study. Health and Quality of Life Outcomes, 16(34), 1–8.

    Google Scholar 

  112. Hayes, C. J., Bhandari, N. R., Kathe, N., & Payakachat, N. (2017). Reliability and validity of the medical outcomes study short form-12 version 2 (SF-12v2) in adults with non-cancer pain. Healthcare, 5(22), 1–12.

    Google Scholar 

  113. Salyers, M. P., Bosworth, H. B., Swanson, J. W., Lamb-Pagone, J., & Osher, F. C. (2000). Reliability and validity of the SF-12 Health Survey among people with severe mental illness. Medical Care, 38(11), 1141–1150.

    Article  CAS  PubMed  Google Scholar 

Download references

Acknowledgements

Authors express their appreciation to Paola Durando, health sciences librarian, Queen’s University for her input during the literature search.

Funding

Authors declare that we have not received any funding for this review.

Author information

Authors and Affiliations

  1. School of Rehabilitation Therapy, Queen’s University, Louise D. Acton Building, 31 George Street, Kingston, ON, K7L 3N6, Canada

    Surajo Kamilu Sulaiman, Heather Michelle Aldersey, Nora Fayed & Christiana Okyere

  2. Department of Physiotherapy, Faculty of Allied Health Sciences, College of Health Sciences, Bayero University, PMB 3011, Kano, Nigeria

    Bashir Kaka

Authors
  1. Surajo Kamilu Sulaiman
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Heather Michelle Aldersey
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Nora Fayed
    View author publications

    You can also search for this author in PubMed Google Scholar

  4. Bashir Kaka
    View author publications

    You can also search for this author in PubMed Google Scholar

  5. Christiana Okyere
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Surajo Kamilu Sulaiman.

Ethics declarations

Conflict of interest

Authors declare that we have no conflict of interest.

Ethical approval

This article does not contain any study with human participants performed by any of the authors.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Sulaiman, S.K., Aldersey, H.M., Fayed, N. et al. Quality of life assessment scales in polio survivors: a scoping review. Qual Life Res 28, 2341–2357 (2019). https://doi.org/10.1007/s11136-019-02185-x

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11136-019-02185-x

Keywords

Search

Navigation