Abstract
This study examined how 34 senior students and first-year college students with autism spectrum disorder, their mothers (n = 34) and fathers (n = 26) navigate the higher education transition, and how this context impacts on dynamics in the parent–child relationships. Semi-structured interviews were analyzed based on grounded theory and dyadic analysis principles. Both parties were confronted with an abundance of challenges and experienced strong feelings of ambivalence, stress and anxiety. Differences in perspectives occurred regarding the construction of adulthood, the acquisition of autonomy, disclosure and subscribing to support services. These differences caused tensions in the parent–child relationship, hindering the transformation of the relationship into an adult-like mutual relationship. Clinical implications are extrapolated on the basis of these findings.
Similar content being viewed by others
References
Adreon, D., & Durocher, J. S. (2007). Evaluating the college transition needs of individuals with high-functioning autism spectrum disorders. Intervention in School and Clinic, 42(5), 271–279. https://doi.org/10.1177/10534512070420050201.
American Psychiatric Assocation. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Press.
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Wahington, DC: American Psychiatric Association. (Text revision)
Aquilino, W. S. (1997). From adolescent to young adult: A prospective study of parent-child relations during the transition to adulthood. Journal of Marriage and the Family, 59, 670–686.
Aquilino, W. S. (2006). The noncustodial father–child relationship from adolescence into young adulthood. Journal of Marriage and Family, 68(4), 929–946.
Arnett, J. J. (1997). Young people’s conceptions of the transition to adulthood. Youth & Society, 29, 1–23.
Barnhill, G. P. (2014). Supporting students with asperger syndrome on college campuses: Current practices. Focus on Autism and Other Developmental Disabilities. https://doi.org/10.1177/1088357614523121.
Baumeister, R. F. (1982). Self-esteem, self-presentation, and future interaction: A dilemma of reputation. Journal of Personality, 50(1), 29–45. https://doi.org/10.1111/j.1467-6494.1982.tb00743.x.
Baxter, L. A., & Montgomery, B. M. (1996). Relating: Dialogues & dialectics. New York: Guilford Press.
Beyers, W., & Goossens, L. (2008). Dynamics of perceived parenting and identity formation in late adolescence. Journal of Adolescence, 31, 165–184.
Bogdan, R. C., & Biklen, S. K. (1998). Qualitative research in education: An introduction to theory and methods (3rd ed.). Boston: Allyn & Bacon.
Bowen, G. A. (2006). Grounded theory and sensitizing concepts. Journal of Qualitative Research, 5(3), 12–23. https://doi.org/10.1177/160940690600500304.
Brugha, S., McManus, S., Bankart, J., Scott, F., Purdon, S., Smith, J., et al. (2011). Epidemiology of autism spectrum disorders in adults in the community in England. Archives of General Psychiatry, 68(5), 459–465. https://doi.org/10.1001/archgenpsychiatry.2011.38.
Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., et al. (2012). Caregiver burden as people with autism spectrum disorder and attention-deficit/hyperactivity disorder transition into adolescence and adulthood in the United Kingdom. Journal of the American Academy of Child & Adolescent Psychiatry, 51(9), 879–888.
Cai, R. Y., & Richdale, A. L. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(1), 31–41. https://doi.org/10.1007/s10803-015-2535-1.
Camarena, P. M., & Sarigiani, P. A. (2009). Postsecondary educational aspirations of high-functioning adolescents with autism spectrum disorders and their parents. Focus on Autism and Other Developmental Disabilities, 24, 115–128. https://doi.org/10.1177/1088357609332675.
Caughlin, J. P., & Afifi, W. A. (2004). When is topic avoidance unsatisfying? Examining moderators of the association between avoidance and dissatisfaction. Human Communication Research, 30, 479–513. https://doi.org/10.1111/j.1468-2958.2004.tb00742.x.
Centers for Disease Control and Prevention. (2016). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2012. Surveillance Summaries, 65(3), 1–23.
Charmaz, K. (2006). Constructing grounded theory. London: Sage.
Cheak-Zamora, N. C., Teti, M., & First, J. (2015). ‘Transitions are scary for our kids, and they’re scary for us’: Family member and youth perspectives on the challenges of transitioning to adulthood with autism. Journal of Applied Research in Intellectual Disabilities, 28(6), 548–560. https://doi.org/10.1111/jar.12150.
Chickering, A. W., & Reisser, L. L. (1993). Education and identity (2nd ed.). San Francisco: Jossey-Bass.
Corbin, J., & Strauss, A. (2008). Basics of qualitative research (3rd ed.). London: Sage.
