Abstract
The book chapter purports to provide insights, research gaps, and lessons using a narrative literature review approach. The discussion was centered on unveiling aging (aging with disability and disability with aging included) advocacy and activism for living arrangement-instutionalized, while taking inspiration from disability movement that is led by disabled people that adopted independent living as an example of community living. The discourse discovered that advocacy on aging began in the 1970s, while oriented toward feminism; however, the twenty-first century fosters social innovation as well as learning from independent living, thereby making the chapter to foster the idea of giving options for the aging population to choose preference on living arrangements that enhance freedom and dignity as essential human rights.
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Akosile, C. O., Igwemmadu, C. K., Okoye, E. C., Fabunmi, A. A., & Onwuakagba, I. U. (2021). Physical activity level, fear of falling and quality of life: A comparison between community-dwelling and assisted-living older adults. BMC Geriatrics, 21(1), 12.
Altpeter, M., Schneider, E. C., & Whitelaw, N. (2014). Examining strategies to build and sustain healthy ageing programming collaboratives. Health Education & Behavior, 41, 27S–33S. http://www.jstor.org/stable/45056949
Atlantis Community, Inc v Adams, 453F. Supp.825 (D Colorado 1978).
Averill, J. B. (2012). Priorities for action in a rural older adults study. Family and Community Health, 35(4), 358–372. http://www.jstor.org/stable/44953442
Casey, J. P. (2014). Understanding advocacy: a primer on the policy-making role of nonprofit organizations. Researchgate.
Casey, J., & Mehrotra, A. (2011). New York City nonprofit advocacy case studies (series of three case studies). Center for Nonprofit Strategy and Management. New York: Baruch College. www.baruch.cuny.edu/spa/researchcenters/nonprofitstrategy/CaseStudies.php
Charpentier, M., Queniart, A., & Jacques, J. (2008). Activism among older women in Quebec, Canada: Changing the world after age 65. Journal of Women and Ageing, 20(3–4), 343–360.
Ciafone, A. (2021). The Gray Panthers are watching gray women’s media activism in the 1970s and 80s. Feminist Media Studies, 21(2), 265–280.
D’cruz, M., & Banerjee, D. (2020). ‘An invisible human rights crisis’: The marginalisation of older adults during the COVID-19 pandemic – An advocacy review. Psychiatry Research, 292, 113369.
DeJong, G. (1979). Independent living: From social movement to analytic paradigm. Archives of Physical Medicine and Rehabilitation, 435–446.
Department of Women Youth and Persons with Disabilities; United Nations Development Agency. (2022). The Costs and Elements of Disability in South Africa. Department of Women Youth and Persons with Disabilities.
DiGennaro Reed, F. D., Strouse, M. C., Jenkins, S. R., Price, J., Henley, A. J., & Hirst, J. M. (2014). Barriers to Independent Living for Individuals with Disabilities and Seniors. Behaviour Analysis in Practice, (7), 70–77.
Doncel-García, B., Mosquera-Lajas, Á., Fernández-Gutiérrez, N., Lizaso, I., & Irazusta, J. (2022). Relationship between negative stereotypes toward ageing and multidimensional variables in older people living in two different social environments. Archives of Gerontology and Geriatrics, 98, 104567.
Friedman, J. (1992). Empowerment: The politics of alternative development. Sage Journals, 18(2), 142–144. Retrieved from https://doi.org/10.1177/030981689405300115
Gelders, B. (2015). Good practices and barriers in the use of data for policy and advocacy on ageing in Asia-Pacific. HelpAge International, East Asua/PAcific Regional Office. Thailand: UNFPA.
Haller, B. (2011). Social media and disability rights activism is the internet finally providing liberating technology. Society for Disability Studies Conference. CA: Media and Disability Resources.
Hayman, B. (2019, May). www.accessliving.org. From Access Living: https://www.accessliving.org/newsroom/blog/independent-living-history/
Hearings Before the Committee on the Judiciary United States Senate. (1996). Washington, DC: US Government printing.
Holstein, M. (2013). A looming dystopia: Feminism, ageing, and community-based long-term care. International Journal of Feminist Approaches to Bioethics, 6(2), 6–35. https://doi.org/10.2979/intjfemappbio.6.2.6
Holton, J. (2007). The coding process and its Challenges. In A. Bryant, & K. Charmaz (Eds.), The SAGE handbook of grounded theory (pp. 265–289). London: Sage.
Hutchison, P., Pedlar, A., Lord, J., McGeown, M., Taylor, A., & Vandetelli, C. (1997). The impact of Independent Living Resource Centres in Canada on people with disabilities. Canadian Journal of Rehabilitation, 10(2), 99–112.
