Abstract
There can be little doubt that sociology has played a key role in our understanding of the process of disablement. Yet most sociologists have ignored the onset of disability as defined by activists and organizations controlled and run by disabled people. As a response, the latter half of the last century saw the rise of a radical critique of conventional thinking and research on disability in universities and colleges. All of which ultimately led to the creation of a new interdisciplinary area of critical enquiry: that of disability studies. Consequently, this paper traces the origins and subsequent activism of these developments with reference to world-leading protagonists in the United States of America (USA) and the United Kingdom (UK).
Starting with the onset of capitalism and its detrimental effects on disabled people, this chapter demonstrates how the re-interpretation of disability by disabled activists during the 1970s has had an important impact on the perceptions and analysis of disability within and beyond universities and colleges in the UK and the USA. Although these developments were to be welcomed – as it signified a growing recognition of the importance of the issues raised – it also, as the chapter illustrates, needs to be treated with some caution. In particular, the recent and growing individualization of disability studies within the academy by some disability scholars signifies nothing less than a reaffirmation of traditional academic values and the effective de-politicization of the discipline with little relevance beyond the sterile confines of the university seminar room. Accordingly, the chapter argues it is a prerequisite that this stance is overcome and subordinated to the social model of disability in order to fully instigate a tangible sense of social justice/inclusion. Only then can the difficulties and obstacles facing disabled people be effectively opposed and overcome.
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References
Albrecht, G. (2002). American pragmatism, sociology and the development of disability studies. In C. Barnes, M. Oliver, & L. Barton (Eds.), Disability studies today (pp. 18–37). Polity Press.
Baldwinson, T. (Ed.). (2019). UPIAS the Union of the physically impaired against segregation (1990) a public record form private files. Manchester Coalition of Disabled People’ Disability Archive.
*Barnes, C. (1985). Discrimination against disabled people (causes meanings and consequences) or the sociology of disability. Disability Archive UK.
*Barnes, C. (1990). Cabbage syndrome: The social construction of dependence. The Falmer Press.
*Barnes, C. (1991a). Disabled people in Britain and discrimination: A case for anti- discrimination legislation. Hurst and Co.
*Barnes, C. (1991b). Disabled people in Britain and discrimination: A case for anti- discrimination legislation. The British Council of Organizations of Disabled People.
*Barnes, C. (1992). Disabling imagery and the media. Ryburn Press.
*Barnes, C. (ed.) (1993). Making our own choices: Independent living and personal assistance. British Council of Organizations of Disabled People.
*Barnes, C. (1995). Measuring disablement; hopes and reservations. Disability Archive UK. https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Barnes-measuring-dis.pdf
*Barnes C. (2003). Disability studies: What’s the point? (Plenary presentation at the ‘Disability Studies: Theory. Policy and Practice’ Conference; University of Lancaster, September 4th. 2003). Disability Archive UK.
Barnes, C. (2011). Disability Studies: where next?, Invited presentation at McGill University, Montreal, Thursday 10th November. Available at: http://www.mcgill.ca/files/osd/Disabilitystudieswherenext.pdf, Accessed, 19 Dec 2011.
*Barnes, C. (Undated). The disability archive UK. Centre for Disability Studies, School of Sociology and Social Policy.
Barnes, C., & Mercer, G. (2006). Independent futures: Creating user led disability services in a disabling society. The Policy Press.
Barnes, C., & Mercer, G. (2010). Exploring Disability (2nd ed.). Polity.
Barnes, C. & Oliver, M. (2012). Back to the Future: the World Report on Disability. Disability and Society, 27(4), 575–579.
*Barnes, C., Mercer, G., & Morgan, H. (2001). Creating independent futures: An evaluation of services led by disabled people: Stage one report. The Disability Archive UK.
Barnes, C., Oliver, M., & Barton, L. (Eds.). (2002). Disability studies today. Polity Press.
