Skip to main content

Advertisement

Log in

Evaluation of Ongoing Participation of People with Schizophrenia in a Mutual Support Group as a Complementary Intervention to Outpatient Psychiatric Treatment

  • Original Paper
  • Published:
Psychiatric Quarterly Aims and scope Submit manuscript

Abstract

This study aims to evaluate a group of people with schizophrenia undergoing outpatient treatment and who participate in a mutual support intervention, compared to another group of people with the same diagnosis, but attending only the usual outpatient treatment. This is a prospective study, with two measurements between six months. The mutual support group was initially composed of 16 people and the treatment as usual group was composed of 15 people. Clinical (medication adherence and functioning) and Recovery (hope, well-being, recovery and internalized stigma) outcomes were assessed. Nonparametric tests were used to verify differences in measurements between groups and between two moments. A higher level of internalized stigma and a decrease in the adherence to drug treatment in the treatment as usual group were verified. When comparing the pre-post difference between groups, there was a greater increase in adherence to drug treatment in the mutual support group. Our data point to more favorable results in the mutual support group, showing that ongoing participation in these groups is an important tool for the recovery process and for the treatment itself.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

Data Availability

The data sets generated during and/or analyzed during the current study are available from the corresponding author on reasonable request.

References

  1. Anthony WA. Recovery from mental illness: the guiding vision of the mental health service system in the 1990s. Psychosoc Rehabil J. 1993;16(4):11–23.

    Google Scholar 

  2. Balsanelli, ACS, Grossi, SAA, Herth, KA. Cultural adaptation and validation of the Herth Hope Index for Portuguese language: study in patients with chronic illness. Texto contexto - enferm. [Internet]. 2010 Dec [cited 2020 Nov 16]; 19(4): 754–761. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072010000400019&lng=en.

  3. Bech P. Measuring the dimensions of psychological general well-being by the WHO-5. QoL Newsletter. 2004;32:15–6.

    Google Scholar 

  4. Bellamy C, Schmutte T, Davidson L. An update on the growing evidence base for peer support. Ment Health Soc Incl. 2017;21(3):161–7.

    Article  Google Scholar 

  5. Boardman G, McCann T, Kerr D. A peer support programme for enhancing adherence to oral antipsychotic medication in consumers with schizophrenia. J Adv Nurs. 2014;70(10):2293–302.

    Article  PubMed  Google Scholar 

  6. Brissos S, Palhava F, Marques JG, Mexia S, Carmo AL, Carvalho M, Dias C, Franco JD, Mendes R, Zuzarte P, Carita AI, Molodynski A, Figueira ML. The Portuguese version of the Personal and Social Performance Scale (PSP): reliability, validity, and relationship with cognitive measures in hospitalized and community schizophrenia patients. Soc Psych Psych Epid. 2012;47(7):1077–86.

    Article  Google Scholar 

  7. Corrigan PW, Larson JE, Michaels PJ, Buchholz BA, Del Rossi R, Fontecchio MJ, Rüsch N. Diminishing the self-stigma of mental illness by coming out proud. Psychiat Res. 2015;229(1–2):148–54.

    Article  Google Scholar 

  8. Corrigan PW, Phelan SM. Social support and recovery in people with serious mental illnesses. Community Ment Hlt J. 2004;40(6):513–23.

    Article  Google Scholar 

  9. Corrigan PW, Sokol KA, Rüsch N. The impact of self-stigma and mutual help programs on the quality of life of people with serious mental illnesses. Community Ment Hlt J. 2013;49(1):1–6.

    Article  Google Scholar 

  10. Davidson L, Chinman M, Kloos B, Weingarten R, Stayner D, Tebes JK. Peer support among individuals with severe mental illness: A review of the evidence. Clin Psychol-Sci Pr. 1999;6(2):165–87.

    Article  Google Scholar 

  11. de Souza CM, Hidalgo MPL. World Health Organization 5-item well-being index: validation of the Brazilian Portuguese version. Eur Arch Psy Clin N. 2012;262(3):239–44.

    Google Scholar 

  12. Druss BG, Zhao L, von Esenwein SA, Bona JR, Fricks L, Jenkins-Tucker S, Lorig K. The Health and Recovery Peer (HARP) Program: A peer-led intervention to improve medical self-management for persons with serious mental illness. Schizophr Res. 2010;118(1–3):264–70. https://doi.org/10.1016/j.schres.2010.01.026.

    Article  PubMed  PubMed Central  Google Scholar 

  13. Kelly JF, Yeterian JD. Mutual-help groups. In: O’Donohue WT, Cummings NA, editors. Evidence-based adjunctive treatments: Practical Resources for the Mental Health Professional. Burlington: Academic Press; 2008. p. 61–105.

    Chapter  Google Scholar 

  14. Le Boutillier C, Leamy M, Bird VJ, Davidson L, Williams J, Slade M. What does recovery mean in practice? A qualitative analysis of international recovery-oriented practice guidance. Psychiatr Serv. 2011;62(12):1470–6.

    Article  PubMed  Google Scholar 

  15. Leamy M, Bird V, Le Boutillier C, Williams J, Slade M. Conceptual framework for personal Recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry. 2011;199(6):445–52.

    Article  PubMed  Google Scholar 

  16. Levy LH. Self-help groups. In: Rappaport J, Seidman E, editors. Handbook of community psychology. New York : Kluwer Academic; 2000. p. 591–613.