Cox, B., Thompson, K., Anderson, A., Mintz, A., Locks, T., Morgan, L., Edelstein, J., & Wolz, A. (2017). College experiences for students with autism spectrum disorder (ASD): Personal identity, public disclosure, and institutional support. Journal of College Student Development, 58(1), 71–78.
Davidovitch, M., Hemo, B., Manninhg-Coutney, P., & Fombonne, E. (2013). Prevalence and incidence of autism spectrum disorder in an Israeli population. Journal of Autism and Developmental Disorders, 43(4), 785–793. https://doi.org/10.1007/s10803-012-1611-z.
De Mol, J. (2008). Children’s influence and processes of interpersonal influence in family systems. Doctoral dissertation. Ghent University.
Eisikovits, Z., & Koren, C. (2010). Approaches to and outcomes of dyadic interview analysis. Qualitative Health Research, 20(12), 1642–1655. https://doi.org/10.1177/1049732310376520.
Elias, R., & White, S. W. (2017). Autism goes to college: Understanding the needs of a student population on the rise. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3075-7.
Elsabbagh, M., Divan, G., Koh, Y., Kim, Y., Kauchali, S., Marcín, C., et al. (2012). Global prevalence of autism and other pervasive developmental disorders. Autism Research, 5(3), 160–179. https://doi.org/10.1002/aur.239.
Erikson, E. H. (1974). Dimensions of a new identity. New York: Norton.
Fombonne, E., Quircke, S., & Hagen, A. (2011). Epidemiology of autism spectrum disorders. In D. G. Amaral, G. Dawson & D. H. Geschwind (Eds.), Autism spectrum disorders (pp. 90–111). Oxford: Oxford University Press.
Friedman, N., Warfield, M. E., & Parish, S. (2013). Transition to adulthood for individuals with autism spectrum disorders: Current issues and future perspectives. Neuropsychiatry, 3(2), 181–192. https://doi.org/10.2217/npy.13.13.
Gelbar, N. W., Shefyck, A., & Reichow, B. (2015). A comprehensive survey of current and former college students with autism spectrum disorders. The Yale Journal of Biology and Medicine, 88(1), 45–68.
Grotevant, H. D., & Cooper, C. R. (1986). Individuation in family relationships: A perspective on individual differences in the development of identity and role-taking skill in adolescence. Human Development, 29, 82–100. https://doi.org/10.1159/000273025.
Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24, 77–88.
Hendrickson, J. M., Woods-Groves, S., Rodgers, D. B., & Datchuk, S. (2017). Perceptions of students with autism and their parents: The college experience. Education and Treatment of Children, 40(4), 571–596.
Hinde, R. A. (1997). Relationships: A dialectical perspective. Hove: Psychology Press.
Howlin, P., & Moss, P. (2012). Adults with autism spectrum disorders. Canadian Journal of Psychiatry, 57(5), 275–283.
Huston, T. L. (2002). Power. In H. H. Kelley, E. Berschied, A. Christensen, J. Harvey, T. L. Huston, G. Levinger, E. McClintock, L. A. Peplau & D. R. Peterson (Eds.), Close relationships (pp. 169–219). New York: Freeman.
Kenny, M. E. (1987). The extent and function of parental attachment among first-year college students. Journal of Youth and Adolescence, 16, 17–29.
Kenyon, D. B., & Koerner, S. S. (2009). Examining emerging-adults’ and parents’ expectations about autonomy during the transition to college. Journal of Adolescent Research, 24(3), 293–320.
Koren, C., Simhi, S., Lipman-Schiby, S., & Fogel, S. (2016). The partner in late-life repartnering: Caregiving expectations from an intergenerational perspective. International Psychogeriatrics, 28(9), 1555–1565.
Kuczynski, L., & De Mol, J. (2015). Dialectical models of socialization. In W. F. Overton, P. C. M. Molenaar, & R. M. Lerner (Eds.), Theory and method. Volume 1 of the Handbook of child psychology and developmental science (7th ed.) Hoboken, NJ: Wiley.
Leary, M. R., & Kowalski, R. M. (1990). Impression management: A literature review and two-component model. Psychological Bulletin, 107, 34–47. https://doi.org/10.1037/0033-2909.107.1.34.
Lefkowitz, E. S. (2005). Things have gotten better: Developmental changes among emerging adults after the transition to university. Journal of Adolescent Research, 20(1), 40–63.
Miles, M. B., & Huberman, A. M. (1994). Qualitative data analysis, an expanded sourcebook (2nd ed.). London: Sage.