Barnes, C., & Sheldon, A. (2010). Disability, politics and policy in a majority world context. Disability and Society, 25(7), 77–82.
Barret, M. (1996). In J. Cambell & M. Oliver (Eds.), Disability politics: Understanding our past, changing our future (pp. 40–41). Routledge.
Barton, L. (1986). The politics of special educational needs. Disability Handicap and Society, 1(3), 373–390.
Beveridge. (1942). Social insurance and allied services. Her Majesty’s Stationary Office.
Bickenbach, J. E. (2009). Disability, non-talent, and distributive justice. In K. Kristiansen, S. Velmas, & T. Shakespeare (Eds.), Arguing about disability: Philosophical perspectives (pp. 105–123). Routledge.
Bickenbach, J. E. (2011). The world report on disability. Disability and Society, 26(5), 655–658.
Bickenbach, J. E. (2012). Disability, non-talent, and distributive justice. In Kristiansen, K., Velmas, S. Shakespeare, T. (eds.), Arguing About Disability: philosophical perspectives, London: Routledge, 105–123.
Blaxter, M. (1976). The meaning of disability. Heinemann.
Bowe, F. (1979). Handicapping America, New York: Harper and Rowe.
Office, C. (2005). Improving the life chances of disabled people, final report. Cabinet Office. https://core.ac.uk/download/pdf/4156824.pdf
Campbell, J., & Oliver, M. (1996). Disability politics: Understanding our past, changing our future. Routledge.
*Campling, J. (1979). Better lives for disabled women. Virago.
*Campling, J. (Ed.). (1981). Images of ourselves: Women with disabilities talking. Routledge and Kagan Paul.
Charlton, J. I. (1998). Nothing about us without us: Disability oppression and empowerment. University of California Press.
DA. (1975). Poverty and disability. Disability Alliance.
Davis, F. (1961). Deviance disavowal: The management of strained interaction by the visibly handicapped. Social Problems, 9(2), 120–132.
Davis, K. (1981). 28-38 grove road: Accommodation and care in community setting. In A. Brechin, P. Liddiard, & J. Swain (Eds.), Handicap in a social world (pp. 322–327). Hodder and Stoughton in association with the Open University.
Davis, K., & Woodward, J. (1981). DIAL UK: Development of the National Association of disability information and advice services. In A. Brechin, P. Liddiard, & J. Swain (Eds.), Handicap in a social world (pp. 328–332). Hodder and Stoughton in association with the Open University.
Davis, K. (1990). A social barriers model of disability: Theory into practise. The Derbyshire Coalition of Disabled People.
Davis, L. J. (1995). Enforcing normalcy: Disability, deafness and the body. Verso.
Davis, M., & Davis, K. (2019). Independent living, disabled people, and social care: Fighting segregation and abuse, (edited by Tony Baldwinson). Greater Manchester Coalition of Disabled People Disability Archive.
DHS. (1992). Special issue research disability, disability. Handicap and Society, 7(2).
Disability Rights UK. (2019). Reports to UN Committee 2017 Implementation of the United Nations Convention of the Rights of Persons with Disabilities: https://www.disabilityrightsuk.org/news/2017/january/disabled-people-tell-un-committee-uk-failing-international-rights-convention;
*DPI. (1982). Disabled peoples’ international: Proceedings of first world congress. Disabled Peoples International.
*DPI. (1994a). Report of the first European disabled People’s parliament: Held in the hemicycle of the European Parliament, Brussels, Belgium, Friday 3rd December 1993.
*DPI. (1994b). Agreed statement: Human rights plenary meeting in support of European day of disabled persons, : Disabled Peoples International.
DRC. (2006). The disability equality duty. The Disability Rights Commission. https://www.drc.org.uk/pdf/DED%20schools%20flyer.pdf
Driedger, D. (1989). The last civil rights movement: Disabled peoples; International. Hurst and Co.
