Skip to main content

Advertisement

Log in

Focus Group in Community Mental Health Research: Need for Adaption

  • Original Paper
  • Published:
Community Mental Health Journal Aims and scope Submit manuscript

Abstract

The article presents an analysis of the use of focus groups in researching community mental health users, starting with the reasons for using them, their implementation in mental health service users’ research, and the adaptations of focus group use when researching the experiences of users. Based on personal research experience and a review of scientific publications in the Google Scholar, Web of Science, ProQuest, EBSCOhost, and Scopus databases, 20 articles published between 2010 and 2016 were selected for targeted content analysis. A checklist for reporting on the use of focus groups with community mental health service users, aiming to improve the comparability, verifiability and validity was developed. Adaptations of the implementation of focus groups in relation to participants’ characteristics were suggested. Focus groups are not only useful as a scientific research technique, but also for ensuring service users’ participation in decision-making in community mental health and evaluating the quality of the mental health system and services .

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

References

  • Acocella, I. (2012). The focus group in social research: Advantages and disadvantages. Quality & Quantity, 46(4), 1125‒1136.

    Article  Google Scholar 

  • Adam, F., Hlebec, V., Kavčič, M., Mrzel, M., Podmenik, D., Poplas-Susič, T., et al. (2012). Kvalitativno raziskovanje v interdisciplinarni perspektivi. Ljubljana: Institute for developmental and strategic analysis.

    Google Scholar 

  • Ardila Gymez, S. (2014). Users’ perspective on the evaluation of mental health services. International Journal of Mental Health, 43(2), 70‒80.

    Article  Google Scholar 

  • Barry, A. M., & Yuill, C. (2012). Understanding the sociology of health: An introduction. Los Angeles: SAGE Publications.

    Google Scholar 

  • Bee, P., Gibbons, C., Callaghan, P., Fraser, C., & Lovell, K. (2016). Evaluating and quantifying user and carer involvement in mental health care planning (EQUIP): Co-development of a new patient-reported outcome measure. PLoS ONE., 11, e0149973.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Bengtsson, M. (2016). How to plan and perform a qualitative study using content analysis. NursingPlus Open, 2, 8–14.

    Article  Google Scholar 

  • Burton, A., Osborn, D., Atkins, L., Michie, S., Gray, B., Stevenson, F., Gilbert, H., & Walters, K. (2015). Lowering cardiovascular disease risk for people with severe mental illnesses in primary care: A Focus Group Study. PLoS ONE, 10, e0136603.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Busfield, J. (2000). Introduction: Rethinking the sociology of mental health. Sociology of Health & Illness, 22(5), 543–558.

    Article  Google Scholar 

  • Connell, J., Brazier, J., O’Cathain, A., Lloyd-Jones, M., & Paisley, S. (2012). Quality of life of people with mental health problems: A synthesis of qualitative research. Health and Quality of Life Outcomes, 10, 138.

    Article  PubMed  PubMed Central  Google Scholar 

  • Coughlan, M., Cronin, P., & Ryan, F. (2013). Doing a literature review in nursing, health and social care. London: SAGE publishing.

    Google Scholar 

  • Creswell, J. W., & Clark, C. V. L. (2007). Designing and conducting mixed methods research. Thousand Oaks: SAGE Publications.

    Google Scholar 

  • Cyr, J. (2016). The pitfalls and promise of focus groups as a data collection method. Sociological Methods & Research, 45(2), 231‒259.

    Article  Google Scholar 

  • Daremo, A., & Haglund, L. (2008). Activity and participation in psychiatric institutional care. Scandinavian Journal of Occupational Therapy, 15(3), 131‒142.

    Article  Google Scholar 

  • Dieleman, C. (2014). Mapping community capacity: Identifying existing community assets for supporting people with mental health problems who have been involved with the criminal justice system. Canadian Journal of Community Mental Health, 33(3), 29‒49.

    Article  Google Scholar 

  • Douglas, H., Boyle, M., & Lintzeris, N. (2011). The health impacts of khat: A qualitative study among Somali-Australians. The Medical Journal of Australia, 195(11), 666‒669.

    Article  Google Scholar 

  • Durkheim, E. (1964). Essays on sociology and philosophy. New York: Harper & Row.

    Google Scholar 

  • Eriksson, B. G., & Hummelvoll, J. K. (2012). To live as mentally disabled in the risk society. Journal of Psychiatric Mental Health Nursing, 19(7), 594‒602.

