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Overcoming a Bad Day: a Qualitative Look into the Dementia Caregiving Experiences of Mexican-Origin Women in East Los Angeles

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Abstract

The number of Latinos with Alzheimer’s disease (AD) is projected to more than double by 2030. Yet, the current literature is lagging on Alzheimer’s caregiving among Latinos. This study explores how Mexican origin women experience dementia caregiving, and the coping strategies they use to manage their caregiving situations. Nine women were identified as caregivers of a family member with AD or dementia from a larger study on caregiving. Interviews with them were collected and subsequently analyzed using a modified grounded theory approach to reduce the data to identify thematic content. All but one participant described caregiving as “tiring,” “wearing,” or “hard.” They reported suffering from stress, insomnia, nervousness, migraines, and/or depression because of their caregiving experiences. Participants engaged in various coping strategies to help combat the perceived negative consequences of their caregiving experiences. The most commonly reported strategies were various forms of distraction, and meditation or prayer. The Mexican origin women in this study experience faced two types of interpersonal challenges related to dementia caregiving: changes in the care receiver’s personality and behaviors, and physical care needs. They engaged in various coping to strategies to address the difficulties of their situation. This study provides formative research for identifying research questions and topics of examination in the future.

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References

  • 2012–2016 American Community Survey 5-Year Estimate. (n.d.) Retrieved November 26, 2018, from U.S. Census Bureau https://factfinder.census.gov/faces/tableservices/jsf/pages/productview.xhtml?src=CF. Accessed 26 Nov 2018

  • Adams, B., Aranda, M. P., Kemp, B., & Takagi, K. J. J. o. C. G. (2002). Ethnic and gender differences in distress among Anglo American, African American, Japanese American, and Mexican American spousal caregivers of persons with dementia. J Journal of Clinical Geropsychology, 8(4), 279–301.

    Article  Google Scholar 

  • Alzheimer's Association. (2018). 2018 Alzheimer's disease facts and figures. Alzheimer's & Dementia, 14(3), 367–429.

  • Apesoa-Varano, E. C., Barker, J. C., & Hinton, L. (2012). Mexican-American families and dementia: An exploration of “work” in response to dementia-related aggressive behavior. In Aging, health, and longevity in the Mexican-origin population (pp. 277–291). Springer.

  • Bernard, H. R. (2006). Research methods in anthropology: Qualitative and quantitative approaches (4th ed.). Lanham: MD AltaMira Press.

    Google Scholar 

  • Caregiving in the U.S.: A Focused Look at the Ethnicity of Those Caring for Someone Age 50 or Older. (2009). Retrieved from https://assets.aarp.org/rgcenter/il/caregiving_09.pdf. Accessed 26 Nov 2018

  • Chumbler, N. R., Grimm, J. W., Cody, M., & Beck, C. (2003). Gender, kinship and caregiver burden: The case of community-dwelling memory impaired seniors. International Journal of Geriatric Psychiatry, 18(8), 722–732.

    Article  Google Scholar 

  • Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R., Ingham, J. M., & management, s. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain, 26(4), 922–953.

    Google Scholar 

  • Etters, L., Goodall, D., & Harrison, B. E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20(8), 423–428.

    Article  Google Scholar 

  • Evercare study of Hispanic family caregiving in the U.S.: Findings from a national study. (2008). Retrieved from.

  • Goldman, N. (2016). Will the Latino mortality advantage endure? Research on Aging, 38(3), 263–282. Retrieved from. https://doi.org/10.1177/0164027515620242.

    Article  Google Scholar 

  • Gurland, B. J., Wilder, D. E., Lantigua, R., Stern, Y., Chen, J., Killeffer, E. H., & Mayeux, R. (1999). Rates of dementia in three ethnoracial groups. International Journal of Geriatric Psychiatry, 14(6), 481–493.

    Article  Google Scholar 

  • Hinton, L., Chambers, D., Velásquez, A., Gonzalez, H., & Haan, M. (2006). Dementia neuropsychiatric symptom severity, help-seeking patterns, and family caregiver unmet needs in the Sacramento area Latino study on aging (SALSA). Clinical Gerontologist, 29(4), 1–15.

    Article  Google Scholar 

  • Katz, S. (1983). Assessing self-maintenance: Activities of daily living, mobility, and instrumental activities of daily living. Journal of the American Geriatrics Society, 31(12), 721–727.