Evans, J. (1993). The role of Centres for independent living and networks of disabled people In C. Barnes (Ed), Making our own choices: Derby, British Council of Organizations of Disabled People, pp. 59–64.
*Finkelstein, V. (1980). Attitudes and disabled people. World Rehabilitation Fund.
*Finkelstein, V. (1986). Supporting the cultural expression through the arts. The Disability Archive.
*Gillespie-Sells, K., & Campbell, J. (1990). Disability equality training: Trainers guide. Central Council for Education and Training in Social Work.
Goffman, E. (1961). Asylums. Doubleday/Anchor books.
Goffman, E. (1963). Stigma: Notes on the Management of a Spoiled Identity. Prentice Hall.
Goodley, D. (2017). Disability studies: An interdisciplinary introduction (2nd ed.). Sage.
Gordon, C. (1966). Role theory and illness: A sociological perspective. College and University Press.
Harvey, D. (2010). The enigma of capital. Profile Books.
Harris, A., Cox, E., & Smith, C. (1971). Handicapped and impaired in great in Britain, part 2. HMSO.
*Harrison, M., Hemingway, L., Sheldon, A., Pawson, R., & Barnes, C. (2009). Evaluation of provision and support for disabled students in higher education: Report to HEFCE and HEFCW by the Centre for Disability Studies and School of sociology and social policy at the University of Leeds. Disability Archive UK.
*Hunt, P. (1966). A critical condition. In P. Hunt (ed.) Stigma: The experience of disability. Geoffrey Chapman, 145–159.
Ingstad, B. (2001). Disability in the developing world. In G. L. Albrecht, K. D. Seelman, & M. Bury (Eds.), Handbook of disability studies. Sage.
*Jolly, D. (2013). A Tale of two Models: Disabled people vs Unum, Atos, government and disability charities, Disabled People Against the Cuts.
Kasserbaum, G., & Bauman, B. (1965). Dimensions of the sick role in chronic illness. Journal of health and social behaviour, 6(1), 16–25.
*Morrison, E., & Finkelstein, V. (1983). Culture as struggle: Access to power. In S. Lees (ed.), Disability arts in London, part 2. Shape.
Miles, M. (2001) ‘ICIDH meets Postmodernism, or “incredulity toward meta-terminology”’, Disability World, (March–April), unpaged. (Available at: http://www.disabilityworld.org/03-04_01/resources/icidh.html;
Oliver, M. (1983). Social work and disabled people. Macmillan.
*Oliver, M. (1990) The politics of disablement. Macmillan.
Oliiver, M. (1996). Understanding disability: From theory to practice. Macmillan.
Oliver, M., & Barnes, C. (1998). Social policy and disabled people: From exclusion to inclusion. Longman.
Oliver, M., & Barnes, C. (2012). The new politics of disablement. Tavistock.
Parsons, T. (1951). The social system. Free Press.
*Prideaux, S. (2006). Good practice for providing reasonable access to the physical built environment for disabled people. The Disability Press.
Priestley, M. (1998). Constructions and Creations: idealism, materialism and disability theory. Disability and Society, 13(1), 75–95.
Priestley, M. (2020). Personal communication. School of Sociology and Social Policy, University of Leeds.
Priestley, M., Jolly, D., Pearson, C., Riddell, S., Barnes, C., & Mercer, G. (2007). Direct payments and disabled people in the UK: Supply, demand and devolution. British Journal of Social Work, 37, 1189–1204.
Ratska, A. (1996). Alternate living and attendant Care in Sweden: A consumer perspective. Independent Living Institute. https://www.independentliving.org/docs1/ar1986spr.html.
Russell, M. (1998). Disability and the end of the social contract – A warning from an uppity crip. Common courage press.
Ryan, F. (2019). Crippled: Austerity and the demonization of disabled people. Verso.
Ryan, J., & Thomas, F. (1980). The Politics of Mental Handicap. Harmondsworth: Penguin.
