Zusammenfassung
Die meisten Menschen möchten an medizinischen Entscheidungen, die sie betreffen, mitwirken. Entscheidungen in der Onkologie können Aspekte wie Prävention, Diagnostik, Therapie, Nachsorge oder Palliativversorgung betreffen. Das Recht auf eine informierte Entscheidungsfindung, die auf adäquatem Wissen über die Handlungsalternativen beruht und im Einklang mit den persönlichen Werten steht, ist im Patientenrechtegesetz verbrieft. Zur Umsetzung müssen Ratsuchenden geeignete Instrumente angeboten werden, die ihnen helfen, allein oder gemeinsam mit dem Behandlungsteam auf Basis verständlicher, ausgewogener und evidenzbasierter Informationen entscheiden zu können. Geeignete Instrumente sind u. a. evidenzbasierte Gesundheitsinformationen, Entscheidungshilfen und das Entscheidungscoaching. An deren Qualität werden hohe Anforderungen gestellt und die Evidenz zeigt, dass sie informierte Entscheidungen fördern. Ihre Implementierung stellt komplexe Anforderungen an das Gesundheitssystem.
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Notes
- 1.
Das Projekt wurde gefördert durch das Landeszentrum Gesundheit Nordrhein-Westfalen (LZG.NRW).
Literatur
Arbeitsgruppe GPGI (2016) Good practice guidelines for health information. Z Evid Fortbild Qual Gesundhwes 110–111:85–92. https://doi.org/10.1016/j.zefq.2015.11.005
Berger-Höger B, Steckelberg A, Gerlach A et al (2014) Eine Entscheidungshilfe für Frauen mit einem DCIS. Universität Hamburg, Gesundheitswissenschaften. https://www.spupeo.de/downloads/Entscheidungshilfe_DCIS_SPUPEO.pdf. Zugegriffen am 27.03.2021
Berger-Höger B, Liethmann K, Mühlhauser I et al (2019) Nurse-led coaching of shared decision-making for women with ductal carcinoma in situ in breast care centers: a cluster randomized controlled trial. Int J Nurs Stud 93:141–152. https://doi.org/10.1016/j.ijnurstu.2019.01.013
Berlin NL, Tandon VJ, Hawley ST et al (2019) Feasibility and efficacy of decision aids to improve decision making for postmastectomy breast reconstruction: a systematic review and meta-analysis. Med Decis Making 39:5–20. https://doi.org/10.1177/0272989x18803879
Brom L, Hopmans W, Pasman HR et al (2014) Congruence between patients’ preferred and perceived participation in medical decision-making: a review of the literature. BMC Med Inform Decis Mak 14:25. https://doi.org/10.1186/1472-6947-14-25
Bundesministerium für Gesundheit (2017) Nationaler Krebsplan – Handlungsfelder, Ziele, Umsetzungsempfehlungen und Ergebnisse. https://www.bundesgesundheitsministerium.de/fileadmin/Dateien/5_Publikationen/Praevention/Broschueren/Broschuere_Nationaler_Krebsplan.pdf. Zugegriffen am 27.03.2021
Charles C, Gafni A (2014) The vexing problem of defining the meaning, role and measurement of values in treatment decision-making. J Comp Eff Res 3:197–209. https://doi.org/10.2217/cer.13.91
Charles C, Gafni A, Whelan T (1997) Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med 44:681–692
Durand MA, Carpenter L, Dolan H et al (2014) Do interventions designed to support shared decision-making reduce health inequalities? A systematic review and meta-analysis. PLoS One 9:e94670. https://doi.org/10.1371/journal.pone.0094670
IPDAS (2017) What are patient decision aids? http://ipdas.ohri.ca/what.html. Zugegriffen am 27.03.2021
Isselhard A, Töpper M, Berger-Höger B et al (2020) Implementation and evaluation of a nurse-led decision-coaching program for healthy breast cancer susceptibility gene (BRCA1/2) mutation carriers: a study protocol for the randomized controlled EDCP-BRCA study. Trials 21:501. https://doi.org/10.1186/s13063-020-04431-x
Ivlev I, Hickman EN, McDonagh MS et al (2017) Use of patient decision aids increased younger women’s reluctance to begin screening mammography: a systematic review and meta-analysis. J Gen Intern Med 32:803–812. https://doi.org/10.1007/s11606-017-4027-9
Joseph-Williams N, Elwyn G, Edwards A (2014a) Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns 94:291–309. https://doi.org/10.1016/j.pec.2013.10.031
Joseph-Williams N, Newcombe R, Politi M et al (2014b) Toward minimum standards for certifying patient decision aids: a modified delphi consensus process. Med Decis Making 34:699–710. https://doi.org/10.1177/0272989X13501721
Jull J, Köpke S, Smith M et al (2021) Decision coaching for people making healthcare decisions. Cochrane Database Syst Rev 11(11):CD013385. https://doi.org/10.1002/14651858.CD013385.pub2
Kane HL, Halpern MT, Squiers LB et al (2014) Implementing and evaluating shared decision making in oncology practice. CA Cancer J Clin 64:377–388. https://doi.org/10.3322/caac.21245