Miller, L. C., & Berg, J. (1984). Selectivity and urgency in interpersonal exchange. In V. J. Derlega (Ed.), Communication, intimacy, and close relationships (pp. 161–206). Orlando, FL: Academic Press.
Morrison, J. Q., Sansoti, F. J., & Hadley, W. M. (2009). Parent perceptions of the anticipated needs and expectations for support for their college-bound students with asperger’s syndrome. Journal of Postsecondary Education and Disability, 22(2), 78–87.
Parkin, C. M., & Kuzuynski, L. (2012). Adolescent perspectives on rules and resistance within the parent-child relationship. Journal of Adolescent Research, 27(5), 632–658. https://doi.org/10.1177/0743558411435852.
Petronio, S. (2002). Boundaries of privacy: Dialectics of disclosure. Albany: State University of New York Press.
Pillay, Y., & Bhat, C. S. (2012). Facilitating support for students with Asperger’s syndrome. Journal of College Student Psychotherapy, 26, 140–154. https://doi.org/10.1177/1088357614523121.
Pinder-Amaker, S. (2014). Identifying the unmet needs of college students on the autism spectrum. Harvard Review of Psychiatry, 22(2), 125–137. https://doi.org/10.1097/HRP.0000000000000032.
Reczek, C. (2014). Conducting a multi family member interview study. Family Process, 53(2), 318–335.
Rice, K. G., & Mulkeen, P. (1995). Relationships with parents and peers: A longitudinal study of adolescent intimacy. Journal of Adolescent Research, 10, 338–357.
Rober, P., & Rosenblatt, P. C. (2013). Selective disclosure in a first conversation about a family death in James Agee’s novel a death in the family. Death Studies, 37, 172–194. https://doi.org/10.1080/07481187.2011.628555.
Sanford, C., Newman, L., Wagner, M., Cameto, R., Knokey, A. M., & Shaver, D. (2011). The post-high school outcomes of young adults with disabilities up to 6 years after high school. Menlo Park, CA: SRI International.
Segrin, C., Woszidlo, A., Givertz, M., & Montgomery, N. (2013). Parent and child traits associated with overparenting. Journal of Social and Clinical Psychology, 32(6), 569–595.
Shattuck, P. T., Narendörf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, L. J. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 129, 1042–1049. https://doi.org/10.1542/peds.2011-2864.
Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism Developmental Disorders, 41(5), 566–574. https://doi.org/10.1007/s10803-010-1070-3.
Thornton, A., Orbuch, T. L., & Axxin, W. G. (1995). Parent-child relationships during the transition to adulthood. Journal of Family Issues, 16, 538–564.
Van Bergeijk, E., Klin, A., & Volkmar, F. (2008). Supporting more able students on the autism spectrum: College and beyond. Journal of Autism and Developmental Disorders, 38(7), 1359–1370. https://doi.org/10.1007/s10803-007-0524-8.
Van Hees, V., Moyson, T., & Roeyers, H. (2015). Higher education experiences of students with autism spectrum disorder: Challenges, benefits and support needs. Journal of Autism and Developmental Disorders, 45(6), 1673–1688.
Van Parys, H., Provoost, V., Wyverkens, E., De Sutter, P., Pennings, G., & Buysse, A. (2016). Family communication about the donor conception: A multi-perspective qualitative study with lesbian parents and their children. Qualitative Health Research, 26(14), 1998–2008.
White, S. W., Elias, R., Salinas, C. E., Capriola, N., Conner, C. M., Asselin, S. B., Miyazaki, Y., et al. (2016). Students with autism spectrum disorder in college: Results from a preliminary mixed method needs analysis. Research in Developmental Disabilities, 56, 29–40
Author information
Authors and Affiliations
Contributions
VVH, HR, and JDM developed the study concept and established the study design. VVH collected the data and ran the analyses with guidance from HR and JDM. All authors interpreted the data. VVH performed literature review and prepared the draft with guidance from HR and JDM. All authors contributed intellectually critical revisions of the manuscript. All authors reviewed the final manuscript and gave approval for publication.
Corresponding author
Ethics declarations
Conflict of interest
The authors declare that they have no conflict of interest.
Electronic supplementary material
Below is the link to the electronic supplementary material.
Rights and permissions
About this article
Cite this article
Van Hees, V., Roeyers, H. & De Mol, J. Students with Autism Spectrum Disorder and Their Parents in the Transition into Higher Education: Impact on Dynamics in the Parent–Child Relationship. J Autism Dev Disord 48, 3296–3310 (2018). https://doi.org/10.1007/s10803-018-3593-y
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10803-018-3593-y