    Chapter  Google Scholar 

  17. Lloyd-Evans B, Mayo-Wilson E, Harrison B, Istead H, Brown E, Pilling S, Kendall T. A systematic review and meta-analysis of randomised controlled trials of peer support for people with severe mental illness. BMC Psychiatry. 2014;14(1):39.

    Article  PubMed  PubMed Central  Google Scholar 

  18. Magura S, Laudet AB, Mahmood D, Rosenblum A, Knight E. Adherence to medication regimens and participation in dual-focus self-help groups. Psychiat Serv. 2002;53:310–6.

    Article  Google Scholar 

  19. Mahlke CI, Kramerb UM, Beckerc T, Bocka T. Peer support in mental health services. Curr Opin Psychiatry. 2014;27(4):276–81.

    Article  PubMed  Google Scholar 

  20. Moreira IC, Bandeira M, Pollo TC, Oliveira MS. Cross-cultural adaptation to Brazil of Medication Adherence Rating Scale for psychiatric patients. J Bras Psiquiatr. 2014;63(4):273–80.

    Article  Google Scholar 

  21. Nasrallah H, Morosini P, Gagnon DD. Reliability, validity and ability to detect change of the Personal and Social Performance scale in patients with stable schizophrenia. Schizophr Res. 2008;161(2):213–24.

    Google Scholar 

  22. Pistrang N, Barker C, Humphreys K. Mutual help groups for mental health problems: A review of effectiveness studies. Am J CommunPsychol. 2008;42(1–2):110–21.

    Article  Google Scholar 

  23. Pyle M, Pilling S, Machin K, Allende-Cullen G, Morrison AP. Peer support for internalised stigma experienced by people with psychosis: Rationale and recommendations. Psychosis. 2018;10(2):146–52.

    Article  Google Scholar 

  24. Ritsher JB, Otilingam PG, Grajales M. Internalized stigma of mental illness: psychometric properties of a new measure. Schizophr Res. 2003;121(1):31–49.

    Google Scholar 

  25. Ronzani TM, Soares RG, Nery FC, Silveira PS. Adaptação transcultural brasileira da escala de estigma internalizado de transtorno mental - ismi-br. Gerais, Rev Interinst Psicol. 2017;10(1):25–34.

    Google Scholar 

  26. Rosenblum A, Matusow H, Fong C, Vogel H, Uttaro T, Moore TL, Magura S. Efficacy of dual focus mutual aid for persons with mental illness and substance misuse. Drug Alcohol Depen. 2014;135:78–87. https://doi.org/10.1016/j.drugalcdep.2013.11.012.

    Article  Google Scholar 

  27. Silva TR, Berberian AA, Gadelha A, Villares CC, Martini LC, Bressan RA. Validação da Recovery Assessment Scale (RAS) no Brasilparaavaliar a capacidade de superação das pessoas com esquizofrenia. J Bras Psiquiatr. 2017;66(1):1–8.

    Article  Google Scholar 

  28. Slade M, Leamy M, Bacon F, Janosik M, Le Boutillier C, Williams J, Bird V. International differences in understanding recovery: systematic review. Epidemiol Psych Sci. 2012;21(4):353–64.

    Article  CAS  Google Scholar 

  29. Thompson K, Kulkarni J, Sergejew AA. Reliability and validity of a new Medication Adherence Rating Scale (MARS) for the psychoses. Schizophr Res. 2000;42:241–7.

    Article  CAS  PubMed  Google Scholar 

  30. van Weeghel J, van Zelst C, Boertien D, Hasson-Ohayon I. Conceptualizations, assessments, and implications of personal recovery in mental illness: A scoping review of systematic reviews and meta-analyses. Psychiatr Rehabil J. 2019;42(2):169.

    Article  PubMed  Google Scholar 

  31. Worrall H, Schweizer R, Marks E, Yuan L, Lloyd C, Ramjan R. The effectiveness of support groups: a literature review. Ment Health Soc Incl. 2018;22(2):85–93.

    Article  Google Scholar 

Download references

Acknowledgements

We are grateful to Dr. Cinthia Hiroko Higuchi, for supporting the data tabulation in the database, and to nurse Eliane Cristina Almeida Costa, for the indication of patients of the treatment as usual group.

Funding

This study was financed in part by the Coordination for the Improvement of Higher Education Personnel—Brazil (CAPES)—Finance Code 001.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to José Alberto Orsi.

Ethics declarations

Ethics Approval

The project was approved by an Ethics Committee on Human Research (protocol number: 3.225.681), with all participants providing informed consent.

Consent to Participate

All participants completed written informed consent.

Conflict of Interest

RAB has received honoraria for speaking and chairing engagements from Janssen, Torrent, Ache and Sanofi-Aventis outside this manuscript. He has also received personal fees and non-financial support from Janssen, personal fees from Pfizer, Torrent and Sanofi-Aventis outside this manuscript. The other authors declare that they have no conflict of interest.

Additional information

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Orsi, J.A., Malinowski, F.R.L., Kagan, S. et al. Evaluation of Ongoing Participation of People with Schizophrenia in a Mutual Support Group as a Complementary Intervention to Outpatient Psychiatric Treatment. Psychiatr Q 92, 1283–1296 (2021). https://doi.org/10.1007/s11126-021-09893-z

Download citation

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s11126-021-09893-z

Keywords

Navigation