    Article  Google Scholar 

  • Flaker, V. (1998). Odpiranje norosti: vzpon in padec totalnih ustanov. Ljubljana: Založba/*cf.

    Google Scholar 

  • Flick, U. (2007). The SAGE qualitative research kit. Berlin: SAGE Publications.

    Google Scholar 

  • Foucault, M. (1977). Discipline and punish: The birth of the prison. New York: Pantheon Books.

    Google Scholar 

  • Frank, A. W. (1995). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.

    Book  Google Scholar 

  • Gilburt, H., Rose, D., & Slade, M. (2008). The importance of relationships in mental health care: A qualitative study of service users’ experiences of psychiatric hospital admission in the UK. BMC Health Services Research, 8, 92.

    Article  PubMed  PubMed Central  Google Scholar 

  • Girard, V., Bonin, J. P., Tinland, A., Farnarier, C., Pelletier, J. F., Delphin, M., et al. (2014). Mental health outreach and street policing in the downtown of a large French city. International Journal of Law and Psychiatry, 37(4), 376–382.

    Article  CAS  PubMed  Google Scholar 

  • Goffman, E. (1961). Asylums: Essays on the social situation of mental patients and other inmates. Harmondsworth: Penguin.

    Google Scholar 

  • Goodwin, V., & Happell, B. (2008). Psychiatric nurses’ attitudes toward consumer and carer participation in care: Part 2—barriers to participation. Policy Politics & Nursing Practise, 9(4), 249‒256.

    Google Scholar 

  • Gorodzeisky, A. (2011). Focus groups as a tool in the construction of questionnaires: The case of discriminatory attitudes. Quality & Quantity, 45(6), 1217‒1231.

    Article  Google Scholar 

  • Graham, T., Rose, D., Murray, J., Ashworth, M., & Tylee, A. (2014). User-generated quality standards for youth mental health in primary care: A participatory research design using mixed methods. BMJ Quality & Safety, 23, 857‒866.

    Article  Google Scholar 

  • Habermas, J. (1976). Saznanje i društveni interes. Beograd: Nolit.

    Google Scholar 

  • Harding, J. (2013). Qualitative data analysis from start to finish. London: SAGE Publishers.

    Google Scholar 

  • Hart, C. (2001). Doing a literature review: Releasing the social science research imagination. London: SAGE Publishers.

    Google Scholar 

  • Hird, S. (2003). What is wellbeing? A brief review of current literature and concepts. Scotland: NHS.

    Google Scholar 

  • Keyes, C. L. M. (2002). The mental health continuum: From languishing to flourishing in life. Journal of Health Social Research, 43(June), 207–222.

    Google Scholar 

  • Krueger, R. A., & Casey, M. A. (2002). Focus groups: A practical guide for applied researchers (3rd ed.). Thousand Oaks: SAGE.

    Google Scholar 

  • Lahman, M. K. E., Geist, M. R., Rodriguez, K. L., Graglia, P., & DeRoche, K. K. (2011). Culturally responsive relational reflexive ethics in research: The three Rs. Quality & Quantity, 45(6), 1397‒1415.

    Article  Google Scholar 

  • Laugharne, R., Priebe, S., McCabe, R., Garland, N., & Clifford, D. (2012). Trust, choice and power in mental health care: Experiences of patients with psychosis. International Journal of Social Psychology, 58(5), 496‒504.

    Article  Google Scholar 

  • Laverack, G. (2006). Improving health outcomes through community empowerment: A review of the literature. Journal of Health, Population and Nutricion, 24(1), 113–120.

    Google Scholar 

  • Laverty, S. M. (2003). Hermeneutic phenomenology and phenomenology: A comparison of historical and methodological considerations. International Journal of Qualitative Methods, 2, 21‒35.

    Article  Google Scholar 

  • Linhorst, D. M. (2005). Empowering people with severe mental illness: A practical guide. New York: Oxford University Press.

    Book  Google Scholar 

  • Lloyd-Evans, B., Sweeney, A., Hinton, M., Morant, N., Pilling, S., Leibowitz, J., et al. (2015). Evaluation of a community awareness programme to reduce delays in referrals to early intervention services and enhance early detection of psychosis. BMC Psychiatry, 15, 98.

