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A Study on Perceptions of Undetectable = Untransmittable Among Gay Men with Human Immunodeficiency Virus in the HIV Community on Twitter in Japan: An Exploratory Qualitative Study Using a Modified Grounded Theory Approach

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Abstract

This study explores the perceptions of the Undetectable = Untransmittable (U = U) campaign among gay men with HIV in Japan who are part of the HIV community on Twitter. We conducted detailed semistructured interviews with 12 participants using a modified grounded theory approach. The analysis resulted in 31 concepts, 5 subcategories, 9 categories, and 2 core categories. The relationship between categories and core categories was examined in conjunction with the transcriptions, yielding a comprehensive category map depicting the process of understanding U = U. The three main processes emerged: participants expressed “expectations for improvement,” underwent stages of “understanding U = U,” and encountered “dilemmas” in forming their opinions. There are two routes to “understanding U = U”: Route 1 involved a frictionless understanding of U = U, and Route 2 involved difficulty in understanding the slogan. In both routes, participants experienced the dilemma of “but I still have HIV” and regarding its ease of use. These dilemmas and difficulties in understanding U = U affected their “expectations for improvement.” Efforts to promote U = U in Japan must address challenges in public understanding and related dilemmas. This entails reformulating the U = U message in simpler terms, leveraging professional explanations, disseminating it to a broader audience, and incorporating ideas from individuals living with HIV to enhance the message.

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Data Availability

The audio files recording the interviews are not shared because the participants did not agree for the raw data to be shared with other researchers due to the sensitive nature of this study. The datasets used and/or analyzed during the current study are available from the corresponding author upon reasonable request.

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Acknowledgements

We would like to acknowledge the HIV community on Twitter in Japan, and we appreciate their participation in this research. The first author was a recipient of a scholarship from the Iwadare Scholarship Foundation in 2022 and would like to thank its members.

Funding

The costs of the ethical review were funded by the Department of Medical Communication budget at the Graduate School of Medicine, Kyoto University, Japan. No other funding was received for conducting this study.

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Authors and Affiliations

Authors

Contributions

Takashi Nakadomari planned the research project, conducted the interviews, analyzed the data, and wrote and translated this article. Miho Iwakuma supervised the research processes and contributed to researcher triangulation during the analysis phase.

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Correspondence to Takashi Nakadomari.

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There are no conflicts of interest to disclose.

Ethical Approval

This study was approved by the Kyoto University Medical Ethics Committee (R3481). Also, this study was conducted in accordance with the Declaration of Helsinki and the Ethical Guidelines for Medical and Health Research Involving Human Subjects (revised March 10, 2022).

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All participants completed informed consent forms online.

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Nakadomari, T., Iwakuma, M. A Study on Perceptions of Undetectable = Untransmittable Among Gay Men with Human Immunodeficiency Virus in the HIV Community on Twitter in Japan: An Exploratory Qualitative Study Using a Modified Grounded Theory Approach. AIDS Behav (2024). https://doi.org/10.1007/s10461-024-04361-8

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