Abstract
Majority of persons with disabilities are disenfranchised and experience profound exclusion globally as well as in India. Persons with disabilities are barred from obtaining basic services for a decent living. Underestimation on the prevalence rate is a major factor contributing to marginalization coupled with persons with disabilities having no voice or say in the policies that affect their lives. If persons with disabilities are to truly emancipate, then evidence based research that clearly states the “real need” from the perspective of the disabled is the call of the hour to build a collective voice and seek justice and assert rights. Such emancipatory research is based on the premise that the agenda must be set by persons with disabilities with the disabled being at the helm of such studies. Drawing from the authors first hand experiences, this chapter exemplifies how a collaborative approach between persons with disabilities, civil society organizations and academia could generate meaningful outcomes leading to setting the future directions or course of action to be taken. The concept of emancipatory research is particularly in line with the new Law on the Rights of Persons with Disabilities 2016, and therefore the coming decades are an opportune time to undertake emancipatory research to study the implementation of the new law and its impact.
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Notes
- 1.
UNNATI Organisation for Development Education is a non-government organisation working on issues of inclusion, governance and citizenship rights, and disaster risk reduction primarily in the States of Gujarat and Rajasthan in India.
- 2.
The social model of disability propounds that it is the barriers in society—attitudinal, social, cultural physical and economic that limit the function of an individual with an impairment making the situation disabling or leading to disability.
References
Addlakha, R. (2013). Disabilitystudies in India: Global discourses, local realities. New Delhi: Routledge.
Albert, B. (2004). Briefingnote: The social model of disability, human rights and development. Enabling Disabled, Disability KaR Research Project. http://www.disability.co.uk/sites/default/files/resources/social_model_briefing.pdf.
Chandrashekhar, C. P. (2010). From dirgisme to neoliberalism: Aspects of the political economy of the transition in India. Development and Society, 39(1), 29–59.
Charlton, J. (2000). Nothing about us without us: Disability oppression and empowerment. Oakland, CA: University of California Press.
DFID & ODI (2001). Consultation with the poor: A rough guide on participatory poverty assessment (PPAs)—An introduction to theory and practice. http://info.worldbank.org/etools/docs/library/238411/ppa.pdf.
Elwan, A. (1999): Poverty and disability: A survey of the literature. The World Bank. http://siteresources.worldbank.org/INTPOVERTY/Resources/WDR/Background/elwan.pdf.
EPW. (2010). Editorial. Economic and Political Weekly, XLV(36), 8–9.
Freire, P. (1970, reprint 1993). Pedagogy of the oppressed. London: Penguin Books.
Ghai, A. (2009). Disabled women: An excluded agenda of Indian feminism. Hypatia: A Journal of Feminist Philosophy, 17(3), 49–66.
Gill, M. S. (2007). Politics of population census data in India. Economic and Political Weekly, 20, 241–249.
Government of India. (2016a). Rights of persons with disabilities act 2016. http://www.disabilityaffairs.gov.in/upload/uploadfiles/files/RPWD%20ACT%202016.pdf.
Government of India. (2016b). Disabled persons in India: A statistical profile. New Delhi: Social Statistical Division, Ministry of Statistics and Programme implementation. http://mospi.nic.in/sites/default/files/publication_reports/Disabled_persons_in_India_2016.pdf.
Hans, A. (2015). Disability, gender, and the trajectories of power. New Delhi: Sage.
Hiranandani, V., & Sonpal, D. (2010). Disability, economic globalization and privatization: A case study of India. Disability Studies Quarterly, 30(3/4). http://www.dsq-sds.org/article/view/1272/1302.
ILO. (2014). World social protection report: Building economic recovery, inclusive development and social justice (2014–15). http://ilo.org/wcmsp5/groups/public/---dgreports/---dcomm/documents/publication/wcms_245201.pdf.
Jeromi, P. D. (2007). Farmers’ indebtedness and suicides: Impact of agricultural trade liberalization in Kerala. Economic and Political Weekly, 42(31), 3241–3247.
Kumar, A., Sonpal, D., & Hiranandani, V. (2012a). Trapped between Abelism and neo-liberalism: Critical reflections from the field on disability and employment in India. Disability Studies Quarterly, 32(3). http://dsq-sds.org/article/view/3235/3109.
Kumar, G. S., Roy, G. & Kar, S. S. (2012b). Disability and rehabilitation services in India: Issues and challenges. Journal of Family Medicine & Primary Care, 1(1), 69–73.
Oliver, M. (1996). Understanding disability: From theory to practice. New York: Palgrave.
Sainath, P. (2009). The largest waves of suicides in history. Counterpunch. https://www.counterpunch.org/2009/02/12/the-largest-wave-of-suicides-in-history-2/.
Sightsavers & Christian Blind Mission. (2012). Voicing concerns: Road map and strategic document on advocacy and campaigning. New Delhi & Bangalore: Sightsavers and CBM.
Sonpal, D., & Kumar, A. (2012). ‘Whose reality counts?’: Notes on disability, development and participation. Indian Anthropologist, 42(1), 71–73.
United Nations. (2007). United Nations Convention on the Rights of Persons with Disabilities. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html.
UNNATI. (2004).Understandingdisability—Attitude and behaviourchange for social inclusion. Ahmedabad: Unnati Organization for Development Education.
UNNATI. (2006). Mainstreaming Disability Issues.
UNNATI. (2011). Realising UNCRPD: Learning from inclusive practices—Case studies in education and employment. Ahmedabad: Unnati Organization for Development Education.
UNNATI. (2014). Touch and feel: See and absorb—Methods and tools for conducting situation analysis and capacity assessment by disabled persons organisations (DPOs) in India. Ahmedabad: Unnati Organization for Development Education.
UNNATI & Handicap International. (2008). Civilsociety engagement for mainstreaming disability in development process. Ahmedabad: Unnati Organization for Development Education.
Upadhyay, U. (2000). India’s new economic policy of 1991 and its impact on women’s poverty and AIDS. Feminist Economics, 6(3), 105–122.
World Bank. (2019). Disability inclusion. https://www.worldbank.org/en/topic/disability.
WHO (World Health Organisation). (2004). CBR a strategy for rehabilitation, equalization of opportunities, poverty reduction and social inclusion of people with disabilities joint position paper. Geneva: WHO. https://apps.who.int/iris/bitstream/handle/10665/43060/9241592389_eng.pdf;jsessionid=BEFAF7708B22D4FECB840645A16E0D08?sequence=1.
WHO (World Health Organisation) & World Bank. (2011). World report on disability. http://www.who.int/disabilities/world_report/2011/report.pdf.
Yeo, R. (2005). Disability, poverty and the new development agenda: Disability knowledge and research programme. http://hpod.pmhclients.com/pdf/Developmentagenda.pdf.
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Sonpal, D., Hiranandani, V. (2020). Emancipating the Lives of Persons with Disabilities: Potential for Contributions by Disability Studies. In: Mehrotra, N. (eds) Disability Studies in India . Springer, Singapore. https://doi.org/10.1007/978-981-15-2616-9_13
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