    Article  PubMed  PubMed Central  Google Scholar 

  • Makdisi, L., Blank, A., Bryant, W., Andrews, C., Franco, L., & Parsonage, J. (2013). Facilitators and barriers to living with psychosis: An exploratory collaborative study of the perspectives of mental health service users. British Journal of Occupational Therapy, 76(9), 418–426.

    Article  Google Scholar 

  • Mgutshini, T. (2010). Risk factors for psychiatric re-hospitalization: An exploration. International Journal of Mental Health Nursing, 9(4), 257–267.

    Article  Google Scholar 

  • Miles, M. B., & Huberman, A. M. (2003). Analyses des données qualitatives. Paris: De Boeck Université.

    Google Scholar 

  • Moltu, C., Stefansen, J., Svisdahl, M., & Veseth, M. (2013). How to enhance the quality of mental health research: Service users’ experiences of their potential contributions through collaborative methods. American Journal Psychiatric Rehabilitation, 16(1), 1–21.

    Article  Google Scholar 

  • Ness, O., Borg, M., Semb, R., & Karlsson, B. (2014). Walking alongside:” collaborative practices in mental health and substance use care. International Journal of Mental Health System, 8(1), 55.

    Article  Google Scholar 

  • Neuman, W. L. (2003). Social research methods: Qualitative and quantitative approaches. Boston: Allyn and Bacon.

    Google Scholar 

  • Onwuegbuzie, A. J., Dickinson, W. B., Leech, N. L., & Zoran, A. G. (2009). A qualitative framework for collecting and analyzing data in focus group research. International Journal of Qualitative Method, 8(3), 1‒20.

    Article  Google Scholar 

  • Onwuegbuzie, A. J., Leech, N. L., & Collins, K. M. T. (2010). Innovative data collection strategies in qualitative research. The Qualitative Report, 15, 696‒726.

    Google Scholar 

  • Pahor, M. (2007). Sodelovanje med medicinskimi sestrami in zdravniki kot družbeni pojav. Zdravstvni Vestnik, 76, 43–47.

    Google Scholar 

  • Pahor, M., & Domanjko, B. (2005). Celostna obravnava starejših ljudi: pregled literature v Sloveniji 1994—junij 2004. Kakovostna starost, 8(1), 20–30.

    Google Scholar 

  • Panayiotopoulos, C., & Kerfoot, M. (2013). Evaluative survey of service users and professional experiences of a vocational rehabilitation unit for the mentally ill in cyprus. International Journal Mental Health, 42(2–3), 3‒16.

    Google Scholar 

  • Parsons, T. (1951). The social system. New York: The Free Press.

    Google Scholar 

  • Patton, M. Q. (2002). Qualitative research & evaluation methods. Thousand Oaks: SAGE Publications.

    Google Scholar 

  • Penchansky, R., & Thomas, J. W. (1981). The concept of access: Definition and relationship to consumer satisfaction. Medical Care, 19(2), 127‒140.

    Article  Google Scholar 

  • Polit, D. F., & Beck, C. T. (2006). Essentials of nursing research methods, appraisal, and utilization. Philadelphia: Lippincott Williams & Wilkins.

    Google Scholar 

  • Proudfoot, J., Parker, G., Hadzi Pavlovic, D., Manicavasagar, V., Adler, E., & Whitton, A. (2010). Community attitudes to the appropriation of mobile phones for monitoring and managing depression, anxiety, and stress. Journal of Medical Internet Resarch, 12(5), e64.

    Article  Google Scholar 

  • Quirk, A., & Lelliott, P. (2001). What do we know about life on acute psychiatric wards in the UK? A review of the research evidence. Social Science & Medicine, 53(12), 1565‒1574.

    Article  Google Scholar 

  • Rapley, T. (2007). Doing conversation, discourse and document analysis. London: SAGE.

    Book  Google Scholar 

  • Redmond, R., & Curtis, E. (2009). Focus groups: Principles and process. Nurse Researcher, 16(3), 57‒69.

    Article  Google Scholar 

  • Rifkin, S. B. (2003). A framework linking community empowerment and health equity: It is a matter of CHOICE. Journal Health Population Nutrition, 21(3), 168‒180.

    Google Scholar 

  • Sandhu, S., Killaspy, H., Krotofil, J., McPherson, P., Harrison, I., Dowling, S., et al. (2016). Development and psychometric properties of the client’s assessment of treatment scale for supported accommodation (CAT-SA). BMC Psychiatry, 16, 43.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  • Shefer, G., Rose, D., Nellums, L., Thornicroft, G., Henderson, C., & Evans-Lacko, S. (2013). ‘Our community is the worst’: The influence of cultural beliefs on stigma, relationships with family and help-seeking in three ethnic communities in London. International Journal of Social Psychiatry, 59(6), 535‒544.

