Abstract
Purpose
Individuals with psychotic disorders identify several parallel dimensions of recovery as being important, including illness related, personal and social domains. Learning how patients deal with the experience of psychosis and recovery early in the course of illness may provide insights for improvement of early intervention services. The primary aim of the present research is to explore experiences related to recovery for individuals receiving services following a first episode of psychosis (FEP) in a specialized early intervention (SEI) program and to examine key turning points that shape such recovery.
Methods
Semi-structured interviews were carried out with 30 individuals in early recovery following an FEP. Interpretative phenomenological analysis (IPA) was used to examine the subjectively identified important processes and turning points in relation to the illness domain of recovery.
Results
Participants described several early recovery processes including symptom recovery; reconciling the meaning of the illness experience; regaining control over the experience; and negotiation and acceptance of treatment. Of particular relevance were the various turning points associated with the recovery processes that were described.
Conclusions
Differences in illness acceptance trajectories and the turning points within such trajectories have important implications for understanding psychological adjustment to the experience of psychosis, its diagnosis and treatment. These findings underline the importance of assisting individuals with the construction of meaning following the initial illness experience.
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References
Calabrese JD, Corrigan PW (2005) Beyond dementia praecox: findings from long-term follow-up studies of schizophrenia. In: Corrigan Patrick W (ed) Recovery in mental illness: broadening our understanding of wellness. American Psychological Association, Washington, DC, pp 63–84
Zipursky RB, Reilly TJ, Murray RM (2013) The myth of schizophrenia as a progressive brain disease. Schizophr Bull 39:1363–1372. doi:10.1093/schbul/sbs135
Harvey P, Lepage M, Malla A (2007) Benefits of enriched intervention compared with standard care for patients with recent-onset psychosis: a meta-analytic approach. Can J Psychiatry 52:464–472
Norman RM, Manchanda R, Malla AK, Windell D, Harricharan R, Northcott S (2011) Symptom and functional outcomes for a 5 year early intervention program for psychoses. Schizophr Res 129:111–115. doi:10.1016/j.schres.2011.04.006
Boydell KM, Stasiulis E, Volpe T, Gladstone B (2010) A descriptive review of qualitative studies in first episode psychosis. Early Interv Psychiatry 4:7–24. doi:10.1111/j.1751-7893.2009.00154.x
Lal S, Ungar M, Malla A, Frankish J, Suto M (2014) Meanings of well-being from the perspectives of youth recently diagnosed with psychosis. J Ment Health 23:25–30. doi:10.3109/09638237.2013.841866
Eisenstadt P, Monteiro VB, Diniz MJ, Chaves AC (2012) Experience of recovery from a first-episode psychosis. Early Interv Psychiatry 6:476–480. doi:10.1111/j.1751-7893.2012.00353.x
Windell D, Norman R, Malla AK (2012) The personal meaning of recovery among individuals treated for a first episode of psychosis. Psychiatr Serv 63:548–553. doi:10.1176/appi.ps.201100424
Lal S (2010) Prescribing recovery as the new mantra for mental health: does one prescription serve all? Can J Occup Ther 77:82–89
Whitley R, Drake RE (2010) Recovery: a dimensional approach. Psychiatr Serv 61:1248–1250. doi:10.1176/appi.ps.61.12.1248
Ochocka J, Nelson G, Janzen R (2005) Moving forward: negotiating self and external circumstances in recovery. Psychiatr Rehabil J 28:315–322. doi:10.2975/28.2005.315.32215895914
Corin E, Lauzon G (1992) Positive withdrawal and the quest for meaning: the reconstruction of experience among schizophrenics. Psychiatry 55:279–281