Safilios-Rothschild, C. (1970). The sociology and social psychology of disability and rehabilitation. Tandom House.
Scott, R. (1969). The making of blind men. Sage.
Shapiro, J. (1994). No pity: People with disabilities forging a new civil rights movement. Times books.
Shakespeare, T. W., & Watson, N. (2001). The social model of (disability: An outdated ideology). In S. N. Barnartt & B. M. Altman (Eds.), Exploring theories and expanding methodologies: Where are we and where do we need to go? Research in social science and disability (Vol. 2, pp. 9–28). JAI Elsevier.
Shearer, A. (1981). Disability: Whose handicap. Basil Blackwell.
Sheldon, A. (2004). Changing technology. In J. Swain, S. French, C. Barnes, & C. Thomas (Eds.), Disabling barriers - enabling environments (pp. 155–160). Sage.
*Sheldon, A. (2006). Disabling the disabled people’s movement? The influence of disability studies on the struggle for liberation, Draft plenary paper for the 3rd Disability Studies Association conference, Lancaster, UK, September 18th–20th 2006.
Slorach, R. (2016). A very capitalist condition: A history and politics of disability. Bookmarks Publications.
Stubbins, J. (1979). A critique of Vic Finkelstein’s changing attitudes and disabled people: Issues for discussion. In V. Finkelstein (Ed.), (1980) attitudes and disabled people (pp. 69–93). World Rehabilitation Fund.
*The Guardian. (1972). A letter to the Guardian by Paul Hunt, 20th September p. 42.
Thomas, C. (1999). Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
Toplis, E. (1979). Provision for the disabled (2nd ed.). Blackwell with Martin Robertson.
Townsend, P. (1979). Poverty in the United Kingdom. Penguin.
Tremain, S. (2002). On the subject of impairment. In M. Corker & T. Shakespeare (Eds.), Disability/postmodernity: Embodying disability theory (pp. 32–47). Continuum.
UN. (1993). The standard rules on the equalization of opportunities for persons with disabilities. United Nations.
*UPIAS. (1974). Policy statement. Union of the Physically Impaired Against Segregation.
*UPIAS. (1976). Fundamental principles of disability. Union of the Physically Impaired Against Segregation.
Warson, N. (2019). Agency, structure and emancipatory disability research: Researching disability. In N. Watson & S. Vehmas (Eds.), Routledge handbook of disability studies (2nd ed., pp. 127–141). Routledge.
Watson, N., & Vehmas, S. (2019). Routledge handbook of disability studies (2nd ed.). Routledge.
Westmoreland, D. (2020) School of Sociology and Social Policy The University of Leeds, Personal communication, 10th January 2020.
WHO. (1980). International classification of impairments, disabilities and handicaps. World Health Organization.
WHO. (2001a). International classification of functioning, disability and health. World Health Organization.
*WHO (2001b). Rethinking care from the perspective of disabled people; report and recommendations. World Health Organization’s Disability and Rehabilitation Team. http://www.who.int/inf-pr-2001/en/note2001-16.html
Zarb, G., & Nadash, P. (1994). Cashing in on independence: Comparing the costs and benefits of cash and Independence. British Council of Organisations of Disabled People.
Zola, K. L. (1989). Towards the universalizing of disability policy. Milbank Memorial Fund Quarterly, 67(suppl. 2), 401–428.
Zola, I. K. (1996). Towards inclusion the role of people with disabilities in policy and research issues in the United States, M. Rioux and M Bach (eds.) Disability is not Measles, New York, Ontario: Roeher Institute, pp. 49–66.
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Barnes, C., Prideaux, S. (2022). Leadership and Disability Studies: Inclusive Development. In: Rioux, M.H., Viera, J., Buettgen, A., Zubrow, E. (eds) Handbook of Disability. Springer, Singapore. https://doi.org/10.1007/978-981-16-1278-7_22-1
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