    Article  Google Scholar 

  • Smith, J. A., Flower, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. London: SAGE.

    Google Scholar 

  • Smith, J. A., Harré, R., & Van Langenhove, L. (Eds.) (1995). Rethinking methods in psychology. London: SAGE.

    Google Scholar 

  • Starnino, V. R., Gomi, S., & Canda, E. R. (2014). Spiritual strengths assessment in mental health practice. British Journal of Social Work, 44, 849‒867.

    Article  Google Scholar 

  • Stenfert Kroese, B., Rose, J., Heer, K., & O’Brien, A. (2013). Gender issues for people with intellectual disabilities and mental health problems: Asking what service users and staff think. Advances in Mental Health Intellectual Disabilities, 7(4), 181‒190.

    Article  Google Scholar 

  • Sundar, P., Todd, S., Danseco, E., Kelly, L. J., & Cunning, S. (2012). Toward a culturally responsive approach to child and youth mental health practice: Integrating the perspectives of service users and providers. Canadian Journal Community Mental Health, 31(1), 99‒113.

    Article  Google Scholar 

  • Švab, V. (2011). Z dokazi podprto načrtovanje na področju duševnega zdravja. In J. Farkaš, Lainščak & L. Zaletel Kragelj (Eds.), Z dokazi podprto javno zdravje (pp. 73–77). Ljubljana: Faculty of Medicine, Department of Public Health.

    Google Scholar 

  • Sweeney, A., Gillard, S., Wykes, T., & Rose, D. (2015). The role of fear in mental health service users’ experiences: A qualitative exploration. Social Psychiatry Epidemiology, 50(7), 1079–1087.

    Article  Google Scholar 

  • Then, K. L., Rankin, J. A., & Ali, E. (2014). Focus group research: What is it and how can it be used?. Canadian Journal Cardiovascular Nursing, 24(1), 16‒22.

    Google Scholar 

  • Thornicroft, G., & Tansella, M. (2004). Components of a modern mental health service: A pragmatic balance of community and hospital care: Overview of systematic evidence. The British Journal of Psychiatry, 185(4), 283–290.

    Article  PubMed  Google Scholar 

  • Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. Intrnational Journal for Quality in Health Care, 19(6), 349‒357.

    Google Scholar 

  • Vaughn, S., Shay Schumm, J., & Sinagub, J. M. (1996). Focus group interviews in education and psychology. Thousand Oaks: SAGE Publications.

    Book  Google Scholar 

  • Videmšek, P. (2013). Iz institucij v skupnost: stanovanjske skupine nevladnih organizacij na področju duševnega zdravja. Ljubljana: Faculty of social work.

    Google Scholar 

  • WHO. (2012). Mental health evidence and research (MER). Retrieved November 26, 2016 from http://www.who.int/mental_health/evidence/en/.

  • Wilkinson, S. (1998). Focus group in health research: Exploring the meanings of health and illness. Journal of Health Psychology, 3(3), 329–348.

    Article  CAS  PubMed  Google Scholar 

  • Wilkinson, S. (2004). Focus group research. In D. Silverman (Ed.), Qualitative research: Theory, method, and practice (pp. 177–199). Thousand Oaks: SAGE.

    Google Scholar 

  • Zupančič, V., & Pahor, M. (2016). The role of non-governmental organizations in the mental health area: Differences in understanding. Zdravstveno Varstvo, 55(4), 231‒238.

    Google Scholar 

Download references

Funding

This research received no specific grant from any funding agency in the public, commercial, or not-for-profit sectors.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Vesna Zupančič.

Ethics declarations

Conflict of interest

There are no financial, personal, or academic conflicts of interest.

Ethical Approval

Ethical approval for this research was not required. Questions for patients were formulated in such a manner that did not allow an invasion of privacy or recollection of unpleasant events.

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Zupančič, V., Pahor, M. & Kogovšek, T. Focus Group in Community Mental Health Research: Need for Adaption. Community Ment Health J 55, 168–179 (2019). https://doi.org/10.1007/s10597-018-0271-7

Download citation

  • Received:

  • Accepted:

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10597-018-0271-7

Keywords

Navigation