Kasper J, Lühnen J, Hinneburg J et al (2020) MAPPinfo, mapping quality of health information: study protocol for a validation study of an assessment instrument. BMJ Open 10:e040572. https://doi.org/10.1136/bmjopen-2020-040572
Kautz-Freimuth S, Redaèlli M, Rhiem K et al (2021) Development of decision aids for female BRCA1 and BRCA2 mutation carriers in Germany to support preference-sensitive decision making. BMC Med Inform Decis Mak 21(1):180. https://doi.org/10.1186/s12911-021-01528-4
Keij SM, van Duijn-Bakker N, Stiggelbout AM et al (2020) What makes a patient ready for Shared Decision Making? A qualitative study. Patient Educ Couns 104(3):571–577. https://doi.org/10.1016/j.pec.2020.08.031
Krassuski L, Vennedey V, Stock S et al (2019) Effectiveness of decision aids for female BRCA1 and BRCA2 mutation carriers: a systematic review. BMC Med Inform Decis Mak 19:154. https://doi.org/10.1186/s12911-019-0872-2
Lühnen J, Albrecht M, Mühlhauser I et al (2017) Leitlinie evidenzbasierte Gesundheitsinformation. http://www.leitlinie-gesundheitsinformation.de/. Zugegriffen am 27.03.2021
Marteau TM, Dormandy E, Michie S (2001) A measure of informed choice. Health Expect 4(2):99–108. https://doi.org/10.1046/j.1369-6513.2001.00140.x
Martínez-Alonso M, Carles-Lavila M, Pérez-Lacasta MJ et al (2017) Assessment of the effects of decision aids about breast cancer screening: a systematic review and meta-analysis. BMJ Open 7:e016894. https://doi.org/10.1136/bmjopen-2017-016894
McAlpine K, Lewis KB, Trevena LJ et al (2018) What is the effectiveness of patient decision aids for cancer-related decisions? A systematic review subanalysis. JCO Clin Cancer Inform 2:1–13. https://doi.org/10.1200/cci.17.00148
O‘Connor A, Jacobsen MJ (2003) Workbook on Developing and Evaluation Patient Decision Aids. https://decisionaid.ohri.ca/docs/develop/develop_da.pdf. Zugegriffen am 27.03.2021
ÖPGK (2020) Gute Gesundheitsinformation Österreich. Die 15 Qualitätskriterien. Der Weg zum Methodenpapier – Anleitung für Organisationen, Hrsg. 4. Aufl., BMSGPK, Frauengesundheitszentrum, ÖPGK, Wien, Graz. https://oepgk.at/wp-content/uploads/2020/12/2020_11_18_die-gute-gesundheitsinformation.pdf. Zugegriffen am 27.03.2021
Rahn AC, Jull J, Boland L et al (2021) Guidance and/or decision coaching with patient decision aids: scoping reviews to inform the international patient decision aid standards (IPDAS). Med Decis Making. https://doi.org/10.1177/0272989x21997330
Rummer A, Scheibler F (2016) Patientenrechte: Informierte Entscheidung als patientenrelevanter Endpunkt. Dtsch Arztebl International 113:322–324
Stacey D, Volk RJ (2021) The international patient decision aid standards (IPDAS) collaboration: evidence update 2.0. Med Decis Making 41(7):729–733. https://doi.org/10.1177/0272989X211035681
Stacey D, Murray MA, Legare F et al (2008) Decision coaching to support shared decision making: a framework, evidence, and implications for nursing practice, education, and policy. Worldviews Evid Based Nurs 5:25–35. https://doi.org/10.1111/j.1741-6787.2007.00108.x
Stacey D, Hill S, McCaffery K et al (2017a) Shared decision making interventions: theoretical and empirical evidence with implications for health literacy. Stud Health Technol Inform 240:263–283
Stacey D, Légaré F, Lewis K et al (2017b) Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev 4:CD001431. https://doi.org/10.1002/14651858.CD001431.pub5
Stacey D, Légaré F, Boland L et al (2020) 20th anniversary ottawa decision support framework: part 3 overview of systematic reviews and updated framework. Med Decis Making 40:379–398. https://doi.org/10.1177/0272989x20911870
Witteman HO, Scherer LD, Gavaruzzi T et al (2016) Design features of explicit values clarification methods: a systematic review. Med Decis Making 36:453–471. https://doi.org/10.1177/0272989x15626397
Zdenkowski N, Butow P, Tesson S et al (2016) A systematic review of decision aids for patients making a decision about treatment for early breast cancer. Breast 26:31–45. https://doi.org/10.1016/j.breast.2015.12.007
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Berger-Höger, B., Isselhard, A., Stock, S., Kautz-Freimuth, S. (2023). Unterstützung informierter Entscheidungen in der Onkologie. In: Rathmann, K., Dadaczynski, K., Okan, O., Messer, M. (eds) Gesundheitskompetenz. Springer Reference Pflege – Therapie – Gesundheit . Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-662-67055-2_145
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