Corin E, Lauzon G (1994) From symptoms to phenomena: the articulation of experience in schizophrenia. J Phenomenl Psych 25:3–50. doi:10.1163/156916294X00106
Mancini MA (2007) A qualitative analysis of turning points in the recovery process. Am J Psychiatr Rehabil 10:223–244. doi:10.1080/15487760701508359
Davidson L (2003) Living outside mental illness: qualitative studies of recovery in schizophrenia. New York University Press, New York
Malla A, Norman R, McLean T, Scholten D, Townsend L (2003) A Canadian programme for early intervention in non-affective psychotic disorders. Aust N Z J Psychiatry 37:649–658. doi:10.1046/j.1440-1614.2003.01194.x12873324
Clausen JA (1998) Life reviews and life stories. In: Giele JZ, Elder GH Jr (eds) Methods of life course research: qualitative and quantitative approaches. Sage, Thousand Oaks, CA, pp 189–212
Corin E, Thara R, Padmavati R (2004) Living through a staggering world: the play of signifiers in early psychosis in South India. In: Jenkins J, Barrett RJ (eds) Schizophrenia, culture and subjectivity. the edge of experience. Cambridge University Press, New York, NY, pp 110–145
Smith JA, Jarman M, Osborn M (1999) Doing interpretative phenomenological analysis. In: Murray M, Chamberlain K (eds) Qualitative health psychology: theories and methods. Sage, London, pp 218–240
Chapman E, Smith JA (2002) Interpretative phenomenological analysis and the new genetics. J Health Psychol 7:125–130. doi:10.1177/1359105302007002397
Knight MTD, Wykes T, Hayward P (2003) ‘People don’t understand’: an investigation of stigma in schizophrenia using interpretative phenomenological analysis (IPA). J Ment Health 12:209–222
O’Toole MS, Ohlsen RI, Taylor TM, Purvis R, Walters J, Pilowsky LS (2004) Treating first episode psychosis—the service users’ perspective: a focus group evaluation. J Psychiatr Ment Health Nurs 11:319–326. doi:10.1111/j.1365-2850.2004.00730.x
Pitt L, Kilbride M, Nothard S, Welford M, Morrison AP (2007) Researching recovery from psychosis: a user-led project. Psych Bull 31:55–60. doi:10.1192/pb.bp.105.008532
Smith JA, Eatough V (2007) Interpretative phenomenological analysis. In: Lyons ACE (ed) Analysing qualitative data in psychology: a practical and comparative guide. Sage, London
Werbart A, Levander S (2005) Understanding the incomprehensible: private theories of first-episode psychotic patients and their therapists. Bull Menninger Cin 69:103–136. doi:10.1521/bumc.69.2.103.6650716006248
Larsen JA (2005) Becoming mentally ill: existential crisis and the social negotiation of identity. In: Steffan V, Jenkins R, Jessen H (eds) Managing uncertainty: ethnographic studies of illness, risk and the struggle for control. Museum Tusculanum Press, Copenhagen, pp 197–223
Roe D, Kravetz S (2003) Different ways of being aware of a psychiatric disability: a multifunctional narrative approach to insight into mental disorder. J Nerv Ment Dis 191:417–424. doi:10.1097/01.NMD.0000081645.31919.6B
Lal S, Ungar M, Leggo C, Malla A, Frankish J, Suto MJ (2013) Well-being and engagement in valued activities: experiences of young people with psychosis. OTJR 33:190–197. doi:10.3928/15394492-20130912-02
Windell D, Norman RM (2013) A qualitative analysis of influences on recovery following a first episode of psychosis. Int J Soc Psychiatry 59:493–500. doi:10.1177/0020764012443751
Estroff SE, Lachicotte WS, Illingworth LC, Johnston A (1991) Everybody’s got a little mental illness: accounts of illness and self among people with severe, persistent mental illnesses. Med Anthropol Q 5:331–369
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Windell, D.L., Norman, R., Lal, S. et al. Subjective experiences of illness recovery in individuals treated for first-episode psychosis. Soc Psychiatry Psychiatr Epidemiol 50, 1069–1077 (2015). https://doi.org/10.1007/s00127-014-1006-x
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DOI: https://doi.org/10.1007/s00127-014-1006-x