    Article  Google Scholar 

  • Kolb, S. M. (2012). Grounded theory and the constant comparative method: Valid research strategies for educators. Journal of Emerging Trends in Educational Research and Policy Studies, 3(1), 83–86.

    Google Scholar 

  • Lyketsos, C. G., Carrillo, M. C., Ryan, J. M., Khachaturian, A. S., Trzepacz, P., Amatniek, J., et al. (2011). Neuropsychiatric symptoms in Alzheimer’s disease. Alzheimer's and Dementia. The Journal of the Alzheimer's Association, 7(5), 532–539.

    Article  Google Scholar 

  • McDermott, E., & Mendez-Luck, C. A. (2018). The processes of becoming a caregiver among Mexican-origin women: A cultural psychological perspective. SAGE Open, 8(2), 2158244018771733.

    Article  Google Scholar 

  • Mendez-Luck, C. A., & Anthony, K. P. (2015). Marianismo and caregiving role beliefs among US-born and immigrant Mexican women. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 71(5), 926–935.

    Article  Google Scholar 

  • Mendez-Luck, C. A., Trejo, L., Miranda, J., Jimenez, E., Quiter, E. S., & Mangione, C. M. (2011). Recruitment strategies and costs associated with community-based research in a Mexican-origin population. The Gerontologist, 51(suppl_1), S94–S105.

    Article  Google Scholar 

  • Mendez-Luck, C. A., & Anthony, K. P. (2015). Marianismo and caregiving role beliefs among US-born and immigrant Mexican women. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 71(5), 926–935.

  • Mendez-Luck, C. A., Applewhite, S. R., Lara, V. E., & Toyokawa, N. (2016). The concept of familism in the lived experiences of Mexican-origin caregivers. Journal of Marriage and Family, 78(3), 813–829.

    Article  Google Scholar 

  • Mittelman, M. S., Roth, D. L., Haley, W. E., Zarit, S. H., & Sciences, S. (2004). Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patients with Alzheimer's disease: Results of a randomized trial. The Journals of Gerontology Series B: Psychological Sciences, 59(1), P27–P34.

    Article  Google Scholar 

  • National Academies of Sciences, Engineering, and Medicine. (2016). Families caring for an aging America. In: National Academies Press.

  • Ortman, J. M., Velkoff, V. A., & Hogan, H. (2014). An aging nation: the older population in the United States: (pp. 25-1140). Suitland, MD, USA: United States Census Bureau, Economics and Statistics Administration, US Department of Commerce.

  • Pinquart, M., & Sörensen, S. (2003). Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychology and aging, 18(2), 250.

  • Roschelle, A. (1997). No more kin: Exploring race, class, and gender in family networks. Thousand Oaks: Sage Publications.

  • Schwandt, T. A. (2000). Three epistemological stances for qualitativae inquiry: Interpretivism, hermeneutics, and social constructionism. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research. Thousand Oaks: Sange Publications, Inc.

    Google Scholar 

  • Strauss, A. L., & Corbin, J. (1994). Grounded theory methodology: An overview. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 273–285). Thousand Oaks: Sage Publications.

    Google Scholar 

  • Thompson, L. W., Solano, N., Kinoshita, L., Coon, D. W., Mausbach, B., Gallagher-Thompson, D. J. J. O. M. H., & Aging. (2002). Pleasurable activities and mood: Differences between Latina and Caucasian dementia family caregivers. Journal of Mental Health and Aging.

  • Wallace, S. P., & Facio, E. L. (1987). Moving beyond familism: Potential contributions of gerontological theory to studies of Chicano/Latino aging. Journal of Aging Studies, 1(4), 337–354.

    Article  Google Scholar 

  • Wu, S., Vega, W., Resendez, J., & Jin, H. (2016). Latinos and Alzheimer’s disease: New numbers behind the crisis. Projection of the costs for US Latinos living with Alzheimer’s disease through 2060.

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Correspondence to Lourdes R. Guerrero.

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Guerrero, L.R., Mendez-Luck, C.A. Overcoming a Bad Day: a Qualitative Look into the Dementia Caregiving Experiences of Mexican-Origin Women in East Los Angeles. J Cross Cult Gerontol 34, 373–384 (2019). https://doi.org/10.1007/s10823-019-09373-9

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