Inclusion International. (2021, December 3). Inclusion International Twitter page. From https://twitter.com/InclusionIntl/status/1466770504174514176?ref_src=twsrc%5Etfw%7Ctwcamp%5Etweetembed%7Ctwterm%5E1466770504174514176%7Ctwgr%5E%7Ctwcon%5Es1_&ref_url=http%3A%2F%2Fwww.inclusion-europe.eu%2Fsoufiane-el-amrani-self-advocates-tell-the-un-we-w.
Independent Living Institute. (2003). The independent living movement in the UK. From www.independentliving.org: https://www.independentliving.org/docs6/evans2003.html
Iwakuma, M. (2011). Disability in the Far East: Japan’s social transformation in perceptions of people with disabilities. Review of Disabilities Studies: An International Journal, 7(3 & 4).
Japan International Corporation Agency. (2013). Japanese NGO has started three-year project with two South African NGOs in Johannesburg. Retrieved from www.jica.go.jp, https://www.jica.go.jp/southafrica/english/activities/c8h0vm00005zn0hv-att/activities01_07.pdf
John, O. (n.d.). Ed Roberts: The birth of the independent living movement. From Mn Department of Administration: Governor’s Council in Developmental Disabilities: https://mn.gov/mnddc/parallels/six/6b/1.html
Kazou, K. (2017). Analyzing the definition of disability in the UN Convention on the rights of persons with disabilities is it really based on a ‘Social Model’ approach. International Journal of Mental Health and Capacity Law, 25. https://doi.org/10.19164/ijmhcl.v2017i23.630.
Keystone Human Services. (2020, November). Position paper: Deinstitutionalization of persons with disabilities in the Republic of Moldova. From www.inclusion-Europe.eu, http://www.inclusion-europe.eu/wp-content/uploads/2020/11/Position-Paper-Deinstitutionalization-of-Persons-with-Disabilities-in-the-Republic-of-Moldova-EN.pdf
Leeds University. (2003). From Le Court to Strasbourg: Fighting for independent living for 30 years. From www.disability-studies.leeds.ac.uk: https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/2-From-Le-Court-to-Strasbourg.pdf
Lord, J. (1991). Lives in transition: The process of personal empowerment. Centre for Research & Education in Human Services.
Los Angeles Times. (1999). Japanese best seller puts disabled in positive light. From Los Angeles Times: https://www.latimes.com/archives/la-xpm-1999-jul-19-mn-57404-story.html
Mah, J. C., Stevens, S. J., Keefe, J. M., Rockwood, K., & Andrew, M. K. (2021). Social factors influencing utilization of home care in community-dwelling older adults: A scoping review. BMC Geriatrics, 21(1), 145.
Marengoni, A., Tazzeo, C., Calderón-Larrañaga, A., Rizzuto, D., & Vetrano, D. L. (2021). Multimorbidity patterns and 6-year risk of institutionalization in older persons: The role of social formal and informal care. Journal of the American Medical Directors Association, 22(10), 2184–2189.e1.
Martin, D. J. (2018). “How are you ageing today?” Art, activism and ageing. Working with Older People, 22(2), 121–128.
McDonald, G., & Oxford, M. (1995, January 1). History of independent living. Retrieved from www.mosilc.org.:https://mosilc.org/wpcontent/uploads/HistoryofIndependentLiving.pdf
Metaxas, T., & Psarropoulou, S. (2021). Sustainable development and resilience: A combined analysis of the cities of Rotterdam and Thessaloniki. Urban Science, 5, 78. https://doi.org/10.3390/urbansci5040078
Miho, I. (2011). Disability in the far east: Japan’s social transformation in perceptions of people with disabilities. Scholarspace, 16.
Nakagawa, T., Noguchi, T., Komatsu, A., Ishihara, M., & Saito, T. (2022). Ageing-in-place preferences and institutionalization among Japanese older adults: A 7-year longitudinal study. BMC Geriatrics, 22(1), 66.
Narushima, M. (2004). A gaggle of raging grannies: The empowerment of older Canadian women through social activism. International Journal of Lifelong Education, 23(1), 23–42.
New York Times. (2020, July 22). Before the A.D.A., There was Section 504. San Francisco.
Noguchi, T., Murata, C., Hayashi, T., Kondo, K., & Saito, T. (2022). Association between community-level social capital and frailty onset among older adults: A multilevel longitudinal study from the Japan Gerontological Evaluation Study (JAGES). Journal of Epidemiology and Community Health, 76(2), 182–189.
Open Society Foundations. (2012, June 14). Moldovan Government takes historic step to move people with disabilities out of Institutions.
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., et al. (2021). The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. BMJ, 372, n71. https://doi.org/10.1136/BMJ.n71
Pogach, D. (2019). Supported decision-making for older adults with age-related cognitive decline. Generations: Journal of the American Society on Ageing, 43(4), 87–93. https://www.jstor.org/stable/26908298
Rabuffetti, M., Zemp, D. D., Tettamanti, M., Quadri, P. L., & Ferrarin, M. (2022). Stabilization after postural transitions in the elderly: Experimental study on community-dwelling subjects and nursing home residents. Gait and Posture, 91, 105–110.
Robertson, A. (1999). Beyond apocalyptic demography: Toward a moral economy of interdependence. In M. Minkler & C. L. Estes (Eds.), Critical gerontology: Perspective from political and moral economy (pp. 75–90). Beywood.
Rose, M., Flatt, T., Graves, J., Jr., Greer, L., Martinez, D., Matos, M., Mueller, L., Shmookler, R. R., & Shahrestani, P. (2012). What is ageing? Frontiers in Genetics., 3, 134. https://doi.org/10.3389/fgene.2012.00134
Saldãna, J. (2013). Coding Manual for Qualitative Researchers (Second ed.). Washington DC: Sage.
Sawchuk, D. (2009). The raging grannies: Defying stereotypes and embracing ageing through activism. Journal of Women & Ageing, 21(3), 171–185. https://doi.org/10.1080/08952840903054898
Serrat, R., Chacur-Kiss, K., & Villar, F. (2021). Ageing activisms: A narrative exploration of older adults’ experiences of political participation. Sociological Research Online. Article in Press.
Slasberg, C., & Beresford, P. (2020). Independent living: the real and present danger. Disability & Society, 35(2), 326–331.
Sorensen, H., & Black, B. (2001). Advocacy and ageing. Australasian Journal on Ageing, 20, 27–34.
Statistica. (2021). www.statistica.com. Retrieved from https://www.statista.com/statistics/264727/median-age-of-the-population-in-selected-countries/
Takao, Y. (2009). Ageing and political participation in Japan: The Dankai generation in a political swing. Asian Survey, 49(5), 852–872. https://doi.org/10.1525/as.2009.49.5.852
Taylor, P., & Smith, W. (2017). What’s age got to do with it? Towards a new advocacy on ageing and work. Retrieved from Minerva-access.unimelb.edu: https://minerva-access.unimelb.edu.au/items/4ec577af-c854-5798-89b0-c8d28cf17872
The New York Times. (2017, July 26). Health care votes: Senate rejects repeal without replace. Politics.
United Nations (UN). (2019). Accessed February 2022. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/convention-on-the-rights-of-persons-with-disabilities-2.html.
United Nations Department of Economic and Social Affairs. (2022, January 5). Convention on the Rights of persons with disabilities. From www.un.org: https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html#:~:text=There%20were%2082%20signatories%20to,Convention%20on%20its%20opening%20day.
Veress, J., & Bagirova, A. (2018) Parental labour: Labour market acceptance driven by civil activism. In: Proceedings of the 14th European Conference on Management, Leadership and governance, ECMLG (pp. 307–314).
Viljanen, A., Salminen, M., Irjala, K., Heikkilä, E., Isoaho, R., Kivelä, S.-L., … Viikari, L. (2021). Subjective and objective health predicting mortality and institutionalization: an 18-year population-based follow-up study among community-dwelling Finnish older adults. BMC Geriatrics, 358.
Wentzell, E. (2020). Ageing well as activism: Advancing the Mexican social body through individually successful ageing. Anthropology and Ageing., 41(2), 46–58.
Westword: Activism. (2017, June 27). Wheelchair Sports Camp MC Joins Sit-In at Cory Gardner’s Office. Denver.
White, G. W., Simpson, J. L., Gonda, C., Ravesloot, C., & Zach, C. (2010). Moving from independence to interdependence: A conceptual model for better understanding community participation of centers for independent living consumers. Journal of Disability Policy Studies, 20(4), 233–240.
Wiggin, D., Velonaki, V. S., Sourtzi, P., Timmons, S., & EMMA Consortium. (2021). 83 ‘WHAT DOES “Active Ageing” mean to you?’ A Five-Country Survey of Academics, Students, Advocacy Groups, and ‘Expert’ older People. Age and Ageing, 50(Suppl 3), afab216-8.
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Nzo, Z., Makuyana, T., Yabunaga, C., Pretorius, L. (2023). Disability and Aging: A Literature Review on Advocacy and Activism for Sustainable and Resilient Community Living. In: Rioux, M.H., Viera, J., Buettgen, A., Zubrow, E. (eds) Handbook of Disability. Springer, Singapore. https://doi.org/10.1007/978-981-16-1278-7_70-1
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Disability and Aging: A Literature Review on Advocacy and Activism for Sustainable and Resilient Community Living- Published:
- 29 April 2024
DOI: https://doi.org/10.1007/978-981-16-1278-7_70-2
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Disability and Aging: A Literature Review on Advocacy and Activism for Sustainable and Resilient Community Living- Published:
- 12 January 2023
DOI: https://doi.org/10.1007/978-981-16-1278-7_70-1